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Does self-administration of a quality of life index for inflammatory bowel disease change the results?
Does self-administration of a quality of life index for inflammatory bowel disease change the results?
- Source :
- Journal of Clinical Epidemiology. 49:1177-1185
- Publication Year :
- 1996
- Publisher :
- Elsevier BV, 1996.
-
Abstract
- We assessed the effect of self-administration of a disease-specific health-related quality of life instrument, the Inflammatory Bowel Disease Questionnaire (IBDQ), on score results. Patients were assessed at two visits in two tertiary centers. "Experienced" patients (N = 31) with Crohn's disease had previously completed the IBDQ several times while "novices" (N = 37) with Crohn's disease or ulcerative colitis had no prior exposure to the IBDQ. At each visit a self-administered IBDQ followed by a nurse-administered IBDQ (score range, 1-7; absolute score range, 32-224) and disease activity were assessed. At visit 1, the mean rates of discrepant responses between nurse and self-administered scores were 24 +/- 15% in experienced patients and 34 +/- 17% in novice patients (p = 0.018), which fell to 21 +/- 16 and 23 +/- 10%, respectively, by visit 2 (p = NS). However, discrepancy rates were not significantly different between novice and experienced patients when adjusted by center. Discrepancies occurred randomly in all 32 IBDQ items. Eighty percent of all discrepant responses differed by only one grade of a seven-point Likert scale. Baseline self-administered scores for all patients were 4.80 +/- 1.24 (absolute score, 153.0 +/- 39.9). Mean score differences at each visit (nurse minus self) were very small, ranging from 0.029 to 0.136, and would not be considered clinically important. Intraclass correlation coefficients between the nurse and self-administered IBDQ and the four dimensional scores wereor = 0.97 by visit 2, indicating excellent concordance and minimal observer error. Mean changes in score over time were of comparable magnitude for both self (0.320 +/- 0.819) and nurse (0.260 +/- 0.831) assessments. We conclude that the IBDQ may be reliably used as a self-administered instrument in clinical trials.
- Subjects :
- Adult
Male
Crohn's disease
medicine.medical_specialty
Psychometrics
Epidemiology
business.industry
Intraclass correlation
Concordance
Reproducibility of Results
Inflammatory Bowel Diseases
medicine.disease
Inflammatory bowel disease
Ulcerative colitis
Quality of life
Surveys and Questionnaires
Quality of Life
Physical therapy
Feasibility Studies
Humans
Medicine
Female
business
Self-administration
Subjects
Details
- ISSN :
- 08954356
- Volume :
- 49
- Database :
- OpenAIRE
- Journal :
- Journal of Clinical Epidemiology
- Accession number :
- edsair.doi.dedup.....f2d12b4dc5741cf5e27b131fbc542d50
- Full Text :
- https://doi.org/10.1016/0895-4356(96)00136-9