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Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Access Equity and Future Care Pathways
- Source :
- The Journal of Haemophilia Practice, Vol 10, Iss 1, Pp 155-163 (2023)
- Publication Year :
- 2023
- Publisher :
- Sciendo, 2023.
-
Abstract
- The second series of workshops for the EHC Think Tank Workstreams on Access Equity and Future Care Pathways involved working towards consensus on addressing challenges to progress around achieving equitable access to care and shaping rare disease care pathways that meet patient needs while remaining practicable and affordable to healthcare providers. This report summarises workshop outcomes from these two workstreams, in which stakeholder participants identified a ‘guiding star’ determining the direction of ongoing focus, defined achievable ‘near star’ milestones, and enablers and constraints to achieving these.
Details
- Language :
- English
- ISSN :
- 20553390
- Volume :
- 10
- Issue :
- 1
- Database :
- Directory of Open Access Journals
- Journal :
- The Journal of Haemophilia Practice
- Publication Type :
- Academic Journal
- Accession number :
- edsdoj.7fbdcca50ae845ef99850e806dd786ec
- Document Type :
- article
- Full Text :
- https://doi.org/10.2478/jhp-2023-0023