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'It's that invisible illness': Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment

Authors :
Catherine L. Auriemma
Jasleen Minhas
Randi Blue
Tess Lapatra
Steven M. Kawut
Katherine R. Courtright
Source :
Pulmonary Circulation, Vol 13, Iss 2, Pp n/a-n/a (2023)
Publication Year :
2023
Publisher :
Wiley, 2023.

Abstract

Abstract Knowledge of what outcomes are most meaningful to pulmonary arterial hypertension (PAH) stakeholders is limited. In this qualitative study, patients and clinicians endorsed personalized physical activity, symptoms, and psychosocial well‐being as key outcomes to assess PAH treatment response, yet few are routinely measured in PAH clinical trials.

Details

Language :
English
ISSN :
20458940
Volume :
13
Issue :
2
Database :
Directory of Open Access Journals
Journal :
Pulmonary Circulation
Publication Type :
Academic Journal
Accession number :
edsdoj.3c3142356f3a45d58ca8431b4c18810a
Document Type :
article
Full Text :
https://doi.org/10.1002/pul2.12236