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Ethical Issues in Health Research With Novel Online Sources
- Source :
- American Journal of Public Health. 102:2225-2230
- Publication Year :
- 2012
- Publisher :
- American Public Health Association, 2012.
-
Abstract
- Health-related research is increasingly drawing on novel sources of online data, such as crowdsourced information about disease outbreaks, consumer-supplied information provided to health or wellness Web sites, Internet search queries about personal health, and social network postings that identify health behaviors. We offer examples of online sources and their uses, identify ethical and policy issues they generate, and formulate key questions for future discussion and investigation. Further work in this area will require cross-disciplinary collaboration to develop ethics and policy guidance for the ethical use of these novel data sources in health-related research.
- Subjects :
- Biomedical Research
Computer science
MEDLINE
Public policy
Public Policy
610 Medicine & health
computer.software_genre
Online Systems
Health informatics
Health Information Systems
Humans
Cooperative Behavior
Internet
Ethical issues
Social network
business.industry
Public Health, Environmental and Occupational Health
2739 Public Health, Environmental and Occupational Health
Data science
Work (electrical)
Public Health Ethics
10222 Institute of Biomedical Ethics and History of Medicine
Key (cryptography)
The Internet
Data mining
InformationSystems_MISCELLANEOUS
business
computer
Subjects
Details
- ISSN :
- 15410048 and 00900036
- Volume :
- 102
- Database :
- OpenAIRE
- Journal :
- American Journal of Public Health
- Accession number :
- edsair.doi.dedup.....f1a27eb6a35d91ff68aa4f3204d4c5a3