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Adapting an Adolescent and Young Adult Program Housed in a Quaternary Cancer Centre to a Regional Cancer Centre: Creating Equitable Access to Developmentally Tailored Support

Authors :
Marlie Smith
Simone Kurup
Kaviya Devaraja
Shaayini Shanawaz
Lorrie Reynolds
Jill Ross
Andrea Bezjak
Abha A. Gupta
Alisha Kassam
Source :
Current Oncology, Vol 31, Iss 3, Pp 1266-1277 (2024)
Publication Year :
2024
Publisher :
MDPI AG, 2024.

Abstract

Adolescents and young adults (AYAs) with cancer, representing those between 15 and 39 years of age, face distinctive challenges balancing their life stage with the physical, emotional, and social impacts of a cancer diagnosis. These challenges include fertility concerns, disruptions to educational and occupational pursuits, issues related to body image and sexual health, and the need for age-appropriate psychosocial support within their communities. The Princess Margaret Cancer Centre (PM), a quaternary care center, established a specialized AYA program in 2014, offering holistic and developmentally tailored psychosocial support and currently, efforts are underway to expand this to other regions in the province to address the need for equitable access. The establishment process involves securing funding, conducting an environmental scan, identifying service gaps, developing clinical pathways, and implementing AYA supportive care. An accessible AYA program should also consider social determinants of health, social location, intersectionality, and an interdisciplinary health approach in understanding health inequities in AYA oncology care. This paper describes the processes implemented and challenges faced in creating a community-based AYA program beyond major resource-rich cities and efforts to address intersectionality.

Details

Language :
English
ISSN :
17187729 and 11980052
Volume :
31
Issue :
3
Database :
Directory of Open Access Journals
Journal :
Current Oncology
Publication Type :
Academic Journal
Accession number :
edsdoj.313785a2f9a943c59f51f418144271ab
Document Type :
article
Full Text :
https://doi.org/10.3390/curroncol31030095