20,147 results on '"Advocacy"'
Search Results
2. Multiple Choices: Weighing Updates to State Summative Assessments
- Author
-
Bellwether, Michelle Croft, Bonnie O’Keefe, Marisa Mission, and Juliet Squire
- Abstract
State summative assessments play an important role in measuring student learning and guiding educational improvement efforts, despite their limitations. But there is growing momentum in individual states and nationally to rethink these assessments with an eye toward reducing time spent on testing and increasing the tests' instructional relevance. "Multiple Choices: Weighing Updates to State Summative Assessments" helps policymakers and advocates understand what they may gain and what they may lose when considering potential shifts in assessments. The report examines several of the most common proposed changes -- including reducing test length, matrix sampling, student sampling, grade-band testing, performance assessment, and through-year assessment -- and summarizes the potential gains, losses, and unknowns of each. The report also offers recommendations for state policymakers, federal policymakers, and advocates working to ensure that summative assessments better address the needs of educators, families, and students.
- Published
- 2024
3. Resisting the Heartbreak of Neoliberalism in Education Advocacy
- Author
-
Beyhan Farhadi
- Abstract
This paper explores how advocates in Ontario have resisted neoliberal restructuring in education since the 2018 general election, which marked an intensification of market-oriented reforms. Shaped by the insights of 23 participants, this paper shows how resistance has been accessed through multiple entry points and has been spatially heterogeneous, replete with internal contradiction. It also highlights the cost of resistance for participants whose relationship to systems engender oppression and harm. Broadly, this paper calls for vulnerable reflection on fantasies of a "good life" shaped by a normative neoliberal order that interferes with collective flourishing. Through emergent strategy, which aligns action with a vision for social justice, this paper values the non-linear and manifold ways individuals are embedded in systems; the fractal nature of change, which takes place at all scales; and a love ethic, which sustains relational the spiritual growth necessary for solidarity.
- Published
- 2024
4. Defending and Strengthening Public Education as a Common Good: Toward Cross-Border Advocacy
- Author
-
Shannon Dawn Maree Moore, Ee-Seul Yoon, and Melanie D. Janzen
- Abstract
For decades, there has been a well-coordinated effort to unmake public education in Canada and around the globe. Neoliberal reformers have undermined public education through increased privatization, marketization, and managerialism. Government austerity measures have shaped policy that falsely necessitates, validates, and legitimizes the privatization of public education. All of these forces that fuel the neoliberal reform movement diminish the collective aims, benefits, and responsibility of/for public education. Instead, the movement encourages systems that ration education. The moves to emulate business models in education systems exacerbate inequities and run counter to the purpose of public education. Indeed, attempts to marketize, commodify, privatize, and dismantle public education are well-organized and coordinated. Yet, in Canada, provincial and territorial fragmentation has veiled the well-organized rhetoric and tactics of neoliberal education reforms. As a result, community and political responses have often been confined within borders. The reformers have been centrally organized, but the resistance has not. Recognizing that provincial and territorial borders can act as barriers to collective advocacy, this special issue is intended to share activities, research, and writing from across Canada about the tactics and impacts of privatization, to recognize the efforts being made to organize a collective response to privatization efforts, and to encourage national conversations beyond borders.
- Published
- 2024
5. School Counselors' Perspectives on Preparing Students Experiencing Homelessness for College
- Author
-
Stacey A. Havlik, Dana Brookover, and Patrick Rowley
- Abstract
The purpose of the study is to investigate school counselors' support of youth experiencing homelessness going to college. Using survey methods, school counselors reported their knowledge, perceived competence, advocacy, and actions related to supporting students experiencing homelessness in their college preparation. The results suggested that training and the number of students experiencing homelessness on counselors' caseloads were significantly related to their knowledge and competence. Knowledge, competence, and advocacy all impacted the number of interventions utilized by participants. The implications of these results for school counselors and counselor educators are discussed.
- Published
- 2024
6. Wicked Opportunities: Leveraging AI to Transform Education. A Report from CRPE's Think Forward: AI Learning Forum
- Author
-
Arizona State University (ASU), Center on Reinventing Public Education (CRPE)
- Abstract
While the United States leads the world in Artificial Intelligence (AI) innovation, schools lag behind in preparing teachers and students for the Fourth Industrial Revolution. To help accelerate action in U.S. public education and develop a short-term roadmap for districts and other education leaders, the Center on Reinventing Public Education (CRPE) brought together over 60 state and federal policymakers, edtech innovators, school system leaders, and advocates in Albuquerque, New Mexico, in April 2024 to participate in the Think Forward: Learning with AI forum. The setting for the Think Forward AI learning forum emphasized the importance of collective decision-making--and the consequences of getting those decisions wrong. This report reflects key learnings and conversations that emerged from CRPE's Think Forward convening, including: (1) how AI can enable needed changes in our schools; (2) how current conditions in the edtech market act as barriers to closing equity gaps; and (3) how policy and practice must adapt for lasting system change. It concludes with a short-term action plan developed by forum participants that provides an immediate path forward and outlines the roles wide-ranging stakeholders must play to address our shared challenges and opportunities.
- Published
- 2024
7. Raising Awareness of Sustainable Development Goals in Higher Education Institutions
- Author
-
Harika Suklun and Elif Bengü
- Abstract
Higher education institutions play a crucial role in advancing sustainable development goals. They bear the responsibility of informing and encouraging all stakeholders, including faculty members, students, and industry partners, to collaborate towards achieving these goals. While many universities are integrating Sustainable Development Goals into their operations and educational programs, there is an increasing need to establish collaborative platforms with private sectors and non-governmental organizations to further champion this agenda. Educating the future workforce is a key responsibility of these institutions, and they should actively raise students' awareness of these goals, enabling them to develop competencies related to sustainability. This study aims to explore how higher education institutions can effectively raise awareness of sustainable development goals. In addition, the research contributes to the literature by presenting a curriculum designed in a Turkish higher education institution to foster awareness of sustainable development goals. The findings hold the potential to significantly enrich existing literature on awareness-raising practices and the promotion of sustainability strategies, extending beyond higher education institutions to organizations at large.
- Published
- 2024
8. Strengthening the Foundation: A Profile of Early Childhood Educators in Boston and Beyond. 2024 Early Education and Care Report
- Author
-
Boston Foundation, Boston Opportunity Agenda (BOA), Pratima A. Patil, Paula Gaviria Villarreal, Fernanda Q. Campbell, Birth to Eight Collaborative Data Committee, and Sandy Kendall
- Abstract
In 2022, the Boston Opportunity Agenda, the Birth to Eight Collaborative and the City of Boston's Office of Early Childhood partnered in the development of this survey of hundreds of early education professionals in the city of Boston, and then expanded its reach to total more than 600 respondents across the state. In it, educators and administrators shared their demographics and educational background, as well as elements of their work experience, wages, and more. Taken together, the data portray a diverse workforce of dedicated professionals who also must manage low wages and long hours in a system that seeks to attract thousands of new workers to replace retiring workers and meet the need for more available early education seats.
- Published
- 2024
9. Limited Scopes of Repair: Black Reparations Strategies and the Constraints of Local Redress Policy
- Author
-
Elizabeth Jordie Davies, Jenn M. Jackson, and David J. Knight
- Abstract
We consider two local reparations cases--the Evanston Restorative Housing Program and Chicago reparations for police torture survivors. We argue that the programs are shaped by the differing political opportunities, the local context, and the social location of their advocates given that one was constructed within government systems in Evanston and the other largely by grassroots organizers in Chicago. Furthermore, both programs are criticized to varying degrees as being exclusive in their design and implementation. We term this exclusion a process of deliberative marginalization, whereby some of the most vulnerable and most directly affected beneficiaries of a redress initiative are left out of deliberations and implementation decisions about the initiative's design. Subsequently, this study shows both the promise and constraints of reparations policy at the level of local government.
- Published
- 2024
10. The Black Suburban Sort: Is Suburbanization Diversifying Blacks' Racial Attitudes?
- Author
-
Reuel Rogers
- Abstract
The recent expansion in Black suburbanization is the most substantial shift in Black American residential patterns since the Great Migration. It has left Blacks more sorted between urban and suburban neighborhoods across metropolitan areas. This study explores whether this increasing residential stratification is associated with differentiation in Blacks' political views on racialized issues. I first lay out a theory of Black political sorting by place, specifying processes inherent in suburbanization that could lead to opinion stratification between suburban and urban Blacks. This is followed by a descriptive analysis of American Voices Project interviews with suburban and urban Black respondents. The data show Black suburbanization is neither as economically transformative nor politically differentiating as might be expected. Despite subtle opinion differences between suburban and urban respondents, they mostly converge in their bleak assessments of racialized issues.
- Published
- 2024
11. Exposing the Spectre: Resisting Neoliberal Education Reforms in Manitoba
- Author
-
Justin D. Fraser
- Abstract
In 2021, the government of Manitoba made their plans to reform public education overt with Bill 64. Although the legislation was withdrawn as a result of immense opposition from critically engaged Manitobans, the government did not abandon its neoliberal reform plans. Instead, the spectre of Bill 64 now lingers through a variety of new educational initiatives. In response, People for Public Education is working to keep the fight against the privatization of public education alive. Through consciousness raising and by constructing hopeful and imaginative visions of the future, this nascent community advocacy group strives to protect public education from the deleterious effects of neoliberalism. In this article, I reflexively interrogate and critically analyze the emergence, evolving objectives, values, and actions of People for Public Education for the purpose of inspiring future resistance against neoliberal education reforms.
- Published
- 2024
12. Abolitionist Praxis for Substance Use Clients Who Experience Anti-Drug Policing
- Author
-
Darius A. Green and Katharine R. Sperandio
- Abstract
Because of the long history of anti-drug policing in the United States and the criminalization of substance use, clients who use substances are vulnerable to direct and vicarious experiences of police violence. Consequently, those who use substances may face a greater risk of experiencing symptoms of trauma that counselors should address in treatment. We recommend the use of a trauma-informed and abolitionist praxis in clinical and social justice practices as a framework to support clients who use substances and have histories of exposure to police violence.
- Published
- 2024
13. Evolution of Professional Standards: Reflecting on the Past to Inform the Future
- Author
-
Vicki D. Stayton, Jennifer L. Kilgo, Jeanette A. Mccollum, Karin Lifter, Ann M. Mickelson, Megan L. Purcell, Christine M. Spence, Cynthia O. Vail, Hasan Zaghlawan, and Erin E. Barton
- Abstract
Clearly defined professional standards result in better prepared professionals who positively impact outcomes for children and families by ensuring an effective workforce. This article describes the evolution of early intervention early/childhood special education preparation standards from the on-the-job competencies of the 1960s to the historic 2020 Initial Practice-Based Professional Standards for Early Interventionists/Early Childhood Special Educators (EI/ ECSE Standards), in concert with the evolution of the profession itself. Influencing factors include (a) changes in federal legislation and policy, (b) ages and characteristics of children served, (c) growing knowledge of effective practices, (d) collaboration with other disciplines, and (e) ongoing advocacy for EI/ ECSE as a profession. The article concludes with a vision for using the EI/ECSE Standards to guide the future local, state, and national agenda of the profession around preservice preparation and accreditation, professional development, state and federal policy, cross-disciplinary collaboration, and standards-informed research.
- Published
- 2024
14. Queer Affirmative Practice in Africa: A Social Work Practice Model for Working with LGBTQIA+ People
- Author
-
Luvo Kasa
- Abstract
Despite the legislation put in place by the United Nations, Africa continues to grapple with issues of monosexism and heterosexism. In fact, of the 54 African countries, 33 have criminalised queer relationships, a legacy primarily attributed to colonial rule. However, social work literature has recently introduced a culturally sensitive model for working with the LGBTQIA+ community, known as Queer affirmative action. By utilising available literature and adopting an intersectional approach, which was collected and analysed through PRISMA, this paper aims to discuss the Africanising of sexuality in Africa. It argues that it is crucial to undertake a critical analysis of the colonial legacy and its impact on queer identities. Furthermore, the article posits that social work education must incorporate knowledge of the intersection of gender, sexuality, and other identity markers to form an inclusive and comprehensive approach towards practice. An affirmative philosophy to social work practice can serve as a counterweight to all punitive and discriminatory practices. Thus, in Africa, the most effective way to improve the well-being of queer individuals is to eradicate structural forms of inequality and decriminalise same-sex consensual relationships.
- Published
- 2024
15. Using Concept Maps to Analyze Educators' Conceptions of STEM Education
- Author
-
Jennifer R. Simons
- Abstract
This study analyzes educators' conceptions of STEM education at the beginning of an online graduate course for in-service teachers. It offers a qualitative thematic analysis of educators' initial conception of STEM education and their roles as STEM educators through the use of concept maps and reflection statements. Conceptions of STEM varied greatly across the sample and fell into seven categories: (a) utilitarian, (b) acquisition of disciplinary knowledge, (c) activities and resources, (d) meaningful problem-solving experiences, (e) advocacy for systemic change, (f) buzzwords, and (g) educator's role in STEM teaching and learning. This study reveals the complexity of educators' ideas of STEM and educator roles within STEM education. Using concept maps as formative assessments can better position teacher educators to provide structured reflection space for educators while aligning coursework and resources to better meet educators' varied needs.
- Published
- 2024
16. Bridging the Artificial Gap: TESOL Frameworks for World Language Education and Advocacy
- Author
-
Michele Back and Manuela Wagner
- Abstract
In this position paper we present research and data demonstrating how pedagogical frameworks traditionally used in TESOL contexts can be harnessed by world language (WL) educators to scaffold language learning and advocate for emergent multilingual language learners (EMLLs). Focusing on three pedagogical frameworks--Sheltered Instruction Observation Protocol (SIOP), translanguaging, and multilingual ecology--we discuss how we have utilized these frameworks with WL teachers and teacher candidates and offer suggestions for how they might be used effectively in WL classrooms to both scaffold language acquisition and foster a greater appreciation for and pride in multilingualism.
- Published
- 2024
17. Native Nations and Land-Grant Universities at the Crossroads: The Intersection of Settler Land Acknowledgments and the Outreach and Engagement Mission
- Author
-
Theresa Jean Ambo and Stephen M. Gavazzi
- Abstract
This reflective essay addresses the nexus of two recent events in the United States: (1) the public scrutiny of the relationship between land grant universities and the expropriation of Indigenous lands and (2)the often uncritical and rapid uptake of settler land acknowledgments at public college and university events. We argue that written land acknowledgment statements need to accompany actions that align with declarations of respect and honor. Specifically, we offer readers three concrete ideas through which institutions may further land acknowledgments: challenging their historical legacies, fostering meaningful partnerships with Native Nations and Indigenous Peoples, and materializing resources for this highly underserved, long-neglected, often ignored community.
- Published
- 2024
18. Refugee-Background Youth Workers as Agents of Social Change: Building Bridging Relationships One Story at a Time
- Author
-
Laura M. Kennedy, Lindsay McHolme, and Carrie Symons
- Abstract
In the context of an established research-practice partnership with the Hope Resource Center, we piloted The Stories Project, a narrative inquiry study alongside refugee-background youth workers and U.S.-born community members. Our inquiry explored the process by which storytelling could be used to humanize and advocate for refugee-background youth in the United States. Data sources included interviews, dialogue session recordings, participant artifacts, and researcher memos. Findings centered the voices of refugee-background youth workers as they honored each other's unique perspectives and life experiences as well as recognized each other's shared humanity. Collectively, the youth workers identified the importance of being vulnerable, humanizing the refugee experience, and building advocacy as ways to promote social change.
- Published
- 2024
19. 'Taking Action': Reflections on Forming and Facilitating a Peer-Led Social Justice Advocacy Group
- Author
-
Sunanda M. Sharma, Jennifer E. Bianchini, Zeynep L. Cakmak, MaryRose Kaplan, and Muninder K. Ahluwalia
- Abstract
According to the American Counseling Association and the Council for Accreditation of Counseling and Related Educational Programs, social justice advocacy is an ethical imperative for counselors and a training standard for counseling students. As a group of socially conscious mental health counseling students and faculty, we developed and facilitated a social justice advocacy group to learn about tangible ways to engage in social justice action. Using the S-Quad model developed by Toporek and Ahluwalia, we formed and facilitated a social justice advocacy group for our peers. This paper will serve as a reflection of our experiences engaging in the process.
- Published
- 2024
20. 'Transfronterizo' Teachers of English in the Borderlands: Creating a 'Mundo Zurdo'
- Author
-
Isaac Frausto-Hernandez
- Abstract
Cross-border migration is increasing in a globalized world. On the physical borderlands, migration across and between borders occurs on a habitual basis. This qualitative study employs semi-structured interviews to explore how three "transfronterizo" teachers along the U.S.-Mexico borderlands draw on their backgrounds and lived experiences as they go about in their English teaching practices. Findings suggest that the diverse lived experiences of the three teachers allow them to develop a particular knowledge, consciousness, and agency in creating a third space, or a "mundo zurdo," in which they advocate for their "transfronterizo" students.
- Published
- 2024
21. Exploring Social Justice through Art in a Community Health Nursing Course
- Author
-
Aliyah Dosani, Jocelyn Lehman, and Alexander Cuncannon
- Abstract
Social justice and health equity are foundational to community health nursing. Arts-based pedagogy has learning and reflexive value for community and population health education within nursing and health professions curricula. Art has been increasingly used in health care and in promoting health, including in nursing education. However, research has not explored the use of arts to teach community health nursing students about social justice. The objective of this study was to understand how the inclusion of a collaborative artistic process relates to the understanding of social justice issues for second-year baccalaureate nursing students enrolled in a community health nursing course. Visual art and symbolic components were added to an existing group concept mapping assignment of community health nursing interventions from a social justice approach. We engaged in analysis within interpretive phenomenological inquiry to understand and share students' experiences with constructing and giving meaning to symbols and art pieces, internalizing the concept of social justice, and collaborating with group members. Students used symbols and visual representation to explore social justice and health. Students' narrative reflections encompassed experiences finding personal power, engaging in empathy, reflecting on their own position and privilege, and benefitting from non-traditional forms of learning. Students recounted group processes that deepened their understanding of concepts, increased their appreciation of the need for advocacy, and enabled creative freedom in the context of collective vision. The addition of a collaborative creative, artistic process enhanced students' learning about social justice and health.
- Published
- 2024
22. Tatum's Social Media Activism as Multiliteracies: Connecting, Advocating, and Resisting Social Injustices
- Author
-
Dominique McDaniel
- Abstract
Social media serves as a virtual platform for young people to foster community and amplify marginalized voices, allowing them to actively engage with societal issues and take on roles as activists, advocates, and allies. A 2021 study (McDaniel, 2022) on teens revealed diverse literacy practices employed to address social justice, civil unrest, police brutality, state-sanctioned violence, the global pandemic, and other challenges faced by diverse communities. In a comprehensive three-month multi-case study focusing on the online literacies of teens of Color, the author examined how one youth, Tatum, an 18-year-old Black social justice activist, utilized social media for critical literacy practices and civic engagement. This paper emphasizes Tatum's multiliteracy practices and explores the intersection of justice-oriented activism, social media literacies, and youth identity work. The study advocates for the importance of recognizing youth of Color's multiliteracies and how it enriches teachers' pedagogical practices, providing critical insights for educators.
- Published
- 2024
23. Current 'Shifts' in English Language Teaching
- Author
-
Roby Marlina
- Abstract
In this article, I offer my observations of the epistemological shifts that have taken place in the TESOL discipline as a result of the inexorable forces of globalisation. Specifically, the article highlights how the multicultural, multilingual, and multimodal nature of communication in the 21st century has disrupted various assumptions on how English is conceptualised, learned, and taught, prompting a shift in disciplinary discourses from a modernist to postmodernist orientation. Readers will gain insights into how the TESOL discipline is increasingly aligning itself with discourses that endorse inclusive plurality, emphasize processes and practices, recognize the role of everyday contexts, promote situated pedagogy, and advocate agency-giving.
- Published
- 2024
24. Parent Understanding of Specific Learning Disabilities
- Author
-
Gabrielle Wilcox, Erica Makarenko, Frank P. MacMaster, and Rose Swansburg
- Abstract
Parents play a vital role in supporting children with learning disabilities, but little is known about their understanding of this diagnosis. The experiences of parents with the diagnostic process and the services their children receive post-diagnosis vary widely. Parents who participated in this study reported that they understand learning disabilities broadly but not their underlying neurobiology. Those who noted understanding the neurobiology indicated that it helped them better support their child, and those who did not understand it wanted to learn more. Parents generally noted that their children received less support during COVID-19 and that they had to seek more private services in order to support their child's academic progress, which caused additional strain on families. Finally, parents reported that having a child with a learning disability negatively affected their mental health, especially when parents feel like they have had to advocate strongly for their child to receive services.
- Published
- 2024
25. Securitisation in Citizenship Education in Poland: Critical Analysis of the Discourses Linked with the Changes in Core Curricula Following the Russo-Ukrainian War
- Author
-
Violetta Kopinska and Natalia Stek-Lopatka
- Abstract
Purpose: The research aimed to critically analyse the changes that have occurred in the core curricula of general education in Poland following the Russo--Ukrainian war from the perspective of the securitisation process. Methodology: The research involved analysing 366 texts spanning various genres. These texts were produced by both securitising actors and recipients of the change. The research employed content analysis and Critical Discourse Analysis, following the approaches of Ruth Wodak and Martin Reisigl. Findings: The research revealed that the securitising actors advocating for changes in the core curricula have been identified as a threat directly linked to the war in Ukraine. However, the discourse surrounding these changes also exhibited several features that indicate a hidden political dimension. Further, the analysis emphasised the use of 'ministryplaining' towards the audience involved in education, who formulate critical remarks.
- Published
- 2024
26. Advocacy Coalitions and Education Policy Transfer: Lessons from School Board of Trustees Policy in Georgia
- Author
-
Sandro Tabatadze
- Abstract
The article explores the relationship between education policy change and policy transfer, focusing on Georgia's School Board of Trustees. It analyzes how Western practices have been implemented in the education policies of post-Soviet countries. To achieve this, the article utilizes instrumental case studies and in-depth interviews. It views policy transfer as a tool of education policy change while integrating it with an advocacy coalition framework. The study indicates that advocacy coalitions transform into transfer networks, and their approach is to replicate or emulate foreign experiences. The article also poses new research questions, enabling researchers to build on and scrutinize the proposed assumptions and concentrate on post-Soviet education policy transformation.
- Published
- 2024
- Full Text
- View/download PDF
27. Creativity in Crisis: Re-Envisioning Higher Education in Myanmar's Spring Revolution
- Author
-
Mary Shepard Wong and David Kareng
- Abstract
In the spring of 2022, we (a teacher-educator from the USA and a Kachin graduate research assistant) interviewed 14 participants from Myanmar who were engaging in an unprecedented educational re-imagining during the Spring Revolution following the 2021 military coup that gripped the county. Three preliminary findings of our study focus on creativity in crisis in higher education, which we categorized as actors, actions, and procedures, or who, what, and how. 'Who' refers to actors and their creativity in forming new alliances among inter-ethnic and inter-generational educators and activists to remake education. 'What' refers to creativity in content in addressing inequity and 'fake history' in the national curriculum. 'How' addresses creativity in the delivery of education in the midst of extreme challenges and opposition. This look into the way crises can lead to creativity in education, with a focus on higher education, presents a unique opportunity to witness how grassroots actors in Myanmar are seeking to transform higher education in a 'radical bureaucratic overhaul,' as one participant put it, making it more inclusive, critical, and just.
- Published
- 2024
- Full Text
- View/download PDF
28. Teacher Expertise in Early Childhood Instruction: Cross-Analysis of Language Policy and Culturally Sustaining Pedagogies with Multilingual Learners
- Author
-
Heather Dunham, Erica Holyoke, and Katie Crook
- Abstract
This qualitative study explores intersections between U.S. language policies (federal and state-level) and instructional practice in early childhood settings for multilingual learners (MLs). We draw on the theoretical framework of culturally sustaining pedagogy to engage in a critical content analysis of U.S. federal and state-level policy from three states. In the cross-analysis of policy and pedagogy, we also examine data from ML teachers' instructional artifacts, open-ended surveys, and semi-structured interviews. The findings provide insight into how educators draw on culturally sustaining and asset-based approaches to teaching MLs. Additionally, findings demonstrate how ML teachers negotiate policies that prioritize English language and academic achievement and those focused on teaching discrete language skills (i.e., phonological awareness and phonics) by continually centering children's linguistic and cultural repertoires. Participants in this study advocated for linguistic pluralism in their instruction and as leaders in their schools and communities. The study further illustrates how policies mandate specific aspects of instruction and leave linguistically inclusive pedagogies to individual educators. This tension can be beneficial for educators' freedom in interpreting and navigating the policy in their classroom but can also create disparities for young learners and their literacy opportunities. The significance implies a need for revisiting early childhood ML teachers' role in creating policy that fosters linguistic and cultural inclusion in language and literacy teaching.
- Published
- 2024
- Full Text
- View/download PDF
29. Public Opinion and the Teaching Profession
- Author
-
Kathleen Vail
- Abstract
Negative public perception of schools nationally impacts the teaching profession in direct and indirect ways. This perception has depressed the number of students in teacher preparation programs at universities. Indirectly, public perception affects teacher working conditions, compensation, and morale. Education advocates and researchers talk about the historical roots of perception of teachers, how and why negative perceptions persist, and how teachers can change the narrative.
- Published
- 2024
- Full Text
- View/download PDF
30. Experiences of Family Carers in Providing Care to Children with Intellectual Disabilities in India: A Qualitative Evidence Synthesis
- Author
-
Kumaresan Cithambaram, D. Corby, and Shankar Shanmugam Rajendran
- Abstract
Background: India has a significant prevalence of people with intellectual disabilities. Despite their higher prevalence, they receive poor support. Therefore, this review aims to explore the experiences of family carers in providing care for children with intellectual disabilities in India. Methods: A qualitative evidence synthesis was undertaken, searching databases such as MEDLINE, CINAHL, Web of Science, and PsycInfo up to October 2023. Grey literature was also searched for unpublished studies, with two reviewers assessing methodological quality. Eleven eligible studies, mostly qualitative in design, were included in the review. The data synthesis followed a thematic approach. Results: The synthesis found five themes representing family carers' experiences and perspectives. These were 'resilience and acceptance', 'parental response', 'care dynamic', 'preparing for transition to adulthood' and 'parental advocacy'. Conclusion: Family carers hold diverse views, while almost all consider providing care complex and challenging, with few positive experiences.
- Published
- 2024
- Full Text
- View/download PDF
31. 'Let the Water Speak' Using Fictional Writing to Revisit Stakeholder Theories and Give a Voice to Invisibilized Stakeholders
- Author
-
Marine Agogué and Charlotte Blanche
- Abstract
Understanding the dynamic relationships of the entities that have the most impact on an organization - or that the organization impacts the most - is at the core of stakeholder management approaches. In this article, we present an experiential exercise that provides a creative practical, low-overhead, discussion-oriented classroom activity to engage in a critical examination of the concept of stakeholders. This exercise is especially effective for the stakeholders usually invisibilized. Rather than relying on presenting stakeholder theory, this exercise uses fictional writing as a way for students to give a voice to water, a most often invisibilized stakeholder on an academic campus. The activity encourages reflection on the perception we hold toward certain stakeholders and aims to raise awareness toward the underrepresentation of some of them despite the centrality of their contribution to the organization. The exercise also enables students to grasp that there are limits when trying to speak on behalf of someone or something that structurally does not have a voice. This exercise can be used at the graduate level. Recommendations for adapting the exercise to the large classes are included.
- Published
- 2024
- Full Text
- View/download PDF
32. To Trust or Not to Trust: Consumer Perceptions of Corporate Sociopolitical Activism
- Author
-
Yijing Wang and Linnea Bouroncle
- Abstract
When companies take a stance on sociopolitical issues, it is considered corporate social advocacy (CSA). This article examines to what extent perceived corporate motives of engaging in CSA affect consumer skepticism and brand equity. It is one of the few published studies of consumer attitudes toward companies' CSA involvement. An online survey was conducted (N = 375). It provides evidence that consumer assessments of the motives that inspire CSA are similar to the better-researched motives that inspire CSR. The findings imply that companies need to develop a good understanding of the consumers' attributions when engaging in CSA.
- Published
- 2024
- Full Text
- View/download PDF
33. School Psychologists' Perceptions, Roles, and Training Regarding Sexual Health Education for Students with Intellectual and Developmental Disabilities
- Author
-
Anne C. Stair, Andrew T. Roach, Emily C. Graybill, Catherine A. Perkins, Brian Barger, and Erin C. Mason
- Abstract
Despite research indicating evidence-based sexual health education results improved student outcomes, students with intellectual and developmental disabilities (I/DD) do not typically receive sexual health education. While school psychologists possess skills that could contribute to sexual health education for students with I/DD, there is no existing research on this topic. To address this, we conducted a survey of school psychologists in a state in the Southeastern United States regarding their attitudes, perceptions of social norm and self-efficacy, and training and familiarity in regard to sexual health education for students with I/DD. The survey's focus and design were guided by the Reasoned Action Approach. Data collection and analyzes addressed (a) the underlying structure and internal consistency of our survey's scales; (b) school psychologists' level of training, knowledge, and beliefs about implementing sexual health education programs with students with I/DD; and (c) the relationship between school psychologists' previous training, knowledge, and beliefs and their implementation of and advocacy for sexual health education for students with I/DD. Descriptive statistics, principal component analyzes, and multiple regression were used to summarize the data and address the research questions. Data from the multiple regression analysis indicated that a significant amount of the variance in participants' implementation/advocacy scores was explained by attitude, social norms, behavioral control/self-efficacy, and training/familiarity. Our findings suggest that school psychologists' engagement in implementation of and advocacy for sexual health education for students with I/DD can be influenced by level of training and knowledge and perceived capability and behavioral control.
- Published
- 2024
- Full Text
- View/download PDF
34. The Role of Lived Experience Eye Care Champions in Improving Awareness and Access to Eye Care Services for People with Learning Disabilities and/or Autism
- Author
-
Marek Karas, Donna O'Brien, Lance Campbell, Rebecca Lunness, Joanne Kennedy, Grace McGill, Stephen Kill, and Lisa Donaldson
- Abstract
Background: Documented inequalities in access to eye care for people with learning disabilities and/or autism are caused by poor uptake of primary eye care services, poor identification of eye problems, lack of signposting and reasonable adjustments of existing services, concerns about costs of care and the low priority historically given to these issues in eye care policy at a regional and national level. In 2019, the charity SeeAbility employed four eye care champions (ECCs) with lived experience of learning disability and/or autism to work in local communities in London and the Northwest of England. They provided peer-to-peer support on understanding the need for good eye health and engaged with policy makers, and learning disability, autism and eye care professionals at the local, regional and national levels to influence both the clinical practice of individual practitioners (within existing service/pathway models) and more widely to influence the commissioning of the Easy Eye Care pathway. This study explores the experiences of these ECCs. Methods: The study was conducted in April and May 2023. A case study approach was used to describe the experiences of the ECCs from March 2019 to March 2023. Data from structured interviews with the four ECCs and workload analysis were triangulated to provide a multifaceted understanding of this novel health promotion project. Findings: The ECCs found the role useful and reported that confidence in their practice and impact grew with time but they required ongoing support in the role. A good understanding of the promotional messages was reported. Developing a good network of contacts at an early stage, both people with learning disabilities and healthcare professionals, was key. Relationships with professionals were supportive and positive and a positive emotive response to their lived experience was reported in these interactions. Conclusions: From the perspective of the ECCs, the role is useful and beneficial. The work suggests some key recommendations for future development which include planning to build networks, support in presentation and communications skills and defining key messages and knowledge. Confidence of the ECCs builds with time in the role but also needs support the emotive impact of their lived experiences on audiences is highlighted. There is a need to evaluate how the programme is perceived by those who interact with it and how it changes behaviours which leads to better health outcomes.
- Published
- 2024
- Full Text
- View/download PDF
35. Menstruation and Learning Disability across the Life Course: Using a Two-Part Scoping Exercise to Co-Produce Research Priorities
- Author
-
Sarah Earle, Susan Ledger, Victoria Newton, Lorna Rouse, and Elizabeth Tilley
- Abstract
Background: Across the life course, women and girls with learning disabilities and their carers report difficulties in accessing information and support with menstruation, yet their experiences are often overlooked in initiatives to improve menstrual health and wellbeing. Our aim was to collaborate with women with learning disabilities to co-produce future research priorities in a UK context. Methods: We undertook a two-part scoping exercise to explore what is known about this topic from a life course perspective, beginning pre-menarche and extending to post-menopause support. This combined a rapid scoping review of the literature since 1980 with a stakeholder consultation where people with learning disabilities, family carers, advocacy groups and staff working across education, health and social care were invited to share their experiences of menstruation support. Findings: UK and international literature provided insight across five narrative themes. Seventy stakeholders took part in our consultation, enabling the identification of five key themes. Findings across both highlight examples of supportive practice and valued resources alongside enduring health inequalities and barriers to menstruation support faced by women and girls with learning disabilities across the life course. Conclusion: Our scoping exercise identified multiple gaps in research and practice, ongoing reproductive health inequalities and a need for improved access to peer support, resources and training that take a life course approach. The scoping exercise indicates the need for further empirical research on menstruation and learning disability, with a particular focus on collating people's lived experiences.
- Published
- 2024
- Full Text
- View/download PDF
36. Communities in the Driver's Seat: Black Mothers Forum Microschools Raise Sustainability Questions
- Author
-
Arizona State University (ASU), Center on Reinventing Public Education (CRPE), Travis Pillow, and Eupha Jeanne Daramola
- Abstract
Black Mothers Forum (BMF) was founded in 2016 to combat institutional racism, including disproportionate discipline, unrepresentative curricula, and racial bullying in Phoenix-area schools. When the COVID-19 pandemic disrupted public education, the organization launched a network of microschools as outposts of this mission. These microschools were able to start quickly, make frequent course corrections, and sustain their efforts after the pandemic, thanks in part to Arizona's growing ecosystem of diverse education options. The initial pandemic-era effort to launch these microschools was documented in a case study published by the Center on Reinventing Public Education in 2022. This followup brief revisits the initial case study with an eye toward the pedagogical tensions and questions of sustainability that it brought to light. This brief is based on in-person classroom observations, a new round of interviews with BMF microschool leaders and educators, and an analysis of Arizona's education policy landscape.
- Published
- 2023
37. Disabled Immigrants Face Compounding Barriers to Education and Employment: Insights from an Expert Convening and Future Research Directions
- Author
-
Urban Institute, Dulce Gonzalez, and Paola Echave
- Abstract
Despite growing attention to addressing racial, ethnic, and other inequities in many domains, limited research explores whether and how society's marginalization of people with disabilities compounds for immigrants to produce inequitable financial outcomes. When accessing education and employment, immigrants with disabilities face challenges due to their disability status, citizenship and immigration status, race, ethnicity, and language. This summary highlights key takeaways from a convening of nine experts from universities, research organizations, and community organizations knowledgeable about the intersection of immigration and disability. The goal of the meeting was to identify barriers to financial well-being among immigrants with disabilities in education and employment. Participants discussed how the Protection and Advocacy systems (P&As), which provide legal representation and advocacy for people with disabilities, can help better inform this population of their rights as disabled people and how community-based organizations (CBOs) can bridge gaps in access to education and employment supports. The summary concludes with directions for future research. [Additional funding provided by the Capital One Foundation.]
- Published
- 2023
38. 2023 State Legislative Session Highlights for Public Charter Schools
- Author
-
National Alliance for Public Charter Schools
- Abstract
In 2023, charter school advocates continued to make legislative gains in statehouses across the country. These gains were made in red, blue, and purple states, oftentimes in ways that showed bipartisan support for charter schools remains firmly in place. In looking at the results of this year's legislative sessions across the country, four developments in particular stand out. First, in perhaps the biggest win this year, Montana became the 46th state to enact a charter school law. Second, charter school advocates notched an unusually large number of major wins on funding and facilities legislation, with especially significant progress in Ohio, Indiana, Wisconsin, Colorado, and Wyoming. Third, charter school supporters opened the door to new types of authorizers in several states, including in Montana (new state authorizer), Nevada (cities and counties), North Carolina (new state authorizer), Oklahoma (new state authorizer, more types of universities, and accredited private institutions of higher learning), Utah (private institutions of higher education), and Wyoming (new state authorizer). Fourth, charter school supporters successfully played successful defense on anti-charter school efforts in several states, with three of the most notable defensive victories in blue states. In New Mexico, the Senate Education Committee voted down a charter school moratorium bill that was proposed by the Senate President Pro Tempore by a 7-1 margin. The bill would not have allowed any more charter schools in school districts where 20% of the students already attend a charter school. In California, Governor Newsom vetoed a bill that would have made harmful changes to the Charter School Facility Grant program and unnecessarily raise facilities cost for charter schools that want to establish or expand in low-income communities across the state. In Michigan, the legislature reversed a 20% cut to the funding of virtual charter schools proposed by the governor and instead level funded these schools. This report provides highlights from this year's state legislative activity across the country, organized into the following categories: funding and facilities, authorizing and accountability, other issues, no law states, and harmful legislation.
- Published
- 2023
39. Guidance Note: Facilities and Infrastructure. Version 1.0
- Author
-
Australian Government Tertiary Education Quality and Standards Agency (TEQSA)
- Abstract
In the context of the Higher Education Standards Framework 2021, facilities and infrastructure refer to the resources used for educational and research purposes, with 'facilities' referring to the learning environments, including both physical and digital learning environments, intended to promote and facilitate the learning outcomes and educational activities of students and staff and 'infrastructure' referring to both physical and digital resources such as classrooms, lecture theatres, internet, e-learning/digital platforms and laboratories used by students and staff. The purpose of the relevant standards is to ensure: (1) facilities and infrastructure are fit for purpose; (2) students and staff have access to digital information and communication services; and (3) a supportive, safe, and inclusive learning environment. This report discusses these standards and the issues of facilities and infrastructure in Australian higher education.
- Published
- 2023
40. How to Help States and School Districts Leverage Federal Medicaid Funding: A Guide for School Health Advocates. Healthy Students, Promising Futures
- Author
-
Healthy Schools Campaign
- Abstract
In May 2023, the Centers for Medicare and Medicaid Services (CMS) released new guidance on school Medicaid that is a clear victory for school health and student health. It affirms that states have flexibility in their school-based Medicaid program to allow school districts to bill Medicaid for health services delivered to all Medicaid-enrolled children, not just students with a special education plan such as an Individualized Education Plan (IEP) or Individualized Family Service Plan (IFSP). The Guide offers pathways states can take to leverage Medicaid funding -- all of which are designed to improve efficiency and reduce administrative barriers -- so more school districts can access sustainable funds for school-based healthcare, including mental health services. This brief answers key questions about the new guidance and highlights what policymakers and advocates need to know -- and how to get involved -- to ensure states are best positioned to leverage federal opportunities so more children have access to the services they need.
- Published
- 2023
41. IDRA Newsletter. Volume 50, No. 8
- Author
-
Intercultural Development Research Association (IDRA)
- Abstract
The "IDRA Newsletter" serves as a vehicle for communication with educators, school board members, decision-makers, parents, and the general public concerning the educational needs of all children across the United States. The focus of this issue is "Cultural Connections in Schooling." Contents include: (1) A Defining Moment for IDRA's Founder; (2) Students Advocate Culturally-Rich Education (Aurelio M. Montemayor); (3) IDRA School Resource Hub Provides Tools for Teaching about Race and Gender (Christie L. Goodman); and (4) Texas Legislative Education Equity Coalition Policy and Advocacy in 2023 (Rebekah Skelton).
- Published
- 2023
42. Sharing the Work: Using Diversity Advocates to Develop Inclusive Excellence
- Author
-
Barbara King, Caroline E. Simpson, Suzanna M. Rose, Sanaz Farhangi, and Kirsten E. Wood
- Abstract
Administrators and faculty at many colleges and universities are dedicated to making the faculty hiring process fair and equitable. One program that has shown promise is to train and appoint a Diversity Advocate (DA) to serve on each faculty search and screen committee. In this study, we created and examined the early stages of a DA program at a single institution. After undergoing special training, the DA works on the search committee to encourage best practices and to discourage schemas and stereotypes from interfering with the process. Our DA program differs from some in that efforts are made to train DAs who are demographically in the majority, work in the area where the search is taking place, and have earned tenure or promotion. Training those who are demographically in the majority helps meet our goal of broadening the responsibility for evidence-based and equitable hiring practices across faculty members. While reliable data on hiring outcomes is not yet available, we developed a survey to evaluate the DA training and conducted focus groups to understand the DA experience better. Our results highlight how DAs intervened in the search process to make it more equitable. The interventions included encouraging the use of best practices, such as leading the committee in creating a rubric for evaluating candidates and intervening when bias was present. Our study provides evidence that a DA program is one way to expand the pool of faculty committed to inclusive excellence.
- Published
- 2024
- Full Text
- View/download PDF
43. Wage Disparities in Academia for Engineering Women of Color and the Limitations of Advocacy and Agency
- Author
-
Ebony McGee, Monica F. Cox, Joyce B. Main, Monica L. Miles, and Meseret F. Hailu
- Abstract
The devaluation of women of Color (WoC) by way of gender discrimination and systemic racism is well documented. For WoC in engineering a chief cause is the observable wage gap. Women who identify as Asian, Black/African American, Latina/Chicana, Indigenous/Native American, Native Hawaiian, Pacific Islander, Native Alaskan, and/or multiracial have reported stark wage disparities. In this paper, we offer a phenomenological study of how WoC engineering faculty across U.S. academic institutions describe the challenges and practices associated with wage disparities and how they navigate these disparities. This study, which is based on participant interviews, is guided by three research questions: (1) What do WoC engineering tenure-track faculty perceive about wage disparities based on their race and gender? (2) How do WoC faculty understand the institutional practices that contribute to wage disparities? and (3) How do WoC engineering faculty respond to and address wage disparities? Using structural racism and intersectionality as our guiding conceptual framework, we interviewed 32 self-identified WoC who identified structures and systems of institutional racism related to the maintenance of wage disparities. In terms of findings, we note that WoC have two primary strategies to respond to wage disparity: advocacy and agency. The experiences of WoC engineering faculty in our study highlight unsatisfying institutional responses, and thus WoC often rely on their own agency to advocate for themselves and to advocate for and mentor other WoC faculty. We found a few notable cases where men advocated for women to help close the wage gap. Our work reveals that pay inequity for WoC is often coupled with other forms of exclusion and marginalization. Reducing wage disparities in academia is critical to advancing diversity efforts and ensuring equitable support for WoC faculty. Our findings suggest that institutions can work diligently to rectify wage inequality, including making sustainable structural and salary modifications and sharing the burden of combatting wage inequities. Finally, our findings also highlight the importance of making policy changes to reduce pay inequalities, such as providing transparent pay information and more opportunities to earn merit raises.
- Published
- 2024
- Full Text
- View/download PDF
44. Mindfulness in Education: Critical Debates and Pragmatic Considerations
- Author
-
Winky Lee, Christopher T. McCaw, and Nicholas T. Van Dam
- Abstract
Mindfulness has all but become a mainstay in modern education. Yet despite the incredible enthusiasm and increased application in schools, there remains significant divergence between advocates and critics. Advocates assert that mindfulness practice promotes individual and societal health and well-being. Meanwhile, critics question the intention and the social and political implications of promoting these ancient practices in schools, arguing that the Buddhist ethics underlying mindfulness remain incompatible with the neoliberal ideology and instrumentalism of contemporary schooling. As mindfulness has been commodified, instrumentalised and used as a therapeutic tool for acute coping, its broader potential for human growth and development may be undermined. Furthermore, scholars caution that the fledging nature of mindfulness research leaves critical questions unanswered, especially the potential for adverse effects. The work herein examines these critiques, presenting "three" critical considerations for mindfulness in education, and articulates practical recommendations for educational leaders, policy makers and stakeholders. We aim to empower educators and others to make judgements about the promotion and integration of mindfulness into educational settings, considering context-specific factors such as developmental needs and capacities, as well as recommendations to support effective and ethical practice of mindfulness in education.
- Published
- 2024
- Full Text
- View/download PDF
45. Social Justice and Public Policy: Learning from School and Counseling Psychologists
- Author
-
Laura Anne Winter, Maureen Wood, and David Shriberg
- Abstract
For applied psychologists, the goal is to promote positive outcomes among the individuals and groups they serve. Psychological practice takes place within a real-world context, including societal conditions that both harm and support children. Within school and counseling psychology, growing recognition of the impact of society on children has led to efforts to identify social justice as a key framework and set of strategies. Despite the obvious impact of public policy on the lives of children, there is very limited research on pathways and experiences of counseling and school psychologists who are involved in public policy efforts in their capacity as psychologists. This study addresses this gap, interviewing eighteen individuals across the United Kingdom and United States. Key findings include the importance of cultural responsiveness, professional development opportunities, and building and sustaining relationships. Several implications for future research and practice are provided, highlighting the need for multidisciplinary collaboration among those engaged in public policy and social justice efforts.
- Published
- 2024
- Full Text
- View/download PDF
46. Queer Allyship in TESOL: We Need to ACTS Now!
- Author
-
Ethan Trinh
- Abstract
Building queer allyship is an in-the-making, incomplete, and situated process in and beyond TESOL. In this article, I propose that the concept of "queer allyship" is not a conceptual but practical and calling-for-action approach on an everyday life basis. Queer "a"llyship describes allies who work together to challenge "c"ommon heteronormative and cisgender assumptions of oneself to "t"hink queer and provoke actions in relational "s"ystems of support (ACTS). In this article, I invite the readers to think queer with me about the missing aspect of queer allyship in TESOL, address the importance of doing this work, and offer some queer considerations for teachers and administrators to try in their own spaces. I conclude the article by acknowledging two things. One, everyone can queer their own thinking and actions; therefore, everyone can be queers themselves. Two, doing queer allyship work should not be the sole responsibility of anyone -- it is ecological work, which demands collective and communal care "for and with" all students and teachers.
- Published
- 2024
- Full Text
- View/download PDF
47. Growing OkraOut: A Case Study--'Lessons from 5 Years of Collaborative Design, Development, and Implementation While Building an LGBTQ+ Library Outreach Program'
- Author
-
Afton Fawn Ussery and Sofiya Petrova Dahman
- Abstract
In the past five years, Delta State University's academic library has made significant efforts to develop sustainable outreach programs that support the LGBTQ+ (Lesbian, Gay, Bisexual, Transgender, Queer+) community. This program has increased the library's visibility and enhanced its image among its students, faculty, and staff. The article describes the outreach program's effort, and the collected data will provide a framework for others interested in designing and hosting such programs, including adaptability during the COVID-19 pandemic.
- Published
- 2024
- Full Text
- View/download PDF
48. Impartiality, Human Rights Advocacy, and Teaching about Politically Sensitive Issues: Squaring the Circle
- Author
-
Bruce Maxwell
- Abstract
This article first describes and then proposes a practical solution to the professional dilemma between the duty of impartiality and the duty of human rights advocacy that many teachers experience when teaching and talking about politically sensitive issues with students. The article begins by presenting an analysis of the source and signification of the tension between impartiality and human rights advocacy based on evidence from research on teachers' perspectives, the conceptual literature on teaching and learning about controversial issues, and the legal and ethical framework of education. Then, drawing on scholarship on respect for students' right to freedom of religion, the article advances and defends set of basic pedagogical guidelines for teaching and talking about politically sensitive issues that permit teachers to maintain a professional stance of impartiality without abrogating their responsibility to act as human rights advocates. Key to squaring the circle between impartiality and human rights advocacy, the article argues, is for teachers to strive to remain descriptive in their treatment of politically sensitive issues and insist on high standards of reasoning and evidence while at the same time respecting students' right to an opinion, no matter how mistaken that opinion may seem.
- Published
- 2024
- Full Text
- View/download PDF
49. Gateways and Anchor Points: The Use of Frames to Amplify Marginalized Voices in Disability Policy Deliberations
- Author
-
Sean Kamperman
- Abstract
This essay analyzes the rhetorical framing tactics of a group of disability activists to understand how they use key words, topic shifts, and other framing maneuvers to amplify marginalized voices in public debates. Focusing on a town hall meeting and a legislator update meeting between activists and lawmakers, the author uses "stasis" theory to analyze how these maneuvers (1) create gateways for marginalized voices to enter the discussion and (2) anchor deliberations around topics of importance to the disabled community. This suggests a more complex role for framing in face-to-face deliberative contexts than studies of framing strategies in written texts have traditionally considered. I argue that a multidimensional view of framing uniting consideration of word choice with attention to interactive dynamics is necessary to appreciate how framing maneuvers can not only shape the content of debates but amplify the voices of people excluded by the tacit rules of democratic deliberation.
- Published
- 2024
- Full Text
- View/download PDF
50. What Do Parents of Nonverbal and Minimally Verbal Autistic Children Think about Genomic Autism Research?
- Author
-
Kathryn Asbury, Umar Toseeb, and Naomi Barrow
- Abstract
Concerns have been raised about genomic studies of autism. Most recently, the Spectrum 10 K study was paused due to criticism from the autistic community. This situation raised important questions about how the autistic and autism communities perceive genomic research. The Personal Experiences of Autism and Perceptions of DNA-based-research study was established to address this issue. Twenty parents of nonverbal or minimally verbal autistic children took part in the current study. Data were provided in diverse formats including online interviews, telephone interviews, and writing. This approach was co-produced with autistic experts by experience. Data were analysed using reflexive Thematic Analysis. We found that participants were supportive of autism research, including some genomic research, if it is designed to support autistic people and is ethical and transparent. However, while some believed that polygenic scores, genomic predictors of the statistical probability of being autistic, would be helpful, others argued that this would only be true in an ideal world. Participants felt that they and their children were often excluded from, and unrepresented by, the autistic and autism communities. We conclude that genomic researchers need to work with the autistic and autism communities to design future work, and that it is important to ensure a representative range of voices are heard.
- Published
- 2024
- Full Text
- View/download PDF
Catalog
Discovery Service for Jio Institute Digital Library
For full access to our library's resources, please sign in.