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Optimism despite profound uncertainty: school and social relationships in adolescents with single ventricle heart disease
- Source :
- Cardiol Young
- Publication Year :
- 2020
-
Abstract
- Background:Survivors of single ventricle heart disease must cope with the physical, neurodevelopmental, and psychosocial sequelae of their cardiac disease, which may also affect academic achievement and social relationships. The purpose of this study was to qualitatively examine the experiences of school and social relationships in adolescents with single ventricle heart disease.Methods:A descriptive phenomenological methodology was employed, utilising semi-structured interviews. Demographic and clinical characteristics were obtained via chart review.Results:Fourteen adolescents (aged 14 to 19 years) with single ventricle heart disease participated. Interviews ranged from 25 to 80 minutes in duration. Four themes emerged from the interviews, including “Don’t assume”: Pervasive ableism; “The elephant in the room”: Uncertain future; “Everyone finds something to pick on”: Bullying at school; “They know what I have been through”: Social support. The overall essence generated from the data was “optimism despite profound uncertainty.”Conclusions:Adolescents with single ventricle heart disease identified physical limitations and school challenges in the face of an uncertain health-related future. Despite physical and psychosocial limitations, most remained optimistic for the future and found activities that were congruent with their abilities. These experiences reflect “optimism despite profound uncertainty.”
- Subjects :
- Heart disease
Adolescent
Heart Diseases
media_common.quotation_subject
Academic achievement
Disease
Ableism
030204 cardiovascular system & hematology
Article
03 medical and health sciences
Social support
0302 clinical medicine
Optimism
030225 pediatrics
medicine
Humans
Interpersonal Relations
media_common
Schools
business.industry
Uncertainty
Social Support
General Medicine
medicine.disease
Pediatrics, Perinatology and Child Health
Cardiology and Cardiovascular Medicine
business
Psychosocial
Clinical psychology
Qualitative research
Subjects
Details
- ISSN :
- 14671107 and 10479511
- Volume :
- 31
- Issue :
- 2
- Database :
- OpenAIRE
- Journal :
- Cardiology in the young
- Accession number :
- edsair.doi.dedup.....f8d14631ba8a1ed25f8a091334ad07c2