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Highlighting the value of Alzheimer’s disease-focused registries: lessons learned from cancer surveillance

Authors :
Margaret C. Miller
Rana Bayakly
Bernard G. Schreurs
Kimberly J. Flicker
Swann Arp Adams
Lucy A. Ingram
James W. Hardin
Matthew Lohman
Marvella E. Ford
Quentin McCollum
Audrey McCrary-Quarles
Oluwole Ariyo
Sue E. Levkoff
Daniela B. Friedman
Source :
Frontiers in Aging, Vol 4 (2023)
Publication Year :
2023
Publisher :
Frontiers Media S.A., 2023.

Abstract

Like cancer, Alzheimer’s disease and related dementias (ADRD) comprise a global health burden that can benefit tremendously from the power of disease registry data. With an aging population, the incidence, treatment, and mortality from ADRD is increasing and changing rapidly. In the same way that current cancer registries work toward prevention and control, so do ADRD registries. ADRD registries maintain a comprehensive and accurate registry of ADRD within their state, provide disease prevalence estimates to enable better planning for social and medical services, identify differences in disease prevalence among demographic groups, help those who care for individuals with ADRD, and foster research into risk factors for ADRD. ADRD registries offer a unique opportunity to conduct high-impact, scientifically rigorous research efficiently. As research on and development of ADRD treatments continue to be a priority, such registries can be powerful tools for conducting observational studies of the disease. This perspectives piece examines how established cancer registries can inform ADRD registries’ impact on public health surveillance, research, and intervention, and inform and engage policymakers.

Details

Language :
English
ISSN :
26736217
Volume :
4
Database :
Directory of Open Access Journals
Journal :
Frontiers in Aging
Publication Type :
Academic Journal
Accession number :
edsdoj.1693b9e5ad364cc9a54b0b12e1c87653
Document Type :
article
Full Text :
https://doi.org/10.3389/fragi.2023.1179275