Back to Search Start Over

Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Access Equity and Future Care Pathways

Authors :
Gacser Zita
Skouw-Rasmussen Naja
Bourke Steven
ten Ham Renske
Hosszú Dalma
Source :
The Journal of Haemophilia Practice, Vol 10, Iss 1, Pp 155-163 (2023)
Publication Year :
2023
Publisher :
Sciendo, 2023.

Abstract

The second series of workshops for the EHC Think Tank Workstreams on Access Equity and Future Care Pathways involved working towards consensus on addressing challenges to progress around achieving equitable access to care and shaping rare disease care pathways that meet patient needs while remaining practicable and affordable to healthcare providers. This report summarises workshop outcomes from these two workstreams, in which stakeholder participants identified a ‘guiding star’ determining the direction of ongoing focus, defined achievable ‘near star’ milestones, and enablers and constraints to achieving these.

Details

Language :
English
ISSN :
20553390
Volume :
10
Issue :
1
Database :
Directory of Open Access Journals
Journal :
The Journal of Haemophilia Practice
Publication Type :
Academic Journal
Accession number :
edsdoj.7fbdcca50ae845ef99850e806dd786ec
Document Type :
article
Full Text :
https://doi.org/10.2478/jhp-2023-0023