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Rethinking palliative care in a public health context: addressing the needs of persons with non-communicable chronic diseases

Authors :
Tânia dos Santos Afonso
Guido Iaccarino
Donatella Tramontano
Chariklia Tziraki
João Apóstolo
Silvia Varani
Bart Geurden
Regina Roller-Wirnsberger
Rónán O'Caoimh
Silvina Santana
Christos Lionis
Giuseppe Liotta
Veronica Zavagli
Patrik Eklund
Giovanni Tramontano
Corrina Grimes
Maria Triassi
D. William Molloy
Rafael Rodríguez-Acuña
Vincenzo De Luca
Filipa Ventura
Marilena Anastasaki
Maddalena Illario
Manuel Luís Capelas
Maria Romano
Tziraki, C.
Grimes, C.
Ventura, F.
O'Caoimh, R.
Santana, S.
Zavagli, V.
Varani, S.
Tramontano, D.
Apostolo, J.
Geurden, B.
De Luca, V.
Tramontano, G.
Romano, M. R.
Anastasaki, M.
Lionis, C.
Rodriguez-Acuna, R.
Capelas, M. L.
Dos Santos Afonso, T.
Molloy, D. W.
Liotta, G.
Iaccarino, G.
Triassi, M.
Eklund, P.
Roller-Wirnsberger, R.
Illario, M.
Veritati - Repositório Institucional da Universidade Católica Portuguesa
Source :
Primary health care research and development, Repositório Científico de Acesso Aberto de Portugal, Repositório Científico de Acesso Aberto de Portugal (RCAAP), instacron:RCAAP, Primary Health Care Research & Development
Publication Year :
2020
Publisher :
Cambridge University Press (CUP), 2020.

Abstract

Non-communicable chronic diseases (NCCDs) are the main cause of morbidity and mortality globally. Demographic aging has resulted in older populations with more complex healthcare needs. This necessitates a multilevel rethinking of healthcare policies, health education and community support systems with digitalization of technologies playing a central role. The European Innovation Partnership on Active and Healthy Aging (A3) working group focuses on well-being for older adults, with an emphasis on quality of life and healthy aging. A subgroup of A3, including multidisciplinary stakeholders in health care across Europe, focuses on the palliative care (PC) model as a paradigm to be modified to meet the needs of older persons with NCCDs. This development paper delineates the key parameters we identified as critical in creating a public health model of PC directed to the needs of persons with NCCDs. This paradigm shift should affect horizontal components of public health models. Furthermore, our model includes vertical components often neglected, such as nutrition, resilience, well-being and leisure activities. The main enablers identified are information and communication technologies, education and training programs, communities of compassion, twinning activities, promoting research and increasing awareness amongst policymakers. We also identified key ‘bottlenecks’: inequity of access, insufficient research, inadequate development of advance care planning and a lack of co-creation of relevant technologies and shared decision-making. Rethinking PC within a public health context must focus on developing policies, training and technologies to enhance person-centered quality life for those with NCCD, while ensuring that they and those important to them experience death with dignity.

Details

ISSN :
14771128 and 14634236
Volume :
21
Database :
OpenAIRE
Journal :
Primary Health Care Research & Development
Accession number :
edsair.doi.dedup.....e07400672168410b4afe36bcb0437b0b