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Psychosocial aspects of the disease in children with leukemia

Authors :
Runje, Simona
Miholić, Damir
Martinec, Renata
Katušić, Ana
Publication Year :
2022

Abstract

U dječjoj dobi maligna oboljenja ubrajaju se kao drugi vodeći uzrok smrti kod djece u starosti do 15 godina, odmah nakon nesreća. Najčešći oblici malignih bolesti u dječjoj dobi su akutna limfoblastična leukemija, tumori mozga, limfomi i sarkomi mekih tkiva i kostiju. Leukemija je vrsta malignog oboljenja karakterizirana nekontroliranim bujanjem maligno alteriranih i nepotpuno diferenciranih leukocita u koštanoj srži, slezeni, limfnim čvorovima i drugim organima. Unutar godine dana od leukemije oboli negdje oko trideset i sto tisuća djece u dobi do četrnaest godina. Najčešća skupina koja obolijeva je ona od 2. do 7. godine, u većini slučajeva oko 4. godine života. Na kvalitetu života oboljelih od leukemije ne utječu samo simptomi bolesti, nego i nuspojave liječenja, koje je dugotrajno i iscrpljujuće. Onkološka rehabilitacija brine se za postizanje maksimalnog funkcioniranja u svim područjima života oboljele osobe (fizička, mentalna, socijalna, duhovna i profesionalna) unutar ograničenja uzrokovanih bolešću i postupcima liječenja, što je u velikom broju slučajeva kod djece i odraslih postupak koji dovodi do zamora, gubljenja volje za borbom i odustajanjem. U takvim slučajevima psihoedukacijski oblici savjetovanja kao i različiti terapijski programi potpore mogu umanjiti negativne stavove i poimanje bolesti te ojačati pozitivne mehanizme obrane u oboljelog djeteta, a samim time i kod roditelja oboljelog djeteta. Komponenta psihosocijalne terapije onkoloških pacijenata, a posebno djece, u današnje vrijeme je postala ravnopravna svim ostalim vrstama terapije uključene u ozdravljenje pacijenta. Kroz rad je naglašeno kakva je kvaliteta života oboljele djece i roditelja oboljelog djeteta i kakve su roditeljske strategije suočavanja s bolešću djeteta.<br />In childhood, malignant diseases are considered to be the second leading cause of death in children under the age of 15, immediately after accidents. The most common forms of malignant diseases in childhood are acute lymphoblastic leukemia, brain tumors, lymphomas and soft tissue and bone sarcomas. Leukemia is a type of malignant disease characterized by uncontrolled proliferation of malignantly altered and incompletely differentiated leukocytes in the bone marrow, spleen, lymph nodes and other organs. Within a year, between 30,000 and 100,000 children under the age of 14 develop leukemia. The most common group that gets sick is the one from 2 to 7 years, in most cases around 4 years of age. The quality of life of leukemia patients is affected not only by the symptoms of the disease, but also by the side effects of treatment, which is long-lasting and exhausting. Oncology rehabilitation takes care of achieving maximum functioning in all areas of the patient's life (physical, mental, social, spiritual and professional) within the limitations caused by the disease and treatment procedures, which in many cases in children and adults is a procedure that leads to fatigue, loss the will to fight and give up. In such cases, psychoeducational forms of counseling as well as various therapeutic support programs can reduce negative attitudes and perceptions of the disease and strengthen the positive defense mechanisms in the sick child, and thus in the parents of the sick child. The psychosocial component of the therapy of oncology patients, and especially children, is generally recognized and unavoidable in the world today. The paper emphasizes the quality of life of sick children and parents of sick children and what are the parental strategies for dealing with the child's illness.

Details

Language :
Croatian
Database :
OpenAIRE
Accession number :
edsair.od......4130..4f317e33e1650606604714f644b58f1a