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Design and implementation of multicenter pediatric and congenital studies with cardiovascular magnetic resonance:Big data in smaller bodies

Authors :
DiLorenzo, Michael P.
Lee, Simon
Rathod, Rahul H.
Raimondi, Francesca
Farooqi, Kanwal M.
Jain, Supriya S.
Samyn, Margaret M.
Johnson, Tiffanie R.
Olivieri, Laura J.
Fogel, Mark A.
Lai, Wyman W.
Renella, Pierangelo
Powell, Andrew J.
Buddhe, Sujatha
Stafford, Caitlin
Johnson, Jason N.
Helbing, Willem A.
Pushparajah, Kuberan
Voges, Inga
Muthurangu, Vivek
Miles, Kimberley G.
Greil, Gerald
McMahon, Colin J.
Slesnick, Timothy C.
Fonseca, Brian M.
Morris, Shaine A.
Soslow, Jonathan H.
Grosse-Wortmann, Lars
Beroukhim, Rebecca S.
Grotenhuis, Heynric B.
DiLorenzo, Michael P.
Lee, Simon
Rathod, Rahul H.
Raimondi, Francesca
Farooqi, Kanwal M.
Jain, Supriya S.
Samyn, Margaret M.
Johnson, Tiffanie R.
Olivieri, Laura J.
Fogel, Mark A.
Lai, Wyman W.
Renella, Pierangelo
Powell, Andrew J.
Buddhe, Sujatha
Stafford, Caitlin
Johnson, Jason N.
Helbing, Willem A.
Pushparajah, Kuberan
Voges, Inga
Muthurangu, Vivek
Miles, Kimberley G.
Greil, Gerald
McMahon, Colin J.
Slesnick, Timothy C.
Fonseca, Brian M.
Morris, Shaine A.
Soslow, Jonathan H.
Grosse-Wortmann, Lars
Beroukhim, Rebecca S.
Grotenhuis, Heynric B.
Source :
DiLorenzo , M P , Lee , S , Rathod , R H , Raimondi , F , Farooqi , K M , Jain , S S , Samyn , M M , Johnson , T R , Olivieri , L J , Fogel , M A , Lai , W W , Renella , P , Powell , A J , Buddhe , S , Stafford , C , Johnson , J N , Helbing , W A , Pushparajah , K , Voges , I , Muthurangu , V , Miles , K G , Greil , G , McMahon , C J , Slesnick , T C , Fonseca , B M , Morris , S A , Soslow , J H , Grosse-Wortmann , L , Beroukhim , R S & Grotenhuis , H B 2024 , ' Design and implementation of multicenter pediatric and congenital studies with cardiovascular magnetic resonance : Big data in smaller bodies ' , Journal of Cardiovascular Magnetic Resonance , vol. 26 , no. 1 , 101041 .
Publication Year :
2024

Abstract

Cardiovascular magnetic resonance (CMR) has become the reference standard for quantitative and qualitative assessment of ventricular function, blood flow, and myocardial tissue characterization. There is a preponderance of large CMR studies and registries in adults; However, similarly powered studies are lacking for the pediatric and congenital heart disease (PCHD) population. To date, most CMR studies in children are limited to small single or multicenter studies, thereby limiting the conclusions that can be drawn. Within the PCHD CMR community, a collaborative effort has been successfully employed to recognize knowledge gaps with the aim to embolden the development and initiation of high-quality, large-scale multicenter research. In this publication, we highlight the underlying challenges and provide a practical guide toward the development of larger, multicenter initiatives focusing on PCHD populations, which can serve as a model for future multicenter efforts.

Details

Database :
OAIster
Journal :
DiLorenzo , M P , Lee , S , Rathod , R H , Raimondi , F , Farooqi , K M , Jain , S S , Samyn , M M , Johnson , T R , Olivieri , L J , Fogel , M A , Lai , W W , Renella , P , Powell , A J , Buddhe , S , Stafford , C , Johnson , J N , Helbing , W A , Pushparajah , K , Voges , I , Muthurangu , V , Miles , K G , Greil , G , McMahon , C J , Slesnick , T C , Fonseca , B M , Morris , S A , Soslow , J H , Grosse-Wortmann , L , Beroukhim , R S & Grotenhuis , H B 2024 , ' Design and implementation of multicenter pediatric and congenital studies with cardiovascular magnetic resonance : Big data in smaller bodies ' , Journal of Cardiovascular Magnetic Resonance , vol. 26 , no. 1 , 101041 .
Notes :
application/pdf, English
Publication Type :
Electronic Resource
Accession number :
edsoai.on1430692056
Document Type :
Electronic Resource