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Autism Comes to the Pediatric Hospital: Perspectives of Child Life Specialists

Authors :
Priscilla Burnham Riosa
Amanpreet Randhawa
Barbara Muskat
Source :
Journal of Autism and Developmental Disorders. 2024 54(1):312-325.
Publication Year :
2024

Abstract

The hospital setting may be especially difficult for pediatric patients on the autism spectrum and their families compared to those not on the spectrum. Child life specialists are healthcare professionals specifically trained to support parents and their children and help prepare them for hospital procedures. Because of this specialized skill set, these professionals likely have a wealth of expertise to share relevant to caring for autistic patients. This study aimed to understand 21 child life specialists' experiences working with patients on the spectrum. Our findings highlighted the following themes: Parents are the Experts, Proactive and Individualized Care, Disclosure, and Hospital-Wide Suggestions to Improve Patient Care. We discuss the practice implications of these findings on the healthcare experiences of pediatric patients on the spectrum.

Details

Language :
English
ISSN :
0162-3257 and 1573-3432
Volume :
54
Issue :
1
Database :
ERIC
Journal :
Journal of Autism and Developmental Disorders
Publication Type :
Academic Journal
Accession number :
EJ1407432
Document Type :
Journal Articles<br />Reports - Research
Full Text :
https://doi.org/10.1007/s10803-022-05776-9