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'My Autism Is Linked with Everything': At the Crossroads of Autism and Diabetes

Authors :
Ritwika Vinayagam
Christopher Tanner
David Harley
Shamshad Karatela
Katie Brooker
Source :
Journal of Autism and Developmental Disorders. 2024 54(8):3122-3132.
Publication Year :
2024

Abstract

Autistic adults experience stark health disparities and difficulties accessing health care. Their realities of managing complex health conditions are unknown. Our research explored the experience of Autistic adults self-managing diabetes. Interviews with Autistic adults with diabetes and their support people were thematically analysed to identify three key themes. The Autistic experience influenced diabetes self-management, including autism-unique challenges and strengths. Participants prioritised avoiding Autistic burnout over diabetes self-management; mitigating the psychosocial pressures of neurotypical systems took precedence. Health professionals often separated autism and diabetes subsequently overlooking key factors impacting diabetes self-management. To better meet the needs of Autistic adults, diabetes care and health management more broadly should be considered within the context of autism, including supports for self-management during Autistic burnout.

Details

Language :
English
ISSN :
0162-3257 and 1573-3432
Volume :
54
Issue :
8
Database :
ERIC
Journal :
Journal of Autism and Developmental Disorders
Publication Type :
Academic Journal
Accession number :
EJ1434196
Document Type :
Journal Articles<br />Reports - Research
Full Text :
https://doi.org/10.1007/s10803-023-06033-3