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Family quality of life among families with a child who has a severe neurodevelopmental disability: Impact of family and child socio-demographic factors
- Source :
- Research in Developmental Disabilities. :95-106
- Publication Year :
- 2016
- Publisher :
- Elsevier BV, 2016.
-
Abstract
- We aimed to examine family quality of life (FQOL) of Northern Israeli families having a child with a severe neurodevelopmental disability and its relation to socio-demographics. The cohort included caregivers of 70 children ages (mean ± standard deviation) 5.36 ± 3.53 years. Families were two-parent (85.7%), lived in the periphery (67.1%) and included Jews (60%), Muslims (18.6%), Druze (14.3%) and Christians (7.1%). Religiosity included: secular (38.6%), traditional (31.4%), religious (30%). Children's diagnosis included autistic spectrum disorder (41.4%), intellectual disability (21.4%), cerebral palsy (17.1%), genetic syndromes (17.1%) and sensorineural hearing loss (2.9%). Degree of support (1-minimal,5-greatest) required by the child was 3.67 ± 1.28 for physical and 3.49 ± 1.36 for communication. Primary caregivers completed the FQOL Survey. Domain scores were highest for family relations and lowest for financial well-being. Dimension scores were highest for importance and lowest for opportunities. Overall FQOL approximated average. Jewish families and residents of a major urban area reported higher and more religious families reported lower overall FQOL. Regression analysis found ethnicity contributing to overall FQOL and domain scores with residence contributing to support from services. Ethnicity and child dependence contributed to dimension scores. Northern Israeli families having a child with a severe neurodevelopmental disability report average FQOL scores. However, family and child dependence characteristics affect FQOL scores. Professionals working with these families should consider FQOL information when making recommendations.
- Subjects :
- Male
030506 rehabilitation
medicine.medical_specialty
Autism Spectrum Disorder
Hearing Loss, Sensorineural
Ethnic group
Cerebral palsy
Religiosity
03 medical and health sciences
Quality of life
Intellectual Disability
Intellectual disability
Developmental and Educational Psychology
medicine
Humans
Family
0501 psychology and cognitive sciences
Israel
Child
Psychiatry
business.industry
Cerebral Palsy
05 social sciences
Genetic Diseases, Inborn
medicine.disease
Religion
Clinical Psychology
Caregivers
Neurodevelopmental Disorders
Autism spectrum disorder
Child, Preschool
Cohort
Quality of Life
Regression Analysis
Female
Residence
0305 other medical science
business
050104 developmental & child psychology
Demography
Subjects
Details
- ISSN :
- 08914222
- Database :
- OpenAIRE
- Journal :
- Research in Developmental Disabilities
- Accession number :
- edsair.doi.dedup.....f3f99f3c3d1d583a35c80483a8f38b05