1. Understanding the role of Facebook to support women with endometriosis: A Malaysian perspective.
- Author
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Wilson, Sharon, Mogan, Surita, and Kaur, Kiran
- Subjects
DIAGNOSIS of endometriosis ,ENDOMETRIOSIS ,SOCIAL support ,THEMATIC analysis ,SOCIAL media ,DATA analysis software ,DESCRIPTIVE statistics - Abstract
Aims: To examine the pertinent issues discussed by endometriosis patients in Malaysia on MyEndosis Facebook group as an alternative platform for online support. Methods: Using thematic analysis based on three frameworks, 120 posted messages and comments were examined from MyEndosis Facebook group—a support group for women with endometriosis from January to July 2014. Results: Results showed the issues discussed were (a) personal struggles, (b) medication and treatment, (c) alternative medication, (d) side effects, and (e) medication recommended by doctors. While using this social medium, users found (a) emotional support, (b) esteem support, (c) information support, (d) network support, and (e) tangible assistance in their engagement with others. Conclusion: The analysis suggested that users' interactions were structured around information, emotion, and community building, which many doctors and nurses were not aware of. The group was shaped as a social network where peer users share social support, cultivate companionship, and exert social influence. SUMMARY STATEMENT: What is already known about the topic? There are no studies of Malaysian women with endometriosis seeking alternative support online and limited knowledge of their use of Facebook as an alternative platform for discussion on non‐communicable diseases.MyEndosis has created a pleasant and non‐judgemental environment that encourages well‐being and ease for patients to discuss and manage their endometriosis related issues. What this paper adds? Social media such as Facebook provide an integral platform for patients with endometriosis in Malaysia where the topic is still a taboo subject of discussion.This study provides insight into the usage of Facebook by patients as a platform for discussion and social support.Online patient interaction connects women with a similar condition and helps build a compassionate, courteous, and respectful community. The implications of this paper: There are many opportunities to improve understanding and research on how patients with endometriosis cope.Offering doctors and nurses an effective communication platform like Facebook will allow them to accurately assess patients' struggles with endometriosis, identify coping mechanisms, and develop appropriate discussion strategies. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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