101. Practicing care-full scholarship: Exploring the use of 'visual informed consent' in a study of motherhood, health and agroecology in Coventry, UK.
- Author
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Abbas, Mai, Franklin, Alex, Lemke, Stefanie, and Tornaghi, Chiara
- Subjects
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DATA security , *ECOLOGY , *HEALTH status indicators , *INTERPROFESSIONAL relations , *RESEARCH funding , *HUMAN research subjects , *DRAWING , *EMPIRICAL research , *RESPONSIBILITY , *INTERVIEWING , *CONFIDENCE , *SOCIAL responsibility , *DECISION making , *PARTICIPANT-researcher relationships , *CITY dwellers , *REFLEXIVITY , *MOTIVATION (Psychology) , *HORTICULTURE , *INFORMED consent (Medical law) , *MIGRANT labor , *PSYCHOLOGY of mothers , *CONCEPTUAL structures , *RESEARCH methodology , *COMMUNICATION , *MOTHERHOOD , *PSYCHOSOCIAL factors , *COMMUNICATION barriers , *RESEARCH ethics - Abstract
The demand for alternative methods of providing informed consent is increasing, especially in research with marginalised (or illiterate) research participants. This article discusses the co-creation of a visual informed consent (VIC), in collaboration with an artist. The VIC was inspired by the experience of obtaining informed consent from a group of migrant women with limited English proficiency, in empirical research undertaken on agroecology and health in Coventry, UK. Reflecting further on its creation and wider utility, this article explores the inner values that might guide researchers and lead to the co-creation of care-full tools that meet the needs of research participants. Specifically, this includes, reflecting on the iterative process of developing a VIC and using an ethics of care as a primary conceptual framework. Findings reveal that participants' understanding of ethical issues is facilitated using visual illustrations. It is argued that the creation of a VIC requires the researcher to be attentive to the embodied nature of research practice and guided by an ethics of care. A conceptual framework that integrates care and embodiment is presented, with the intention that it may further support the development of care-full research by others. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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