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In this paper we introduce Ashworth's lifeworld fractions as a methodological framework for inclusive research with autistic people 'with profound learning disabilities'. We first define the fractions and then evaluate their potential for enabling research within the 'third space' of inclusive research. Fundamental to the third space is the inclusion of the social and support circles of people with profound learning disabilities within research. Using the example of a recent study we illustrate how the fractions are a useful enabler of this. We conclude by suggesting that a key value of the fractions is in how they take the research collective beyond the elements of experience that most obviously confront them to consider its full breadth and effects. We argue too that the fractions support the management of the collation and analysis of the copious amounts of data that are generated through qualitative research. We conclude by offering a new and critical dimension to the fractions through presenting them as a means through which those involved in the third space – autistic people, their social and support circles, and researchers – can come to more emic understandings of lived experience. [ABSTRACT FROM AUTHOR]

School is a site of critical importance in the development of self, yet little is known about the ways in which school affects how autistic pupils come to describe and evaluate themselves. Educators are centrally positioned to support autistic pupils with development of an empowered sense of self. This article reports on a study which captured how staff in four English schools understood development of sense of self for autistic pupils. We found that educators perceived autistic pupils as being affected by both a particular biology and their social encounters with others. Our participants identified the school environment as a significant influencer on sense of self development but seemed uncertain how to make this more enabling. We suggest that one response could be to develop a framework of activism engagement in schools that might enable autistic pupils to work collectively with other autistic people towards a positive sense of self. [ABSTRACT FROM AUTHOR]

This article presents a personal account of what socially just and inclusive education means to me, an academic in a UK university. I identify the critical elements as being the recognition of the right to claim and the duty to protect the humanity and value of all members of society. Inclusion and social justice are about belonging in the world unfettered by the disablements of poverty, illness and prejudice. They are dependent upon interdependence, community and collaborative enterprise. Here I call upon all students in education to take a stand, to work together to end the marginalisation and exclusion of the poor and the abandoned and to disavow control through privilege. Only together by and for each other can we be free. [ABSTRACT FROM PUBLISHER]

In September 2012, the process changed in England for how parents (and carers) can appeal against their child’s exclusion from school. This paper is one of the first accounts of how parents experience the new system. Using data from a research study with a range of stakeholders in the appeals process, this paper focuses on the accounts of the 21 parents interviewed. Thematic analysis was utilised to identify the factors that motivate parents to make an appeal, the barriers and enablers to doing so, and the physical, emotional, and financial costs that result from engagement with the process. The findings reveal that the costs are extremely heavy for parents with very limited rewards. The process is experienced as inequitable with a bias towards schools and many of these parents call for the provision of experienced legal support to make it a more balanced system. In spite of the challenges involved the need to call schools to account remains a strong motivation to appeal but this was not the preferred option for parents. Instead they call for schools to develop more inclusive and enabling environments that rely more on understanding the needs of pupils and their families than on exclusion from school. [ABSTRACT FROM PUBLISHER]

Academic conferences embody a set of prescribed regulative practices. This article considers some of the tensions that arise when these normative expectations are disrupted by unruly bodies. As scholars of disability studies we lament the lack of understanding within an ableist society that is resistant to change. In this article, however, I invite us to explore closer to home to consider how unruly bodies might enable reflection on how disability is created even within our own ‘expert’ environments. It is argued here that new ways of conceptualising and accommodating behaviour at conference are required if these are to exemplify the inclusive and welcoming spaces desired by us all. [ABSTRACT FROM AUTHOR]

In this paper, we explore the participation of disabled children, young people and their families in leisure activities. Drawing on the accounts of disabled children, young people, and their parents and careers, we reflect on the leisure spaces that they access and record some of their experiences within them. Using the concept of ‘ableism’ [Campbell, F. K. 2009.Contours of Ableism. Basingstoke: Palgrave Macmillan] we interrogate the data gathered as part of a two-year project funded by the Economic and Social Research Council Does Every Child Matter, post-Blair? The interconnections of disabled childhoods' (RES-062-23-1138). By doing so we identify some of the inherent and embedded discriminations in favour of those children and young people who are perceived to be ‘able’ that simultaneously work to exclude the young ‘kinds of people’ [Hacking, I. 2007. “Kinds of People: Moving Targets.”Proceedings of the British Academy151: 285–318] categorised as ‘disabled’ and their families from leisure facilities and opportunities. We suggest that currently, disabled families and children occupy a mix of ‘mainstream’, ‘segregated’ and ‘separate’ leisure spaces. We discuss the impact of occupying these spaces and ask what the experiences of accessing leisure by disabled children, young people and their families reveal about the processes and practices of ableism. [ABSTRACT FROM PUBLISHER]

The experiences of disabled people suggest that ableism insidiously and invasively impacts upon the practice of counselling and related therapies. This article critiques a particular account of psychotherapy with a child with the label of autism to illustrate how ableism can disrupt the process of empathy and negate the therapeutic experience. In so doing the article highlights the inherent difficulties in traversing different epistemic positions to make sufficiently informed readings of counternormative expressions of being. General principles of counselling practice are then proposed to support practitioners with providing effective therapy for all clients. [ABSTRACT FROM PUBLISHER]

The value of, and need for, parent-professional partnerships is an unchallenged mantra within policy relating to 'special educational needs'. In spite of this, partnerships continue to be experienced as problematic by both parents and professionals. This paper brings together the different perspectives of two disability researchers: one a parent of a disabled child while the other was a teacher for 20 years of children with the label autism. The paper deconstructs the concept of partnership and then, drawing on the expertise of parents, suggests how enabling and empowering parent-professional relationships might be achieved. [ABSTRACT FROM AUTHOR]

Disability research is conducted within a highly politicised 'hotbed' of competing paradigms and principles. New researchers, who want to work within the social model, are soon faced with complex and challenging methodological and philosophical dilemmas. The social model advocates research agendas that are focused on the emancipation and empowerment of disabled people but, in reality, these are rarely achieved. To be successful researchers need to engage with innovative and creative methodologies and to share their experiences of these within environments that welcome challenge and debate. This paper focuses on Lifeworld and assesses its value as a tool for emancipatory research. Using examples from a study with parents, whose children were in the process of being labelled as having autism, the paper illustrates how the principles that 'underpin' the methodology offered a supportive framework for a novice researcher. [ABSTRACT FROM AUTHOR]

This article recounts the experience of the author while traveling to the U.S. to observe the approach of world-renowned teams on the process of diagnosing autism spectrum disorders (ASD). The author believed that a diagnosis of ASD leads to a better understanding of 'the problem' and acts as a signpost to appropriate mechanisms of support. The process observed by the author was well defined and clearly articulated. The practitioners emphasize the significance to identify for each child a matrix of ability which identifies strengths, difficulties, and learning style.