1. Rare cancers are not so rare: the rare cancer burden in Europe
- Author
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Gatta, Gemma, Van Der Zwan, Jan Maarten, Casali, Paolo G., Siesling, Sabine, Dei Tos, Angelo Paolo, Kunkler, Ian, Otter, Renã©e, Licitra, Lisa, Mallone, Sandra, Tavilla, Andrea, Trama, Annalisa, Capocaccia, Riccardo, Hackl, M., Van Eycken, E., Schrijvers, D., Sundseth, H., Geissler, Jan, Marreaud, S., Audisio, R., Mã¤gi, M., Hedelin, G., Velten, M., Launoy, G., Guizard, A. V., Bouvier, A. M., Maynadiã©, M., Mercier, M., Buemi, A., Tretarre, B., Colonna, M., Moliniã©, F., Lacour, B., Schvartz, C., Ganry, O., Grosclaude, P., Benhamou, E., Grossgoupil, M., Coquard, I. R., Droz, J. P., Baconnier, S., Holleczek, B., Wartenberg, M., Hehlmann, R., Tryggvadottir, L., Deady, S., Bellã¹, F., Ferretti, S., Serraino, D., Vercelli, M., Vitarelli, S., Cirilli, C., Fusco, M., Traina, A., Michiara, M., Giacomin, A., Pastore, G., Tumino, R., Mangone, L., Falcini, F., Senatore, G., Budroni, M., Piffer, S., Crocetti, E., La Rosa, F., Contiero, P., Zambon, P., Berrino, F., Casali, P. G., Gatta, G., Gronchi, A., Licitra, L., Sowe, S., Trama, A., Capocaccia, R., De Angelis, R., Mallone, S., Tavilla, A., Dei Tos, A. P., Brandes, A. A., England, K., Langmark, F., Rachtan, J., Mezyk, R., Zwierko, M., Bielska-lasota, M., Slowinski, J., Miranda, A., Safaei Diba, Ch, Primic-zakelj, M., Mateos, A., Izarzugaza, I., Marcos-gragera, R., Sã¡nchez, M. J., Navarro, C., Ardanaz, Eva, Galceran, J., Virizuela-echaburu, J. A., Martinez-garcia, C., Melchor, J. M., Cervantes, A., Adolfsson, Jan, Lambe, M., Mã¶ller, T. R., Ringborg, Ulrik, Jundt, G., Usel, M., Frick, H., Ess, S. M., Bordoni, A., Konzelmann, I., Dehler, S., Lutz, J. M., Visser, O., Otter, R., Siesling, S., Van Der Zwan, J. M., Coebergh, J. W. W., Schouten, H., Greenberg, D. C., Wilkinson, J., Roche, M., Verne, J., Meechan, D., Lawrence, G., Coleman, M. P., Mackay, J., Gavin, A., Brewster, D. H., Kunkler, I., Steward, J., Evaluative Epidemiology Unit, Fondazione IRCCS, Comprehensive Cancer Centre North East, University of Twente [Netherlands], Cancer Research UK Edinburgh Centre [Edinburgh, UK], University of Edinburgh-MRC Institute of Genetics and Molecular Medicine [Edinburgh] (IGMM), University of Edinburgh-Medical Research Council-Medical Research Council, Integraal Kankercentrum Noord, National Centre for Epidemiology, Surveillance and Health Promotion, Istituto Superiore di Sanita [Rome], Fondazione IRCCS Istituto Nazionale dei Tumori, Faculty of Behavioural, Management and Social Sciences, and Usel, Massimo
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Male ,Pediatrics ,Cancer Research ,Survival ,Rare cancers ,Europe ,MESH: Registries ,0302 clinical medicine ,MESH: Aged, 80 and over ,Rare Diseases/epidemiology ,Neoplasms ,MESH: Child ,Prevalence ,Cancer registries ,MESH: Neoplasms ,Registries ,MESH: Incidence ,Child ,media_common ,Aged, 80 and over ,MESH: Aged ,0303 health sciences ,education.field_of_study ,MESH: Middle Aged ,Relative survival ,Incidence (epidemiology) ,Incidence ,MESH: Infant, Newborn ,IR-78337 ,Middle Aged ,MESH: Infant ,3. Good health ,Oncology ,MESH: Young Adult ,030220 oncology & carcinogenesis ,Child, Preschool ,MESH: Survival Analysis ,Female ,Adult ,MESH: Rare Diseases ,medicine.medical_specialty ,Adolescent ,Population ,[SDV.CAN]Life Sciences [q-bio]/Cancer ,Rare cancers, Cancer registries, Incidence, Prevalence, Survival ,Europe/epidemiology ,NO ,03 medical and health sciences ,Young Adult ,Rare Diseases ,medicine ,media_common.cataloged_instance ,Humans ,European union ,education ,Survival analysis ,MESH: Prevalence ,030304 developmental biology ,ddc:613 ,Aged ,MESH: Adolescent ,MESH: Humans ,business.industry ,Public health ,MESH: Child, Preschool ,Infant, Newborn ,Cancer ,Infant ,MESH: Adult ,medicine.disease ,Survival Analysis ,MESH: Male ,Cancer registry ,MESH: Europe ,business ,Neoplasms/epidemiology ,MESH: Female - Abstract
International audience; PURPOSE: Epidemiologic information on rare cancers is scarce. The project Surveillance of Rare Cancers in Europe (RARECARE) provides estimates of the incidence, prevalence and survival of rare cancers in Europe based on a new and comprehensive list of these diseases. MATERIALS AND METHODS: RARECARE analysed population-based cancer registry (CR) data on European patients diagnosed from 1988 to 2002, with vital status information available up to 31st December 2003 (latest date for which most CRs had verified data). The mean population covered was about 162,000,000. Cancer incidence and survival rates for 1995-2002 and prevalence at 1st January 2003 were estimated. RESULTS: Based on the RARECARE definition (incidence
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- 2011