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'Idealists and capitalists': ownership attitudes and preferences in genomic citizen science

Authors :
Christi J. Guerrini
Jorge L. Contreras
Whitney Bash Brooks
Isabel Canfield
Meredith Trejo
Amy L. McGuire
Source :
New Genetics and Society, Vol 41, Iss 2, Pp 74-95 (2022)
Publication Year :
2022
Publisher :
Taylor & Francis Group, 2022.

Abstract

The perspectives of genomic citizen scientists on ownership of research outputs are not well understood, yet they are useful for identifying alignment of participant expectations and project practices and can help guide efforts to develop innovative tools and strategies for managing ownership claims. Here, we report findings from 52 interviews conducted in 2018 and 2019 to understand genomic citizen science stakeholders’ conceptualizations of, experiences with, and preferences for ownership of research outputs. Interviewees identified four approaches for recognizing genomic citizen scientists’ ownership and related credit interests in research outputs: shared governance via commons models; fractional ownership of benefits; full and creative attribution; and offensive and defensive patenting. Interviewees also agreed that the model selected by any project should at least maximize access to research outputs and, as appropriate and to the extent possible, broadly distribute rights of control and entitlements to research benefits.

Details

Language :
English
ISSN :
14636778 and 14699915
Volume :
41
Issue :
2
Database :
Directory of Open Access Journals
Journal :
New Genetics and Society
Publication Type :
Academic Journal
Accession number :
edsdoj.8e61be94618a47c2af2856fd74fa28f5
Document Type :
article
Full Text :
https://doi.org/10.1080/14636778.2022.2063827