1. Cambios y necesidades durante el diagnóstico y tratamiento de cáncer colorrectal: un estudio fenomenológico.
- Author
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Acevedo-Ibarra, Jessica N., Juárez-García, Dehisy M., Espinoza-Velazco, Absalón, Buenaventura-Cisneros, Sergio, and Vázquez-Reyes, José L.
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PATIENT experience , *COLORECTAL cancer , *PHENOMENOLOGY , *SOCIAL adjustment , *CANCER patient care , *SADNESS - Abstract
In Mexico, colorectal cancer ranks first in mortality and is considered the third most frequent type of cancer. Colorectal cancer patients face challenges in adjusting to their daily lives and activities as symptoms increase significantly from onset, during, and after treatment. Physical and emotional problems resulting from cancer diagnosis and treatment generate support needs throughout the cancer trajectory, which may be associated with decreased quality of life. Currently in Mexico there are few qualitative studies on the needs of patients with colorectal cancer. A phenomenological analysis helps us study experiences as they occur and how people experience them, and could help us understand patients' reactions, feelings, and experiences to changes in cancer diagnosis and treatment, and thus way to provide specific care to the needs they present. The study aimed to investigate the experiences faced by colorectal cancer patients during the diagnosis and treatment process and to identify the support needs required. Qualitative research was carried out with a phenomenological approach which tries to describe the experience without trying to give causal explanations. From this model, people are considered as active, thinking, and responsible for their actions, it considers that people are naturally good and that they seek to achieve positive goals. This model considers that the person cannot be understood unless he perceives the world through her eyes. Semi-structured interviews were conducted with 16 patients diagnosed with colorectal cancer. The interviews lasted 30 to 50 minutes, were audio recorded and transcribed verbatim by a collaborator. The transcripts were analyzed using interpretive phenomenological analysis involving content analysis by categories. The study was approved by the Local Committee for Research and Ethics in Health Research of the Hospital de Alta Especialidad (R-2016-1901-89), which provides tertiary care to patients diagnosed with cancer in which patients receive the cancer treatment of surgery, chemotherapy and radiotherapy. The results show two main themes that emerged in the analysis: changes and support needs during diagnosis and treatment. The changes experienced by patients during diagnosis and treatment are mainly emotional, such as sadness and fear, for which they used different coping strategies such as thinking about their family and spiritual aspects; social and family as adjustments in their activities of daily living, physical related to surgery, stoma and chemotherapy as treatment received, which were accompanied by psychological discomfort. A restructuring of the cancer process was also noted as a positive experience. Other support needs were the lack of information on psychological and family care and on the effects of diagnosis and treatment. The study has limitations, the design was descriptive and exploratory, so it is recommended to carry out a follow-up that allows reviewing the experiences of the patients over time and during the trajectory of the cancer. It is also important to explore the experiences of family members and professionals to obtain a broader view of the phenomenon of the cancer process in its different actors. However, the study is considered valuable due to the information obtained directly from the patient's experience, showing that the changes they experience are emotional, social, family, coping and physical in relation to surgery, stoma and chemotherapy, as well as, the restructuring of the cancer process. Unsatisfied support needs are also shown, such as the lack of information on psychological and family care and on diagnosis, treatment and its side effects. Psychosocial interventions are suggested according to the specific changes that occur in patients, the unmet support needs and the different moments of the disease. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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