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9 results on '"Nordenstrom A"'

1. The European Registries for Rare Endocrine Conditions (EuRRECa): the use of a core registry for collecting common data elements and clinician and patient reported outcomes

Author

Zurita Ana Luisa Priego, Salma Rashid Ali, Jillian Bryce, Martine Cools, Thomas Danne, Olaf M Dekkers, Olaf Hiort, Harshini Katugampola, Agnes Linglart, Irene Netchine, Anna Nordenstrom, Attila Patocs, Alberto M Pereira, Luca Persani, Nicole Reisch, Arelene Smyth, Zdenek Sumnik, Domenica Taruscio, Edward Visser, Natasha Appelman-Dijkstra, and Faisal Ahmed

Published
2022
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2. European Registries for Rare Endocrine Conditions (EuRRECa): results from the e-Reporting platform for rare conditions (e-REC)

Author

Ali Salma Rashid, Jillian Bryce, Priego Zurita Ana Luisa, Martine Cools, Thomas Danne, Harshini Katugampola, Olaf M. Dekkers, Olaf Hiort, Agnes Linglart, Irene Netchine, Anna Nordenstrom, Attila Patocs, Pereira Alberto M, Luca Persani, Nicole Reisch, Arelene Smyth, Zdenek Sumnik, Domenica Taruscio, Edward Visser, Natasha Appelman-Dijkstra, and Faisal Ahmed

Published
2022
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3. The European Registries for Rare Endocrine Conditions (EuRRECa): the use of a core registry for collecting common data elements and clinician and patient reported outcomes

Author

Priego, Zurita Ana Luisa, primary, Ali, Salma Rashid, additional, Bryce, Jillian, additional, Cools, Martine, additional, Danne, Thomas, additional, Dekkers, Olaf M, additional, Hiort, Olaf, additional, Katugampola, Harshini, additional, Linglart, Agnes, additional, Netchine, Irene, additional, Nordenstrom, Anna, additional, Patocs, Attila, additional, Pereira, Alberto M, additional, Persani, Luca, additional, Reisch, Nicole, additional, Smyth, Arelene, additional, Sumnik, Zdenek, additional, Taruscio, Domenica, additional, Visser, Edward, additional, Appelman-Dijkstra, Natasha, additional, and Ahmed, Faisal, additional

Published
2022
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4. European Registries for Rare Endocrine Conditions (EuRRECa): results from the e-Reporting platform for rare conditions (e-REC)

Author

Rashid, Ali Salma, primary, Bryce, Jillian, additional, Luisa, Priego Zurita Ana, additional, Cools, Martine, additional, Danne, Thomas, additional, Katugampola, Harshini, additional, Dekkers, Olaf M., additional, Hiort, Olaf, additional, Linglart, Agnes, additional, Netchine, Irene, additional, Nordenstrom, Anna, additional, Patocs, Attila, additional, M, Pereira Alberto, additional, Persani, Luca, additional, Reisch, Nicole, additional, Smyth, Arelene, additional, Sumnik, Zdenek, additional, Taruscio, Domenica, additional, Visser, Edward, additional, Appelman-Dijkstra, Natasha, additional, and Ahmed, Faisal, additional

Published
2022
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5. Analysis of therapy monitoring in the International Congenital Adrenal Hyperplasia Registry

Author

Neil Lawrence, Irina Bacila, Jeremy Dawson, Jillian Bryce, den Akker Erica van, Sanchez Bachega Tania Aparecida Sartori, Federico Baronio, Niels Holtum Birkebaek, Walter Bonfig, Hedi Claahsen, Costa Eduardo Correa, Liat Devries, Heba Elsedfy, Ayla Guven, Sabine Hannema, Violeta Iotova, der Kamp Hetty J van, Leon Maria Clemente, Corina Raducanu Lichiardopol, Tatjana Milenkovic, Uta Neumann, Ana Nordenstrom, Sukran Poyrazoglu, Ursina Probst-Scheidegger, Sanctis Luisa De, Ajay Thankamony, Ana Vieites, Zehra Yavas, Faisal Ahmed, and Nils Krone

Published
2021
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6. Analysis of therapy monitoring in the International Congenital Adrenal Hyperplasia Registry

Author

Lawrence, Neil, primary, Bacila, Irina, additional, Dawson, Jeremy, additional, Bryce, Jillian, additional, van, den Akker Erica, additional, Sartori, Sanchez Bachega Tania Aparecida, additional, Baronio, Federico, additional, Birkebaek, Niels Holtum, additional, Bonfig, Walter, additional, Claahsen, Hedi, additional, Correa, Costa Eduardo, additional, Devries, Liat, additional, Elsedfy, Heba, additional, Guven, Ayla, additional, Hannema, Sabine, additional, Iotova, Violeta, additional, van, der Kamp Hetty J, additional, Clemente, Leon Maria, additional, Lichiardopol, Corina Raducanu, additional, Milenkovic, Tatjana, additional, Neumann, Uta, additional, Nordenstrom, Ana, additional, Poyrazoglu, Sukran, additional, Probst-Scheidegger, Ursina, additional, De, Sanctis Luisa, additional, Thankamony, Ajay, additional, Vieites, Ana, additional, Yavas, Zehra, additional, Ahmed, Faisal, additional, and Krone, Nils, additional

Published
2021
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7. Gonadectomy for adults with DSD conditions at risk of hypogonadism in the international disorders of sex development registry

Author

Herald, Angela Lucas, primary, Kyriakou, Andreas, additional, Bryce, Jillian, additional, Rodie, Martina, additional, Acerini, Carlo, additional, Arlt, Wiebke, additional, Balsamo, Antonio, additional, Baronico, Federico, additional, Bertelloni, Silvano, additional, Brooke, Antonia, additional, van, der Grinten Hedi Claahsen, additional, Cools, Martine, additional, Darendeliler, Feyza, additional, Davies, Justin H, additional, Desloovere, An, additional, Ellaithi, Mona, additional, Fica, Simona, additional, Gawlik, Aneta, additional, Guran, Tulay, additional, Hannema, Sabine, additional, Hiort, Olaf, additional, Holterhus, Paul-Martin, additional, Iotova, Violeta, additional, Jennane, Farida, additional, Lachlan, Katherine, additional, Li, Dejun, additional, Lisa, Lidka, additional, Mazen, Inas, additional, Mladenov, Wilchelm, additional, Mohnike, Klaus, additional, Nedelea, Lavnia, additional, Niedziela, Marek, additional, Nordenstrom, Anna, additional, Poyrazoglu, Sukran, additional, Rey, Rodolfo, additional, Tadokoro-Cuccaro, Rieko, additional, Weintrob, Naomi, additional, and Ahmed, Syed Faisal, additional

Published
2018
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8. Awareness & participation in rare disease registries within the European reference network on rare endocrine conditions (Endo-ERN)

Author

Ali, Salma R, primary, Bryce, Jillian, additional, Cools, Martine, additional, Korbonits, Marta, additional, Beun, Johan G, additional, Taruscio, Domenica, additional, Beuschlein, Felix, additional, Danne, Thomas, additional, Dattani, Mehul, additional, Dekkers, Olaf, additional, Linglart, Agnes, additional, Netchine, Irene, additional, Nordenstrom, Anna, additional, Patocs, Attila, additional, Persani, Luca, additional, Smyth, Arlene, additional, Sumnik, Zdenek, additional, Edward, Visser W, additional, Hiort, Olaf, additional, Pereira, Alberto M, additional, and Faisal, Ahmed S, additional

Published
2018
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9. dsd-LIFE: clinical European outcome study of disorders of sex development

Author

Kohler, Birgit, primary, Arlt, Wiebke, additional, Bouvattier, Claire, additional, Chatelain, Pierre, additional, Grinten, Hedi Claahsen van der, additional, Cohen-Kettenis, Peggy, additional, Nordenstrom, Anna, additional, Pienkowski, Catherine, additional, Richter-Unruh, Annette, additional, Slowikowska-Hilczer, Jolanta, additional, Szarras-Capnik, Maria, additional, Reisch, Nicole, additional, Sultan, Charles, additional, Thyen, Ute, additional, and Wiesemann, Claudia, additional

Published
2014
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