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The article focuses on legality of metadata collection in the U.S. under the U.S PATRIOT Act. Topics include the legal justification for the investigation of Americans' private telephone records, the data collection program implemented by the U.S. National Security Administration under U.S. President Barack Obama, and if such practices are a violation of privacy.

Multimode data collection has emerged as a common approach for conducting household surveys in the United States. A number of different data collection schemes have been investigated, with an emphasis on collecting as many respondents by the Web prior to going to paper data collection to reduce costs. Despite this, little research has been conducted on the approaches to weighting data from multimode surveys. The typical approach assumes that all respondents should be treated the same regardless of mode even though it is well known that the response patterns by mode vary substantially. We examine an adaptive mode adjustment to address these differences and propose an imbalance measure to help determine the adjustment factor using ideas from responsive design. We then compare the effects of the alternative weighting method in two recent sequential mixed-mode surveys and show it appears to reduce bias while only slightly increasing variances of the estimates. [ABSTRACT FROM AUTHOR]

Background: International guidelines recommend preoperative multidisciplinary team (MDT) assessment for high-risk surgical patients. Preoperative MDT meetings can help to improve surgical care, but there is little evidence on whether they improve patient outcomes. Methods: This paper aims to share our experience of MDT meetings for high-risk surgical patients to underline their added value to the current standard of care. An observational study of a retrospective cohort of preoperative high-risk MDT meetings of a tertiary referral hospital between January 2015 and December 2020. For 249 patients the outcomes preoperative data, MDT decisions, and patient outcomes were collected from electronic health records. Main results: A total of 249 patients were discussed at high-risk MDT meetings. Most of the patients (97%) were assessed as having an American Society of Anesthesiology score ≥ 3, and 219 (88%) had a European Society of Cardiology and European Society of Anaesthesiology risk score of intermediate or high. After MDT assessment, 154 (62%) were directly approved for surgery, and 39 (16%) were considered ineligible for surgery. The remaining 56 (23%) patients underwent additional assessments before reconsideration at a high-risk MDT meeting. The main reason for patients being discussed at the high-risk MDT meeting was to assess the risk-benefit ratio of surgery. Ultimately, 184 (74%) patients underwent surgery. Of the operated patients, 122 (66%) did not have a major complication in the postoperative period, and 149 patients (81%) were alive after one year. Conclusions: This cohort study shows the vulnerability and complexity of high-risk patients but also shows that the use of an MDT assessment contributes too improved peri- and postoperative treatment strategies in high-risk patients. Most patients underwent surgery after careful risk assessment and, if deemed necessary, preoperative and perioperative treatment optimization to reduce their risk. [ABSTRACT FROM AUTHOR]

Background: Social annotation (SA) allows users to collaboratively highlight important texts, make comments and discuss with each other on the same online document. This would not only accelerate and deepen learners' cognitive understanding of information, but also help build a sense of rapport, which is critical especially because of the worldwide shift from face‐to‐face class to remote education as a response to the COVID‐19 pandemic. Objective: To provide a systematic review of empirical SA studies, so that current development as well as issues in SA practices and research are identified. Methods: A total of 32 studies were identified and bibliometrical, instructional, and methodological analysis were conducted. Results and Conclusions: The United States has published the most SA research and technology‐related journals are most receptive of SA research; one‐shot quantitative designs with a sample size between 30 and 100 have been adopted most often; there is a lack of theoretical support for SA studies; higher education settings have been more frequently researched than other educational levels; SA technological features and activities have focused more on student uses and outcomes than on those of instructors; self‐designed technologies were more preferred than commercial ones; both cognitive and affective outcomes were emphasized and nearly all studies reported positive findings. Implications: Future SA studies may conduct blended designs with larger sample sizes that is grounded upon solid theoretical frameworks; more customized and affordable SA technologies that support both students and teachers should be developed. Learning analytics and emotional design may be capitalized more to meet the demand of remote education during the pandemic. Lay Description: What is Already Known About this Topic: The behaviour of annotating often helps learners obtain deeper understanding and retain longer memorization of learning content.Social annotation, which capitalizes the advantage of digital tools and collaboration, allows learners to annotate on the same document, and view each other's annotations to ignite discussion and maximize their individual learning.Social annotation has been widely used in educational settings amongst all ages of learners. What this Paper Adds: Provides a systematic review of empirical social annotation studies between 2000 and 2020, highlighting the analysis of bibliometrics, research designs, and learning outcomes and effects.Proposes a conceptual framework (the WIRE model) to guide the design and assessment of social annotation activities.Identifies challenges and gaps in existing research designs as well as instructional practices. Implications for Practice: Instructors can use the results to locate desirable social annotation technologies and design effective activities.Researchers may utilize the trend and research gaps to design future social annotation studies.Programmers can use WIRE to make an initial assessment of social annotation tool designs, and develop more customized products for formal education. [ABSTRACT FROM AUTHOR]

The coronavirus pandemic led to a severe economic shock in the United States. This paper uses a unique survey data collected early on in the pandemic to measure economic deprivation among individuals. The Federal Reserve Board fielded a Survey of Household Economics and Decision-making (SHED) in April 2020. This survey is used to compile data on four indicators of economic deprivation, namely: i) Overall financial condition, ii) Loss of employment, iii) Reduction in income and iv) Inability to pay bills in full. Data on these indicators is compiled for each individual and is used in a novel way to construct a set of multidimensional deprivation indices. These indices measure the overlap of deprivations experienced by an individual. Results show that almost 25 percent of the respondents faced hardships in at least two of the four indicators. More than 13 percent of adults reported their inability to pay monthly bills and struggled to make ends meet financially. One in four respondents had lower income compared to income from previous month. The economic shock affected Hispanics in a more profound way. More than 37 percent Hispanics reported hardship in two or more indicators and 8 percent reported hardship in all four indicators. Higher proportion of young adults and those without a college degree suffered multiple hardships. The paper highlights the plight of Americans during the early months of the economic crisis set in motion amid the coronavirus pandemic and sheds light on how economic disparities deepened along racial/ethnic lines. [ABSTRACT FROM AUTHOR]

This paper describes a document analysis of 24 metadata application profiles (MAPs) used by academic libraries in the United States. The MAPs under study were collected from (a) the DLF AIG Metadata Application Profile Clearinghouse and (b) a Google search of.edu domains. Data collection and analysis took place between December 2020 and February 2021. While most of the MAPs under review provided metadata guidelines for digital collections, a small number were intended for institutional repositories or research data management. The study's findings reveal MAP features and content, usage of controlled vocabularies and standards, and other characteristics pertaining to MAP document scope, contents and format in this context. In addition to its discussion of the literature, the paper's findings should help metadata specialists and others involved in digital collection management gain insights useful in the development or revision of their own metadata documentation. Further, these findings offer a current glimpse of metadata application practices among U.S. academic libraries generally. [ABSTRACT FROM AUTHOR]

Despite total shoulder arthroplasty (TSA) and reverse TSA (rTSA) being fundamentally different procedures, and indicated in different pathologies (rTSA for rotator cuff deficiency [RCD] and proximal humeral fractures [PHFx] and anatomic TSA [aTSA] for glenohumeral osteoarthritis [GHOA]), they have the same Current Procedural Terminology (CPT) code (23472). This paper's aim is to investigate differences in operative time and work-related value units (wRVUs) per hour among these pathologies, and ultimately determine if there is a need to assign separate CPTs for aTSA and rTSA. A retrospective cohort of data from the American College of Surgeons–National Surgical Quality Improvement Program was collected, all patients who underwent aTSA or rTSA (CPT: 23472) between the years of 2006 and 2019 for diagnoses of GHOA, RCD, and PHFx were included. Data collected included patient age, body mass index, operative time, and wRVUs per hour. Compared to GHOA (reference group), the average operative time for the RCD cohort was 12.242 minutes shorter (P <.001), while the wRVUs were higher by 1.627 (P <.001). The average operative time for rTSAs in the PHFx cohort were 17.615 minutes longer (P <.001), while the wRVUs were lower by 2.205 (P <.001). The average operative time for rTSAs for both RCDs and PHFx were longer than that for aTSAs for GHOA. Additionally, wRVUs were lower for rTSAs for RCD and PHFx compared to aTSAs for GHOA. This elucidates inconsistency in reimbursement structure for the procedures, which should be revisited. [ABSTRACT FROM AUTHOR]

Introduction Since 2001, the Health Resources and Services Administration’s Maternal and Child Health Bureau (HRSA MCHB) has funded and directed the National Survey of Children’s Health (NSCH) and the National Survey of Children with Special Health Care Needs (NS-CSHCN), unique sources of national and state-level data on child health and health care. Between 2012 and 2015, HRSA MCHB redesigned the surveys, combining content into a single survey, and shifting from a periodic interviewer-assisted telephone survey to an annual self-administered web/paper-based survey utilizing an address-based sampling frame. Methods The U.S. Census Bureau fielded the redesigned NSCH using a random sample of addresses drawn from the Census Master Address File, supplemented with a unique administrative flag to identify households most likely to include children. Data were collected June 2016-February 2017 using a multi-mode design, encouraging web-based responses while allowing for paper mail-in responses. A parent/caregiver knowledgeable about the child’s health completed an age-appropriate questionnaire. Experiments on incentives, branding, and contact strategies were conducted. Results Data were released in September 2017. The final sample size was 50,212 children; the overall weighted response rate was 40.7%. Comparison of 2016 estimates to those from previous survey iterations are not appropriate due to sampling and mode changes. Discussion The NSCH remains an invaluable data source for key measures of child health and attendant health care system, family, and community factors. The redesigned survey extended the utility of this resource while seeking a balance between previous strengths and innovations now possible. [ABSTRACT FROM AUTHOR]

Economic data collection from commodities producers in the United States typically consists of revenues and quantities. While the data collected in some sectors such as fisheries are a census of the population, features of the population such as prices, must be calculated. Unit values are widely used as a price measure to impose a single price in place of dispersed ratios of revenue to quantity from individual producers but alternatives exist. In this paper, different linear aggregation procedures are used to calculate price measures, such as ratio-based calculations (e.g., ratio-of-means, mean-of-ratios), or estimation by ordinary least squares. There are non-trivial differences in the prices calculated depending on the procedure. This paper proposes a unified framework, including Bayesian estimation, for considering the tradeoffs inherent in the different methods commonly employed. [ABSTRACT FROM AUTHOR]

Background: Social determinants of health (SDOH) are the non-medical factors that impact health. Although geographical measures of deprivation are used, individual measures of social risk could identify those most at risk and generate more personalised care and targeted referrals to community resources. We know SDOH are important to health care, but it is not yet known whether their collection via the electronic health record (EHR) is acceptable and useful from the patient perspective. Aim: To synthesise relevant literature to explore patient perspectives on integrating information about SDOH into primary care EHRs, and the opportunities and challenges of its implementation in a general practice setting. Design & setting: Systematic review of primary care-based qualitative and mixed-method studies using thematic framework analysis. Method: Key databases were searched for articles reporting patient perspectives of SDOH collection within the primary care EHR. Qualitative and mixed-methods studies written in English were included. A framework analysis was conducted to identify themes. Results: From 14 included studies, the following five main themes were identified: rationale for SDOH screening and the anticipated outcomes; impact of the provider-patient relationship on patient perceptions; data, which included privacy concerns; screening process and referral; and recommendations for future research. Conclusion: Integration of information on SDOH into the EHR appears acceptable to patients. This review has added to the discussion of whether and how to implement SDOH screening and referral programmes into UK primary care systems. [ABSTRACT FROM AUTHOR]

This research aims to determine research trends regarding archivists in Scopus-indexed journals. The research method used is bibliometric analysis, with data collection from the Scopus database, carried out on September 8, 2023, using the keyword "Archivist" from 2013 to 2022 and specifically for final publications with journal type. Data is processed and analyzed using Publish or Perish (PoP) and VOSviewer to display visualization results. The research results concluded that the number of publications regarding archivists in the last ten years was 1241 documents. American Archivist became the most dominant publication source by publishing 94 documents. Poole was the most prolific writer, and the United States was the most contributing country by publishing 439 documents. The document type in articles is the largest, with 1024. Social Science is the subject area most often discussed in archivist topics. The total number of publication citations regarding archivists is 4528. Publication trends based on the appearance of a minimum of ten keywords are divided into five clusters, with the most dominant keywords being "metadata treatment, archives, human, digitization, and librarians." The publication trend seen from the latest publication year discusses "artificial intelligence," which has 5 (five) related links: artificial intelligence-copyright, artificial intelligence-photography, artificial intelligence-automation, artificial intelligence-digitization, and artificial intelligence-metadata. [ABSTRACT FROM AUTHOR]

The fundamental purpose of the decennial Census is an enumeration of the U.S. population at a particular 'Census moment' for the purpose of apportionment. The 'Census moment' for the 2010 Census occurred at 11:59 p.m. on April 1, 2010. This means that, ideally, all persons alive and living in the United States at that moment are included in the Census count, while any person not alive at that moment is excluded. In reality, this goal is challenging to achieve. Since the actual date of data collection often varies widely, it is possible that individuals are included, or excluded, in the count due to this discrepancy between the Census Day and the date of data collection. In this paper, I explore how the Census Bureau addresses this issue specifically when dates of birth after Census Day are encountered. First, I describe the three methods of data collection (Self-administered questionnaires, enumerator-administered questionnaires, and Telephone Questionnaire Assistance/Coverage Follow-Up operator-administered questionnaires), and how dates of birth after Census Day are addressed in each of these methods. Next, I explore related findings from the 2010 Census, including how many dates of birth after Census Day were found in the 2010 Census data, how they were processed according to data collection method, and how this impacted the final Census count. Finally, I discuss the performance of the new procedures related to dates of birth after Census Day that were implemented in the 2010 Census, along with implications for moving forward into future Censuses. [ABSTRACT FROM AUTHOR]

Periodic measurement of the size and behaviors of the Jewish population is of vital importance to Jewish communal planners, both nationally and in communities throughout the United States. Methodological design decisions, such as the choice of a sampling frame, mode of data collection, nonresponse follow-up protocols, and definition of eligibility can have significant impacts on population estimates. This paper demonstrates how two studies, one national and one for the Jewish Federation of Greater Philadelphia used the current state-of-the-art address-based sampling methodology and other methodological improvements to significantly increase coverage and reduce bias in the survey results compared to other methodologies. [ABSTRACT FROM AUTHOR]

Purpose: The SART CORS database is an informative source of IVF clinic-specific linked data that provides cumulative live birth rates from medically assisted reproduction in the United States (US). These data are used to develop best practice guidelines, for research, quality assurance, and post-market surveillance of assisted reproductive technologies. Here, we sought to investigate the key areas of current research focus (higher-order categories), discover gaps or underserved areas of ART research, and examine the potential application and impact of newer ART adjuvants, future data collection, and analysis needs. Methods: We conducted a systematic review (PRISMA guidelines) to quantify unique output metrics of the SART CORS database. Included were SART member reporting clinics: full-length publications from 2004 to 2021 and conference abstracts from 2015 to 2021, the two key timepoints when the SART CORS database underwent transformative shifts in data collection. Results: We found 206 abstracts presented from 2015 to 2021, 189 full-length peer-reviewed publications since 2004, with 654 unique authors listed on these publications. A total of 19 publications have been highly impactful, garnering over 100 citations at the time of writing. Several higher-order categories, such as endometriosis and tubal infertility, have few publications. The conversion of conference abstracts to full-length papers ranged from 15 to 35% from 2015 to 2021. Conclusions: A substantial body of literature has been generated by analyzing the SART CORS database. Full-length publications have increased year over year. Some topic areas, such as endometriosis and tubal infertility, may be underrepresented. Conversion of conference abstracts to full-length publications has been low, indicating that more organizational support may be needed to ensure that research is methodologically sound and researchers supported to reach full publication status. [ABSTRACT FROM AUTHOR]

Each large observational database contains specific data elements. The number of data elements are chosen carefully to cover the essential needs of the database as well as to avoid excessive burden of collection. Frequently, an important study question cannot be answered because one database does not contain some essential data elements. This deficiency may be present because the proposed study is cross-disciplinary, because the study requires more granular information on a specific topic than is practical to collect in a broad-based registry, or because the relevant questions, and hence essential data elements, have changed over time. An obvious way to overcome some such challenges, when one database contains some of the information and another contains the further needed data, is to link different databases. While the prospect of linking databases is appealing, the practicalities of doing so often are daunting. Challenges may be practical (information-technology barriers to crosstalk between the registries), legal, and financial. In the first section of this paper, Dr. Nathanael Heckmann discusses linking large orthopaedic databases, focusing on linking databases with detailed, short-term data to those with longer-term longitudinal data. In the second part of this paper, Nathan Glusenkamp discusses efforts to link the American Joint Replacement Registry (AJRR) to other data sources, an ambition not yet fully realized but one that will bear fruit in the near future. [ABSTRACT FROM AUTHOR]

The growth of the Internet opens new possibilities for web-based data collection in cognitive anthropology. This study examines whether free-list data collected online are comparable to those collected with face to face interviews or with self-administered paper questionnaires. We collected free lists for two cultural domains in the United States: one diffuse (things that mothers do) and one relatively well defined (racial and ethnic groups). We selected a purposive sample of 318 university students and randomly assigned participants to provide free lists for one of these domains using a web-based survey, a face to face interview, or a self-administered paper questionnaire. All three modes identified the same set of salient concepts in each domain. Median list length per respondent varied across modes in response to a standard free-list question and to supplementary probes. For the well-defined domain of “racial and ethnic groups,” supplementary probes widened differences among modes; for the more diffuse domain of “things that mothers do,” probes erased evidence of mode effects. Collecting free lists online is viable but may yield different results depending on the study population and attributes of the cultural domains. [ABSTRACT FROM AUTHOR]

Research has been and will continue to be important to the music therapy profession, as evidenced by the number of studies examining the evolution of research in the field. Despite its seeming importance, no recent studies have investigated the extent to which music therapists find research relevant to practice and very few studies have examined this topic outside of the United States. The purposes of this study were to (a) examine the extent to which music therapists around the world view research as relevant to clinical practice and (b) among those who read research, identify which sections from scientific papers are read. This nonexperimental study involved an online survey of music therapists from 51 countries. Of the 1586 initially responding to the participant invitation, 1272 music therapists completed the survey (a completion rate of 80%). Findings suggest that music therapists find research to be relevant to clinical practice and perceptions differ as a function of educational attainment and occupational role. Results also evidenced similar educational and occupational differences with regard to reading scientific papers. These findings parallel those from earlier studies indicating those with higher educational attainment and working in academic/research-related positions tend to find research more relevant. These findings are important because they suggest there may be a disconnection between the extant research and the end consumer, the clinician. [ABSTRACT FROM PUBLISHER]

Background: Digital health technologies (DHTs) can facilitate the execution of de-centralized trials that can offer opportunities to reduce the burden on participants, collect outcome data in a real-world setting, and potentially make trial populations more diverse and inclusive. However, DHTs can also be a significant source of electronic waste (e-waste). In recognition of the potential health and environmental impact from DHT use in trials, private and public institutions have recently launched initiatives to help measure and manage this e-waste. But in order to develop sound e-waste management policies, it will be necessary to first estimate the current volume of e-waste that results from the use of DHTs in trials. Materials and Methods: A Web Ontology Language (OWL)-compliant ontology of DHTs was created using a list of 500 DHT device names derived from a mixture of public and private sources. The U.S. clinical trials registry, ClinicalTrials.gov, was then queried to identify and classify trials using any of the devices in the ontology. The ClinicalTrials.gov records from this search were then analyzed to characterize the volume and properties of trials using DHTs, as well as estimating the total volume of individual DHT units that have been provisioned (or are planned to be provisioned) for clinical research. Results: Our ontology-driven search identified 2326 unique clinical trials with a reported "actual" enrollment of 200,947 participants and a "planned" enrollment of an additional 4,094,748 participants. The most-used class of DHTs in our ontology was "wearables," (1852 trials), largely driven by the use of smart watches and other wrist-worn sensors (estimated to involve 149,391 provisioned devices). The most-used subtype of DHTs in trials was "subcutaneous" devices (367 trials), driven by the prevalent use and testing of glucose monitors (estimated to involve 17,666 provisioned devices). Conclusion: Thousands of trials, involving hundreds of thousands of devices, have already been completed, and many more trials (potentially involving millions more devices) are planned. Despite the great opportunities that are afforded by DHTs to the clinical trial enterprise, if the industry lacks the ability to track DHT use with sufficient resolution, the result is likely to be a great deal of e-waste. A new ontology of DHTs, combined with rigorous data science methods like those described in this paper, can be used to provide better information across the industry, and in turn, help create a more sustainable and equitable clinical trials enterprise. [ABSTRACT FROM AUTHOR]

Background: While research on trans People of Color's experiences has been increasing in recent years, this intersectional work has often not included a focus on the specificities of multiracial and multiethnic trans experiences. Aims: This study explores shifts in racial identity by multiracial/multiethnic trans people as they transition gender and the ways Whiteness and nationalist ideology shape their racialized gender experiences. Methods: This paper is based on six in-depth, semi-structured interviewswith self-identifiedmultiracial, multiethnic, andmulti-heritage trans people in the USA. Data collection centered participants' experiences of self-identification and interactionswith others (e.g., family, acquaintances, and strangers). Results: As participants transitioned gender and were acknowledged by others in their gender identity, shifts in their embodiment were used by others to ascribe a new racialized gender. This often resulted in participants reflecting on their sense of self and racialized gender identities in new ways. Discussion: Multiracial and multiethnic transgender people's experiences in transitioning race confirm the importance of intersectional analysis, reveal the intersectional fluidity of social categories, explicate how social understandings of one category (e.g., race) influence another category (e.g., gender), demonstrate that the meanings associated with racialized gender are based in relations of power, and show that, in transgender studies particularly, we must attend to the ways that the concept of transition implicates not only gender, but also other categories such as race and nationality. [ABSTRACT FROM AUTHOR]

This paper introduces new tools and strategies to assess the perceived comfort and safety of bicycle travel across a large geographic area. The tools are based on the equation for bicycle level-of-service in a U.S. government manual. The equation requires substantial data that can be time-intensive and expensive to collect for a wide-scale area. For this reason, the paper begins by discussing data-availability issues with a survey that was sent to every city and county in Idaho. Of the 115 responses, no community had all the necessary data and many had very little data. Next, the paper describes a sensitivity analysis that engineers and planners can follow to identify the critical data that should be collected for their community. The sensitivity analysis is described using two case study communities and reveals, among other things, that input-output sensitivity for bicycle level-of-service depends on roadway functional class. The tools and strategies in this paper will save communities time and money when developing plans or prioritizing projects. [ABSTRACT FROM AUTHOR]

This paper explores the relationship between sight distance parameters, crash rates, and operating speeds at low-volume single-lane roundabouts in the United States. The understanding of the interaction of design, operations, and crash performance is a step forward in the development and application of performance-based standards for roundabouts. The specific objective of this paper is to quantify the relationship between crash rates, sight distance parameters, and operating speeds to present an approach to establishing performance-based standards that highway practitioners can adopt in roundabout design. Geometric, traffic, and crash data were collected on 72 approaches to 19 low-volume single-lane roundabouts in six states. The data for these sites were broken into two groups based on the posted speed limit (at and greater than ). In addition, the associations between different sight distance parameters, crash parameters, and operating speed data were investigated. The research findings provided insight into relating the operational and safety effects of sight distance geometry at roundabouts. This research also identified a methodology that provides guidance as to the development of performance-based standards that rely on a better understanding of these relationships. In general, the research findings were consistent with previously conducted studies and indicated that exceeding sight distance thresholds increases the risk of crashes occurring. It was also found that exceeding sight distance thresholds yielded greater speed differentials between the approach and the entry to these roundabouts. The results of this research can advance the state of practice in understanding the relationships of sight distance design attributes, operational characteristics, and safety metrics for low-volume single-lane roundabouts, which is necessary to the creation of performance-based standards. [ABSTRACT FROM AUTHOR]

Purpose Inclusion of members of the target population in research is an increasing priority in the social sciences; however, relatively few studies employ approaches that involve persons with lived experience of the mental health system in mental health services research, particularly in the USA. The purpose of this paper is to describe one such approach, the employment of peer interviewers in the evaluation of a peer respite program.Design/methodology/approach The paper describes how peer interviewers were recruited, hired, trained, and supervised. The authors discuss some benefits and challenges associated with the approach.Findings Peer interviewer benefits and challenges: the shared lived experience between the peer interviewers and study participants contributed to increased comfort and a high response rate overall. The study opened up professional opportunities for peers, but inconsistent work hours were a challenge and resulted in turnover and difficulty filling vacant positions. The lead evaluator and supervisors worked closely with peer interviewers to ensure conflict of interest was mitigated to reduce bias.Originality/value This paper adds to the limited literature describing peer representation in research, outlining one avenue for partnering with peers to align research with the values of the intervention under study without compromising – and perhaps increasing – scientific rigor. The authors expect that even more peer involvement in the oversight, analysis, and interpretation of results would have improved the overall quality of the evaluation. Future efforts should build upon and incorporate the approach alongside more comprehensive efforts to partner with service users. [ABSTRACT FROM AUTHOR]

Naturalization has long been recognized as a crucial step in the full integration of immigrants into US society. Yet until now, sufficient information on the naturalization-eligible has not been available that would allow the federal government, states, localities, and non-governmental service providers to develop targeted strategies on a local level to assist this population to naturalize and to overcome barriers to eligibility. This paper remedies that deficiency by providing detailed estimates on the naturalization-eligible from data collected in the US Census Bureau's American Community Survey (ACS). Naturalization rates have traditionally been calculated by dividing the naturalized or the "naturalization eligible" populations by all foreignborn persons; i.e., the naturalized, legal non-citizens, and undocumented residents. By including the unauthorized in this calculation, naturalization rates have appeared misleadingly low for populations that can naturalize. By contrast, the Center for Migration Studies of New York (CMS) provides "naturalization eligibility" rates, which it calculates by dividing the "naturalization eligible" by the foreign-born population, minus undocumented residents and legal residents who arrived after mid-2008. The paper reports that 8.6 million US residents were eligible to naturalize in 2013. This figure approximates the 8.8 million estimate of the US Department of Homeland Security (DHS). Mexican nationals constitute the largest naturalization-eligible population at 2.7 million, followed by Indian (337,000), Chinese (320,000), Cuban (316,000), and Canadian (313,000) nationals. Fifty countries have 25,000 or more naturalization eligible persons. The large number of legally resident Mexican nationals and this population's high naturalization eligibility rate mean that US states with large Mexican populations have relatively high percentages of legal foreign-born residents who can naturalize. The overall "naturalization eligibility" rate was 31 percent in 2013, including 48 percent for Mexican nationals. Nine of the 25 largest US naturalizationeligible populations by source country have naturalization eligibility rates in excess of 40 percent, including Mexico (48 percent), Canada (45 percent), El Salvador (42 percent), the United Kingdom (41 percent), Guatemala (44 percent), Japan (56 percent), Honduras (48 percent), and Brazil (41 percent). On a state level, California, Texas, New York, and Florida contain roughly five million of the US naturalization-eligible or about 58 percent of the total population. The paper finds that a large number of naturalization-eligible immigrants may have difficulty meeting the naturalization requirements or may need intensive support to do so. This population likely includes substantial percentages of the 2.87 million naturalization-eligible who have lived in the United States for more than 25 years; 1.16 million who do not speak English; 3.0 million with less than a high school education; and the 1.8 million with incomes below the poverty level. On the other hand, high percentages of eligible immigrants would seem to be well-situated to naturalize, including those who have lived in the United States for more than 10 years (78 percent); are age 35 or older (74 percent); are married (64 percent); speak English well, very well, or only English (65 percent); have access to both a computer and the internet (74 percent); earn income above the poverty level (79 percent); and have health insurance (72 percent). [ABSTRACT FROM AUTHOR]

In the United States, increasing access to the internet, the increasing costs of large-scale face-to-face data collections, and the general reluctance of the public to participate in intrusive in-person data collections all mean that new approaches to nationally representative surveys are urgently needed. The COVID-19 pandemic accelerated the need for faster, higher-quality alternatives to face-to-face data collection. These trends place a high priority on the evaluation of innovative web-based data collection methods that are convenient for the U.S. public and yield scientific information of high quality. The web mode is particularly appealing because it is relatively inexpensive, it is logistically flexible to implement, and it affords a high level of privacy and confidentiality when correctly implemented. With this study, we aimed to conduct a methodological evaluation of a sequential mixed-mode web/mail data collection protocol, including modular survey design concepts, which was implemented on a national probability sample in the U.S. in 2020–2021. We implemented randomized experiments to test theoretically-informed hypotheses that 1) the use of mail and increased incentives to follow up with households that did not respond to an invitation to complete a household screening questionnaire online would help to recruit different types of households; and 2) the use of modular survey design, which involves splitting a lengthy self-administered survey up into multiple parts that can be completed at a respondent's convenience, would improve survey completion rates. We find support for the use of mail and increased incentives to follow up with households that have not responded to a web-based screening questionnaire. We did not find support for the use of modular design in this context. Simple descriptive analyses also suggest that attempted telephone reminders may be helpful for the main survey. [ABSTRACT FROM AUTHOR]

While record linkage can expand analyses performable from survey microdata, it also incurs greater risk of privacy-encroaching disclosure. One way to mitigate this risk is to replace some of the information added through linkage with synthetic data elements. This paper describes a case study using the National Hospital Care Survey (NHCS), which collects patient records under a pledge of protecting patient privacy from a sample of U.S. hospitals for statistical analysis purposes. The NHCS data were linked to the National Death Index (NDI) to enhance the survey with mortality information. The added information from NDI linkage enables survival analyses related to hospitalization, but as the death information includes dates of death and detailed causes of death, having it joined with the patient records increases the risk of patient re-identification (albeit only for deceased persons). For this reason, an approach was tested to develop synthetic data that uses models from survival analysis to replace vital status and actual dates-of-death with synthetic values and uses classification tree analysis to replace actual causes of death with synthesized causes of death. The degree to which analyses performed on the synthetic data replicate results from analysis on the actual data is measured by comparing survival analysis parameter estimates from both data files. Because synthetic data only have value to the degree that they can be used to produce statistical estimates that are like those based on the actual data, this evaluation is an essential first step in assessing the potential utility of synthetic mortality data. [ABSTRACT FROM AUTHOR]

This paper identifies new opportunities for innovation and expansion on current survey practice in the design of a new household panel survey, including an increased use of new and mobile technologies, more frequent data collection, modified clustering, and use of non-traditional survey measures such as administrative data, planned missing/matrix sampling questionnaire design, real-time data collection, and biomarkers. These innovative data collection methods require rethinking traditional panel survey methods, but can help reduce respondent burden and expand on current social science knowledge. The paper concludes that a new household panel survey would improve knowledge about important social, economic and health issues facing the US, and would provide a useful test bed for new hypotheses and innovative methods of data collection. [ABSTRACT FROM AUTHOR]

Objective The objectives were to critically appraise the medical education research literature of 2015 and review the highest-quality quantitative and qualitative examples. Methods A total of 434 emergency medicine ( EM)-related articles were discovered upon a search of ERIC, Psych INFO, Pub MED, and SCOPUS. These were both quantitative and qualitative in nature. All were screened by two of the authors using previously published exclusion criteria, and the remaining were appraised by all authors using a previously published scoring system. The highest scoring articles were then reviewed. Results Sixty-one manuscripts were scored, and 10 quantitative and two qualitative papers were the highest scoring and are reviewed and summarized in this article. Conclusions This installment in this critical appraisal series reviews 12 of the highest-quality EM-related medical education research manuscripts published in 2015. [ABSTRACT FROM AUTHOR]

Commercial fisheries globally experienced numerous and significant perturbations during the early months of the COVID-19 pandemic, affecting the livelihoods of millions of fishers worldwide. In the Northeast United States, fishers grappled with low prices and disruptions to export and domestic markets, leaving many tied to the dock, while others found ways to adapt to the changing circumstances brought about by the pandemic. This paper investigates the short-term impacts of the early months of the COVID-19 pandemic (March-June 2020) on commercial fishers in the Northeast U.S. to understand the effects of the pandemic on participation in the fishery and fishers' economic outcomes, using data collected from an online survey of 258 Northeast U.S. commercial fishers. This research also assesses characteristics of those fishers who continued fishing and their adaptive strategies to the changing circumstances. Analysis of survey responses found the majority of fishers continued fishing during the early months of the pandemic, while a significant number had stopped fishing. Nearly all reported a loss of income, largely driven by disruptions of export markets, the loss of restaurant sales, and a resulting decline in seafood prices. Landings data demonstrate that while fishing pressure in 2020 was reduced for some species, it remained on track with previous years for others. Fishers reported engaging in a number of adaptation strategies, including direct sales of seafood, switching species, and supplementing their income with government payments or other sources of income. Many fishers who had stopped fishing indicated plans to return, suggesting refraining from fishing as a short-term adaptation strategy, rather than a plan to permanently stop fishing. Despite economic losses, fishers in the Northeast U.S. demonstrated resilience in the face of the pandemic by continuing to fish and implementing other adaptation strategies rather than switching to other livelihoods. [ABSTRACT FROM AUTHOR]

Purpose Understanding and navigating the differences in standards, and the roots and rationales underlying accreditation reviews, is necessary for all institutions that seek multiple accreditations. The purpose of this paper is to demonstrate a method to assist institutional-level leaders and assessment practitioners analyze and align these differences in various national or international agency requirements, to develop a framework for assessment and data collection. The proposed method is demonstrated by using multiple accreditors’ standards from the USA.Design/methodology/approach Guided by a set of process questions, a review and content analysis of national standards and 12 accreditation agency requirements from the USA was conducted using Web-based, documentary sources. An operational definition of institutional quality was derived based on the core themes that emerged. Examples of evidence matched to each core theme were outlined to suggest an assessment framework. The 12 US agency requirements were compared and contrasted with the core themes and validated.Findings In the USA, recognition requirements set by two national bodies, the US Department of Education and Council of Higher Education Accreditation, drive the standards applied by various agencies that accredit institutions and programs. Six themes emerged from their requirements, serving as a core framework for designing institutional assessment systems. The themes are student achievement and continuous improvement; curriculum quality; faculty; facilities, equipment and supplies; fiscal and administrative capacity; and student support services, admissions and information-gathering systems. While the 12 sampled accreditation agencies generally used these core themes, divergences were found in how they treated the themes in published requirements.Practical implications Where multiple US or other accreditations are sought, the approach recommended could facilitate the work of institutional accreditation leaders and practitioners in establishing assessment systems that reduce redundancy while also maximizing efficiency in assessment and data collection.Originality/value There is little guidance in the literature on how institutional leaders and practitioners confronting the challenges of accreditation can negotiate multiple, and sometimes conflicting, sets of requirements. This paper demonstrates a possible solution strategy. Outside the general utility of the demonstrated method, the findings and core assessment framework produced could be useful for institutions seeking accreditation through the agencies in the study sample, in both the USA and overseas. [ABSTRACT FROM AUTHOR]

This paper focuses on the deracialisation strategies of South Asian American candidates for elected office. We argue that there is a distinct pattern among these candidates in terms of the type of representation they embody, as well as their personal choices including using non-ethnic nicknames in their campaign materials. These nicknames assist voters, especially in low-information elections, by signalling the ethnicity of candidates – or the lack thereof. Using data collected by the authors from 1956 to the present – the first such attempt to create a national database of South Asian American candidates – we employ a logistic regression to examine the effect of using a non-ethnic nickname on the likelihood of attaining electoral success. Our findings suggest that candidates who used a non-ethnic nickname were at least 25% more likely to win an election. This effect increased as we moved from local to federal contests. [ABSTRACT FROM AUTHOR]

This study was conducted to determine the success for the diffusion of the Coalition on Intercollegiate Athletics (COIA) white paper Framing the Future: Reforming Intercollegiate Athletics. The Stages of Concern Questionnaire (SoCQ) and personal interviews were utilized to collect data and purposeful sampling was used to identify one NCAA Division I university in the state of Texas. Athletic personnel and faculty senate members were asked to complete the SoCQ and participate in an interview for the study. Findings provide evidence that the participants share common concerns in relation to the adoption of the COIA white paper such as creating a balanced approach to academics and athletics, increasing campus pride, and academic integrity. Participants also felt that meaningful collaboration among faculty and staff members can prove beneficial to helping individuals take ownership in the adoption process. [ABSTRACT FROM AUTHOR]

Background: In 1999, the Society of American Gastrointestinal Endoscopic Surgeons (SAGES) introduced the SAGES Outcomes Initiative as a way for its members to track their own outcomes. It contains perioperative and postoperative data on nearly 20,000 operations. This report provides a descriptive analysis of the groin hernia database.Methods: The SAGES Outcomes Initiative database was accessed for all groin hernia cases from September 1999 to February 2005. The data from the preoperative, intraoperative, and postoperative entries were summarized. These data are purely descriptive and no statistical analysis was done.Results: The hernia registry contains 1,607 entries, with 1,070 follow-up entries. Males comprised 85% of patients, 63% were employed, 62% had at least one comorbidity, with 84% ASA class I or II. Primary, unilateral hernia accounted for 86% of cases, whereas 14% were recurrent, 11% bilateral, 6% incarcerated, and 3% required emergency repair. The operating surgeon was the attending surgeon in 83% of cases. Anesthetic techniques were general anesthesia in 74% of cases, regional in 7%, and local in 34%, with only 16% of cases local only. Most patients had symptomatic hernias and symptoms were improved in more than 95% of patients. Most repairs were open, although 45% were endoscopic. The most frequently cited postoperative event was significant bruising (6%), with more than 99% of complications being class I or II. More than 95% of patients were able to return to work by the first postoperative visit. Patients who underwent endoscopic repair were reported to have fewer days of narcotic use than patients undergoing open repairs (0 vs 3).Conclusions: First analysis of the SAGES Outcomes Initiative groin hernia database demonstrates that (a) this is one of the largest prospective; voluntary hernia registries; (b) missing data are infrequent; and (c) the data are similar to published data from national, mandatory registries and randomized trials. Although the SAGES Outcomes Initiative is a voluntary registry, initially designed for surgeon self-assessment, and it therefore has the potential for methodological concerns inherent to voluntary registries, the findings from this first analysis are encouraging. Efforts are ongoing to simplify data entry (PDA), refine data parameters, increase surgeon participation, and determine the role of data audit and thereby the potential for clinical research. [ABSTRACT FROM AUTHOR]

Background: The American Society of Anesthesiologists (ASA) classification is the most used system to assess patient health status before surgery, ranging from I to V levels. This study aims to explore the impact of different ASA risk classes (ASA II [mild risk] and ASA III [severe risk]) on clinical outcomes following hip fracture surgery, including all-cause mortality and postoperative complications. Methods: A retrospective analysis from 2019 to 2021 across three Jordanian centers was conducted. The study included patients aged 65 and above who underwent hip fracture repair surgeries. Preoperative measures, intraoperative management protocols, and postoperative care were collected. Clinical data were extracted from electronic medical records, including demographics, fracture type, intraoperative data, and postoperative outcomes. Results: The analysis included 1033 patients, with 501 (48.5%) in the mild anesthetic risk group (ASA I-II) and 532 (51.5%) in the severe anesthetic risk group (ASA III-V). The mean age was 73 years, with a higher prevalence of males in the severe risk group. Patients in the severe risk group had more comorbidities, higher ICU admissions (15.23% vs. 6.18%), longer hospital stays (median 7 vs. 6 days), and higher rates of postoperative thromboembolic complications (3.39% vs. 1.39%) compared to the mild risk group. Additionally, the severe risk group showed higher mortality rates both in-hospital mortality (3.38% vs. 1.39%) and all-cause mortality (16.92% vs. 10.36%). Multivariate analysis identified higher ASA score as independent risk factors for increased all-cause mortality (HR = 1.64 95%CI 1.51–2.34) and thromboembolic complications (OR = 2.85 95%CI 1.16-7). Length of hospital stay was significantly associated with higher ASA score (OR = 1.04 95%CI 0.96–1.11). Conclusion: The study underscores the significant impact of anesthetic risk on the outcomes of hip fracture surgeries. Patients with higher ASA scores associated with severe systemic diseases may have at increased risk of adverse outcomes. [ABSTRACT FROM AUTHOR]

Background: Early detection of autism spectrum disorder (ASD) has the potential to significantly reduce the impact of the condition, however previous reviews have found little evidence to support screening programs for ASD in young children. Methods: We conducted a review with the aim of updating evidence on 3 aspects: (a) diagnostic stability of ASD in young children; (b) accuracy of ASD screening tools in young children; and (c) the benefits of early interventions in screen-detected young children with ASD. Results: A total of 33 studies were included in our review. Five studies looking at diagnostic stability reported estimates ranging from 71.9% to 100%, however the majority only included a follow-up of 24 months and all studies raised concerns regarding the risk of bias due particularly to lack of blinding, sample size, and patient flow. A total of 25 studies, reported in 26 articles, were identified that reported accuracy data on 11 screening tools. Most of the reports were concerned with versions of M-CHAT, reporting sensitivity estimates from 0.67 to 1.0; however, many of these were deemed to be of high risk of bias due to lack of blinding and follow-up. Four studies reported on early interventions in screen-detected children; however, the majority did not find significant improvements on the relevant outcomes. Conclusions: Overall, the evidence on screening for ASD in young children captured by this review is not conclusive regarding the 3 aspects of screening in this population. Future studies should attempt to ensure blinded diagnostic assessments, include longer follow-up periods and limit attrition. [ABSTRACT FROM AUTHOR]

Background: Literature supports including occupational therapists on primary care teams. Few occupational therapists practice in this setting. The health care community needs more information regarding the benefits of occupational therapists on the team. Method: We completed an 18-month pilot integrating an occupational therapist in a primary care team, tracking conditions treated by the occupational therapist, visit duration, reimbursement, and level of primary care providers’ (PCP) satisfaction. We then evaluated outcomes via a retrospective chart review. Results: Visits were brief, averaging 35 min. Longer visits did not improve outcomes. Occupational therapists were reimbursed by Medicare (47%), commercial (47%), both (6%). PCPs referred numerous conditions, and > 50% related to musculoskeletal pain. Most of the patients, 84%, reported partial (30%) or complete (54%) improvement; 60% required one-time treatment; and 40% were referred for further treatment on-site or outside the department for additional or specialty treatment. After the pilot, most of the PCPs felt an occupational therapist on the team was absolutely essential (n = 14; 61%), or very important (n = 7; 30%). Conclusion: Embedded occupational therapy treatment resulted in symptom improvement in 84% of patients across a variety of conditions, and brief visits were effective. Occupational therapist services were reimbursed across insurance plans. After working with an occupational therapist, 91% of the PCPs viewed the occupational therapist as a very important or essential team member. [ABSTRACT FROM AUTHOR]

Introduction: The COVID-19 pandemic highlighted the need for a nationwide health information technology solution that could improve upon manual case reporting and decrease the clinical and administrative burden on the US health care system. We describe the development, implementation, and nationwide expansion of electronic case reporting (eCR), including its effect on public health surveillance and pandemic readiness. Methods: Multidisciplinary teams developed and implemented a standards-based, shared, scalable, and interoperable eCR infrastructure during 2014-2020. From January 27, 2020, to January 7, 2023, the team conducted a nationwide scale-up effort and determined the number of eCR-capable electronic health record (EHR) products, the number of reportable conditions available within the infrastructure, and technical connections of health care organizations (HCOs) and jurisdictional public health agencies (PHAs) to the eCR infrastructure. The team also conducted data quality studies to determine whether HCOs were discontinuing manual case reporting and early results of eCR timeliness. Results: During the study period, the number of eCR-capable EHR products developed or in development increased 11-fold (from 3 to 33), the number of reportable conditions available increased 28-fold (from 6 to 173), the number of HCOs connected to the eCR infrastructure increased 143-fold (from 153 to 22 000), and the number of jurisdictional PHAs connected to the eCR infrastructure increased 2.75-fold (from 24 to 66). Data quality reviews with PHAs resulted in select HCOs discontinuing manual case reporting and using eCR-exclusive case reporting in 13 PHA jurisdictions. The timeliness of eCR was <1 minute. Practice Implications: The growth of eCR can revolutionize public health case surveillance by producing data that are more timely and complete than manual case reporting while reducing reporting burden. [ABSTRACT FROM AUTHOR]

Pasteurised donor human milk is recommended for very low birthweight infants who do not have access to their mother's milk. Although the use of donor milk continues to increase, little is known about the donation experiences of milk bank donors. We aimed to describe and compare enablers, barriers and patterns of human milk donation and identify factors predicting donation volume in a convenience sample of approved milk bank donors in the United Kingdom and the United States. A cross‐sectional online survey was conducted from August 2022 to December 2022. Approved milk bank donors (n = 556) from three milk banks in the United States (n = 369, Mothers' Milk Bank of Florida, Mother's Milk Bank of North Texas and Northwest Mothers Milk Bank) and one milk bank in the United Kingdom (n = 187, Hearts Milk Bank) completed the survey. A substantial portion of donors in both settings reported participating in other forms of milk exchange (51% of U.S. donors vs. 39% of UK donors, p = 0.009). Top donation barriers reported in both settings were completing the serological screening and having enough space to store collected milk. Most donors started donating when their infant was 3 months old or older and reported donating mature milk. The most common source of information related to milk banking in each setting was the internet (United Kingdom–70% vs. United States ‐ 63%, p = 0.112). Variables that predicted lifetime donation volume differed between the United States and the United Kingdom, highlighting the importance of setting‐specific milk banking research. Key messages: Milk bank donors in the United Kingdom and the United States reported primarily receiving milk banking information from the internet and not their health care provider.A substantial portion of human milk bank donors in the United Kingdom and the United States participate in other forms of milk exchange, including sharing with a peer.Participating in other forms of milk exchange did not predict lower milk bank donation volumes.Barriers to donation and predictors of donation volume differed between donors in the United Kingdom and the United States, suggesting setting‐specific research is warranted to improve the donation process globally. [ABSTRACT FROM AUTHOR]

This paper examines the relation between unmarried cohabitation and three important determinants of fertility-frequency of sexual intercourse, contraceptive practice, and the expectation to have a child within five years. Analyses based on data from the 1982 National Survey of Family Growth show that formerly married cohabitants are similar to married women with respect to these fertility determinants, but that never married cohabitants may have lower fertility in the short run because of extremely high levels of contraceptive practice. The paper also compares self-reported data on cohabitation with an inferred measure based on household composition. [ABSTRACT FROM AUTHOR]

The article discusses the increasing importance of water data amid the spike in water demand and variability of water availability. Topics discussed include the definition of water data, as well as its five general categories, the features that should be present in the greater integration of water data and the issues associated with the use of water data, as well as its collection.

Many studies in various countries have found that telephone and internet surveys of probability samples yielded data that were more accurate than internet surveys of nonprobability samples, but some authors have challenged this conclusion. This paper describes a replication and an expanded comparison of data collected in the United States, using a variety of probability and nonprobability sampling methods, using a set of 50 measures of 40 benchmark variables, larger than any used in the past, and assessing accuracy using a new metric for this literature: root mean squared error. Despite substantial drops in response rates since a prior comparison, the probability samples interviewed by telephone or the internet were the most accurate. Internet surveys of a probability sample combined with an opt-in sample were less accurate; least accurate were internet surveys of opt-in panel samples. These results were not altered by implementing poststratification using demographics. [ABSTRACT FROM AUTHOR]

Greater attention is being paid to issues surrounding end-of-life care for aging adults with developmental disabilities. The purpose of this qualitative study was to explore the end-of-life experiences of two aging adults with developmental disabilities and life-limiting serious illnesses who received care in settings in the United States. Using a comparative case study design, data from three sources (records, staff, surrogates) were collected sequentially and triangulated via within and cross-case analyses. Although the setting and design limit the generalizability of these findings, the feasibility of delivering high quality care to adults with developmental disabilities as they age and experience terminal illnesses is supported. Insights are presented regarding how nurses can address barriers by adapting policies and practices to accommodate the distinct needs that arise as people with developmental disabilities age, become seriously ill, and reach life's end. [ABSTRACT FROM AUTHOR]