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Collaboration with Researchers with Intellectual/Developmental Disabilities: An Illustration of Inclusive Research Attributes across Two Projects

Authors :
Jessica M. Kramer
Evan E. Dean
Micah Peace Urquilla
Joan B. Beasley
Brad Linnenkamp
Source :
Inclusion. 2024 12(1):55-74.
Publication Year :
2024

Abstract

Researchers have implemented inclusive research for over 30 years. This article describes how two research projects collaborated with researchers with disabilities and aligns the description with four attributes of inclusive research developed by a consensus of international experts with and without disabilities. The first project, the Person Experiences Interview Survey (PEIS) Workgroup, reviewed and revised items for a self-report survey of mental health service experiences. The second project describes the peer-led implementation of the Self-Determined Career Design Model (SDCDM) intervention. Four factors facilitated or were barriers to the projects' alignment with inclusive research attributes. First, relationships enhanced capacity to engage in meaningful ways. Second, balance between consistency and adaptability promoted engagement. Third, long-term capacity was enabled by ongoing engagement and peer mentorship. Fourth, time and funds impacted inclusive implementation. Engaging researchers with disabilities meaningfully enhanced the research process and products.

Details

Language :
English
ISSN :
2326-6988
Volume :
12
Issue :
1
Database :
ERIC
Journal :
Inclusion
Publication Type :
Academic Journal
Accession number :
EJ1422453
Document Type :
Journal Articles<br />Reports - Descriptive
Full Text :
https://doi.org/10.1352/2326-6988-12.1.55