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Mixed-methods single-arm repeated measures study evaluating the feasibility of a web-based intervention to support family carers of persons with dementia in long-term care facilities

Mixed-methods single-arm repeated measures study evaluating the feasibility of a web-based intervention to support family carers of persons with dementia in long-term care facilities

Authors :
Wendy Duggleby
Kathya Jovel Ruiz
Jenny Ploeg
Carrie McAiney
Shelley Peacock
Cheryl Nekolaichuk
Jayna Holroyd-Leduc
Sunita Ghosh
Kevin Brazil
Jennifer Swindle
Dorothy Forbes
Sandra Woodhead Lyons
Jasneet Parmar
Sharon Kaasalainen
Laura Cottrell
Jillian Paragg
Source :
Pilot and Feasibility Studies, Vol 4, Iss 1, Pp 1-12 (2018)
Publication Year :
2018
Publisher :
BMC, 2018.

Abstract

Abstract Background Following institutionalization of a relative with Alzheimer disease and related dementias (ADRD), family carers continue to provide care. They must learn to negotiate with staff and navigate the system all of which can affect their mental health. A web-based intervention, My Tools 4 Care-In Care (MT4C-In Care) was developed by the research team to aid carers through the transitions experienced when their relative/friend with ADRD resides in a long-term care (LTC) facility. The purpose of this study was to evaluate MT4C-In Care for feasibility, acceptability, ease of use, and satisfaction, along with its potential to help decrease carer’s feelings of grief and improve their hope, general self-efficacy, and health-related quality of life. Methods The study was a mixed-methods single-arm repeated measures feasibility study. Participants accessed MT4C-In Care over a 2-month period. Data were collected at baseline and 1 and 2 months. Using a checklist, participants evaluated MT4C-In Care for ease of use, feasibility, acceptability, and satisfaction. Measures were also used to assess the effectiveness of the MT4C-In Care in improving hope (Herth Hope Index), general self-efficacy (GSES), loss and grief (NDRGEI), and health-related quality of life (SF12v2) of participants. Qualitative data were collected at 2 months and informed quantitative findings. Results The majority of the 37 participants were female (65%; 24/37), married (73%; 27/37), and had a mean age of 63.24 years (SD = 11.68). Participants reported that MT4C-In Care was easy to use, feasible, and acceptable. Repeated measures ANOVA identified a statistically significant increase over time in participants hope scores (p = 0.03) and a significant decrease in grief (

Details

Language :
English
ISSN :
20555784
Volume :
4
Issue :
1
Database :
Directory of Open Access Journals
Journal :
Pilot and Feasibility Studies
Publication Type :
Academic Journal
Accession number :
edsdoj.4e7f02e6af3b4dd8937f7c469adefc54
Document Type :
article
Full Text :
https://doi.org/10.1186/s40814-018-0356-7