WHY AREN’T PEOPLE WITH YOUNG ONSET DEMENTIA AND THEIR CAREGIVERS USING FORMAL SERVICES?

Despite reporting high levels of burden, people with young onset dementia (YOD) and their caregivers underuse formal services. Whether barriers to use are similar to those for older people are unknown. The aim of this mixed-methods study was to assess both patient/caregiver-related and service-specific/contextual barriers to service use in YOD, and establish recommendations for service design.