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Development of a self-management intervention for stroke survivors with aphasia using co-production and behaviour change theory: An outline of methods and processes
- Source :
- PLoS ONE, Vol 16, Iss 11, p e0259103 (2021), PLoS ONE
- Publication Year :
- 2021
- Publisher :
- Public Library of Science (PLoS), 2021.
-
Abstract
- Background Self-management is a promising approach to improve quality of life after stroke. However, evidence for the appropriateness and effectiveness of self-management for stroke survivors with aphasia is limited. This article reports on the process used to develop a supported self-management intervention for stroke survivors with aphasia (SSWA) using co-production and behaviour change theory. Preparatory research included systematic reviews, and qualitative interviews and focus groups with SSWA, family members and speech and language therapists (SLTs). Materials and methods We conducted six, 2 hour long intervention development workshops with key stakeholders. The workshops were informed by principles of co-production and the intervention development process outlined by the Behaviour Change Wheel (BCW). We also incorporated the findings of our preparatory research within workshops. Each workshop included an introduction, 1–2 co-production tasks and time for feedback at the end of the session. Data were analysed on an ongoing basis so that findings could be used to feed in to subsequent workshops and intervention development. Results Workshop participants (n = 12) included; SSWA (n = 5), family members (n = 3) and SLTs (n = 4). Together, participants engaged with accessible and participatory co-production tasks which aligned with the BCW framework. Participants engaged in discussion to define self-management in behavioural terms (behavioural diagnosis) and to identify what needed to change to support self-management. Participant’s co-produced solutions for supporting self-management and discussed options to implement these in practice. Prototype materials were generated by the research team and evaluated by participants. Intervention functions and behaviour change techniques (BCTs) were mapped to the solutions generated by participants by the research team, after the final workshop. A supported self-management intervention for SSWA was developed which will be delivered by SLTs through community stroke services. Conclusions This paper reports the process we used to integrate co-production work with behaviour change theory to develop a complex self-management intervention. This is of relevance for researchers looking to harness the strengths of co-production methods and theory in intervention design. Future research will feasibility test the supported self-management intervention developed. This paper provides transparency to our intervention development process which will help others to better interpret the findings of our feasibility work.
- Subjects :
- Male
Speech-Language Pathology
Applied psychology
Social Sciences
Laryngology
Sociology
Behavior Therapy
Medicine and Health Sciences
Psychology
Survivors
Program Development
Language
Multidisciplinary
Self-management
Social Communication
Middle Aged
Research Assessment
Test (assessment)
Stroke
Systematic review
Caregivers
Engineering and Technology
Medicine
Female
Workshops
medicine.symptom
Research Article
Adult
Systematic Reviews
Process (engineering)
Science
Speech Therapy
Research and Analysis Methods
Education
Quality of life (healthcare)
Intervention (counseling)
Aphasia
medicine
Humans
Prototypes
Speech
Behavior
Self-Management
Cognitive Psychology
Biology and Life Sciences
Linguistics
R1
Focus group
Communications
Technology Development
Otorhinolaryngology
Cognitive Science
Neuroscience
Subjects
Details
- ISSN :
- 19326203
- Volume :
- 16
- Database :
- OpenAIRE
- Journal :
- PLOS ONE
- Accession number :
- edsair.doi.dedup.....fb2c032a687dbd4359aa769fce652b95