Back to Search
Start Over
Development and validation of a patient decision aid for prostate Cancer therapy
- Source :
- BMC Medical Informatics and Decision Making, 19(130), BMC Medical Informatics and Decision Making, Vol 19, Iss 1, Pp 1-11 (2019), BMC Medical Informatics and Decision Making, 19:130. BioMed Central Ltd, BMC Medical Informatics and Decision Making
- Publication Year :
- 2019
- Publisher :
- BioMed Central Ltd, 2019.
-
Abstract
- Background Patient decision aids (PDAs) can support the treatment decision making process and empower patients to take a proactive role in their treatment pathway while using a shared decision-making (SDM) approach making participatory medicine possible. The aim of this study was to develop a PDA for prostate cancer that is accurate and user-friendly. Methods We followed a user-centered design process consisting of five rounds of semi-structured interviews and usability surveys with topics such as informational/decisional needs of users and requirements for PDAs. Our user-base consisted of 8 urologists, 4 radiation oncologists, 2 oncology nurses, 8 general practitioners, 19 former prostate cancer patients, 4 usability experts and 11 healthy volunteers. Results Informational needs for patients centered on three key factors: treatment experience, post-treatment quality of life, and the impact of side effects. Patients and clinicians valued a PDA that presents balanced information on these factors through simple understandable language and visual aids. Usability questionnaires revealed that patients were more satisfied overall with the PDA than clinicians; however, both groups had concerns that the PDA might lengthen consultation times (42 and 41%, respectively). The PDA is accessible on http://beslissamen.nl/. Conclusions User-centered design provided valuable insights into PDA requirements but challenges in integrating diverse perspectives as clinicians focus on clinical outcomes while patients also consider quality of life. Nevertheless, it is crucial to involve a broad base of clinical users in order to better understand the decision-making process and to develop a PDA that is accurate, usable, and acceptable. Electronic supplementary material The online version of this article (10.1186/s12911-019-0862-4) contains supplementary material, which is available to authorized users.
- Subjects :
- Adult
Male
020205 medical informatics
Process (engineering)
Urology
education
Nurses
Health Informatics
02 engineering and technology
lcsh:Computer applications to medicine. Medical informatics
Health informatics
Decision Support Techniques
Paternalism
03 medical and health sciences
0302 clinical medicine
Quality of life (healthcare)
Patient Education as Topic
QUALITY-OF-LIFE
Physicians
0202 electrical engineering, electronic engineering, information engineering
Decision aids
Humans
030212 general & internal medicine
Shared decision-making
User-centered design
Medical education
Prostate cancer
business.industry
Health Policy
Oncology Nursing
Prostatic Neoplasms
Usability
Patient education
16. Peace & justice
3. Good health
Computer Science Applications
Patient decision aid
Technical Advance
SURGICAL-TREATMENT
lcsh:R858-859.7
Female
Patient Participation
Psychology
business
Decision Making, Shared
Subjects
Details
- Language :
- English
- ISSN :
- 14726947
- Volume :
- 19
- Database :
- OpenAIRE
- Journal :
- BMC Medical Informatics and Decision Making
- Accession number :
- edsair.doi.dedup.....edd8f8ba22cc73c69311a01bb946c9ab