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EUSTAR biobanking: recommendations for the collection, storage and distribution of biospecimens in scleroderma research
- Source :
- Annals of the rheumatic diseases. 70(7)
- Publication Year :
- 2011
-
Abstract
- The European League Against Rheumatism Scleroderma Trials and Research Group (EUSTAR) has established an online database with clinical data of currently more than 8200 patients with systemic sclerosis (SSc). In addition to clinical research, EUSTAR fosters biomolecular studies to develop novel biomarkers and therapies for SSc. High-quality biospecimens are the basis for successful biomolecular studies. The EUSTAR biobanking group has therefore developed recommendations to standardise the collection, storage and distribution of SSc biospecimens at EUSTAR centres. These recommendations consider the scientific challenges associated with biomolecular research in SSc and the organisational requirements of EUSTAR. They were approved by the EUSTAR executive committee as well as the EUSTAR board. Once they become effective, these recommendations will be the basis for international EUSTAR studies with large numbers of SSc biospecimens. These recommendations might also be followed by other SSc consortia to enable exchange of biosamples between different SSc initiatives and might serve as a template for biobanking initiatives in other rheumatic diseases.
- Subjects :
- Pathology
medicine.medical_specialty
Safety Management
Quality Assurance, Health Care
2745 Rheumatology
Immunology
610 Medicine & health
Transportation
Tissue Banks
General Biochemistry, Genetics and Molecular Biology
Executive committee
Specimen Handling
03 medical and health sciences
0302 clinical medicine
Rheumatology
Clinical Protocols
Medizinische Fakultät
1300 General Biochemistry, Genetics and Molecular Biology
medicine
Immunology and Allergy
Humans
ddc:610
skin and connective tissue diseases
Intensive care medicine
030304 developmental biology
030203 arthritis & rheumatology
0303 health sciences
2403 Immunology
Scleroderma, Systemic
integumentary system
business.industry
Online database
10051 Rheumatology Clinic and Institute of Physical Medicine
Biobank
3. Good health
10076 Center for Integrative Human Physiology
2723 Immunology and Allergy
570 Life sciences
biology
Tissue Preservation
business
Subjects
Details
- ISSN :
- 14682060
- Volume :
- 70
- Issue :
- 7
- Database :
- OpenAIRE
- Journal :
- Annals of the rheumatic diseases
- Accession number :
- edsair.doi.dedup.....f41cdd83eb95aaf3d1f655fc1fa8c3f7