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2. Typology of Mental Health Peer Support Work Components: Systematised Review and Expert Consultation

Author

Kotera, Yasuhiro, Newby, Christopher, Charles, Ashleigh, Ng, Fiona, Watson, Emma, Davidson, Larry, Nixdorf, Rebecca, Bradstreet, Simon, Brophy, Lisa, Brasier, Catherine, Simpson, Alan, Gillard, Steve, Puschner, Bernd, Kidd, Sean A., Mahlke, Candelaria, Sutton, Alex J., Gray, Laura J., Smith, Ellesha A., Ashmore, Alison, Pomberth, Scott, and Slade, Mike

Published
2023
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4. Effect of digital psychoeducation and peer support on the mental health of family carers supporting individuals with psychosis in England (COPe-support): a randomised clinical trial

Author

Sin, Jacqueline, Henderson, Claire, Elkes, Jack, Cornelius, Victoria, Woodham, Luke A, Batchelor, Rachel, Chen, Tao, Corredor, Ana Maria, Coughlan, David, Dhital, Ranjita, Evans, Sian, Haider, Ban, Heathcote, Julia, Mansfield, Sarah, O'Brien, Aileen, Qassim, Mona, Sserunkuma, Juliet, Travis, Clive H, Williams, Elen, and Gillard, Steve

Published
2022
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6. Peer support for discharge from inpatient mental health care versus care as usual in England (ENRICH): a parallel, two-group, individually randomised controlled trial

Author

Gillard, Steve, Bremner, Stephen, Patel, Akshaykumar, Goldsmith, Lucy, Marks, Jacqueline, Foster, Rhiannon, Morshead, Rosaleen, White, Sarah, Gibson, Sarah L, Healey, Andrew, Lucock, Mike, Patel, Shalini, Repper, Julie, Rinaldi, Miles, Simpson, Alan, Ussher, Michael, Worner, Jessica, and Priebe, Stefan

Published
2022
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7. Evaluating mental health decision units in acute care pathways (DECISION): a quasi-experimental, qualitative and health economic evaluation

Author

Gillard, Steve, primary, Anderson, Katie, additional, Clarke, Geraldine, additional, Crowe, Chloe, additional, Goldsmith, Lucy, additional, Jarman, Heather, additional, Johnson, Sonia, additional, Lomani, Jo, additional, McDaid, David, additional, Pariza, Paris, additional, Park, A-La, additional, Smith, Jared, additional, Turner, Kati, additional, and Yoeli, Heather, additional

Published
2023
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8. Peer support for discharge from inpatient to community mental health care: the ENRICH research programme

Author

Gillard, Steve, primary, Foster, Rhiannon, additional, White, Sarah, additional, Healey, Andrew, additional, Bremner, Stephen, additional, Gibson, Sarah, additional, Goldsmith, Lucy, additional, Lucock, Mike, additional, Marks, Jacqueline, additional, Morshead, Rosaleen, additional, Patel, Akshaykumar, additional, Patel, Shalini, additional, Repper, Julie, additional, Rinaldi, Miles, additional, Simpson, Alan, additional, Ussher, Michael, additional, Worner, Jessica, additional, and Priebe, Stefan, additional

Published
2023
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10. Pragmatic, feasibility randomized controlled trial of a recorded mental health recovery narrative intervention: narrative experiences online intervention for informal carers (NEON-C).

Author

Ng, Fiona, Rennick-Egglestone, Stefan, Onwumere, Juliana, Newby, Christopher, Llewellyn-Beardsley, Joy, Yeo, Caroline, Ali, Yasmin, Pollock, Kristian, Kotera, Yasuhiro, Pomberth, Scott, Gavan, Sean P., van der Krieke, Lian, Robotham, Dan, Gillard, Steve, Thornicroft, Graham, and Slade, Mike

Subjects
MENTAL health, MENTAL illness
Abstract

Introduction: Informal carers of people with mental health problems often have unmet support needs. Mental health recovery narratives are increasingly accessible, but their relevance to and effect on informal carers have been minimally investigated. The Narrative Experiences Online (NEON) Intervention is a first-in-field intervention that provides informal carers with access to a diverse collection of recorded mental health recovery narratives. This trial aimed to examine the feasibility and acceptability of the NEON Intervention for informal carers. Methods: This study involved a two-arm feasibility randomized controlled trial. Carers were randomly assigned to receiving versus not receiving the NEON Intervention. The feasibility aspects investigated included the acceptability of the intervention and of randomization, trial processes, engagement rates, recruitment procedures, attrition, sample size estimation, identification of candidate primary and secondary outcomes, and the feasibility of conducting a definitive trial. A qualitative process evaluation was conducted. Findings: A total of 121 carers were eligible, of whom 54 were randomized (intervention: 27, control: 27). Twelve-month follow-up data were available for 36 carers. Carers accessed a mean of 25 narratives over a 12-month period, and the intervention group, compared with the control group, reported a small effect on hope and a moderate effect on the presence of meaning in life. Five modifications were recommended to improve the user experience, applicability, and trial processes. Discussion: The NEON Intervention is feasible and acceptable. Significant refinement of the NEON Intervention and trial processes is required to personalize and ensure applicability to carers. Further feasibility testing is recommended prior to a definitive trial. [ABSTRACT FROM AUTHOR]

Published
2024
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14. Effectiveness and cost‐effectiveness of online recorded recovery narratives in improving quality of life for people with non‐psychotic mental health problems: a pragmatic randomized controlled trial

Author

Slade, Mike, Rennick‐Egglestone, Stefan, Elliott, Rachel A., Newby, Chris, Robinson, Clare, Gavan, Sean P., Paterson, Luke, Ali, Yasmin, Yeo, Caroline, Glover, Tony, Pollock, Kristian, Callard, Felicity, Priebe, Stefan, Thornicroft, Graham, Repper, Julie, Keppens, Jeroen, Smuk, Melanie, Franklin, Donna, Walcott, Rianna, Harrison, Julian, Smith, Roger, Robotham, Dan, Bradstreet, Simon, Gillard, Steve, Cuijpers, Pim, Farkas, Marianne, Zeev, Dror Ben, Davidson, Larry, Kotera, Yasuhiro, Roe, James, Ng, Fiona, and Llewellyn‐Beardsley, Joy

Abstract

Narratives describing first‐hand experiences of recovery from mental health problems are widely available. Emerging evidence suggests that engaging with mental health recovery narratives can benefit people experiencing mental health problems, but no randomized controlled trial has been conducted as yet. We developed the Narrative Experiences Online (NEON) Intervention, a web application providing self‐guided and recommender systems access to a collection of recorded mental health recovery narratives (n=659). We investigated whether NEON Intervention access benefited adults experiencing non‐psychotic mental health problems by conducting a pragmatic parallel‐group randomized trial, with usual care as control condition. The primary endpoint was quality of life at week 52 assessed by the Manchester Short Assessment (MANSA). Secondary outcomes were psychological distress, hope, self‐efficacy, and meaning in life at week 52. Between March 9, 2020 and March 26, 2021, we recruited 1,023 participants from across England (the target based on power analysis was 994), of whom 827 (80.8%) identified as White British, 811 (79.3%) were female, 586 (57.3%) were employed, and 272 (26.6%) were unemployed. Their mean age was 38.4±13.6 years. Mood and/or anxiety disorders (N=626, 61.2%) and stress‐related disorders (N=152, 14.9%) were the most common mental health problems. At week 52, our intention‐to‐treat analysis found a significant baseline‐adjusted difference of 0.13 (95% CI: 0.01‐0.26, p=0.041) in the MANSA score between the intervention and control groups, corresponding to a mean change of 1.56 scale points per participant, which indicates that the intervention increased quality of life. We also detected a significant baseline‐adjusted difference of 0.22 (95% CI: 0.05‐0.40, p=0.014) between the groups in the score on the “presence of meaning” subscale of the Meaning in Life Questionnaire, corresponding to a mean change of 1.1 scale points per participant. We found an incremental gain of 0.0142 quality‐adjusted life years (QALYs) (95% credible interval: 0.0059 to 0.0226) and a £178 incremental increase in cost (95% credible interval: –£154 to £455) per participant, generating an incremental cost‐effectiveness ratio of £12,526 per QALY compared with usual care. This was lower than the £20,000 per QALY threshold used by the National Health Service in England, indicating that the intervention would be a cost‐effective use of health service resources. In the subgroup analysis including participants who had used specialist mental health services at baseline, the intervention both reduced cost (–£98, 95% credible interval: –£606 to £309) and improved QALYs (0.0165, 95% credible interval: 0.0057 to 0.0273) per participant as compared to usual care. We conclude that the NEON Intervention is an effective and cost‐effective new intervention for people experiencing non‐psychotic mental health problems.

Published
2024
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20. Predictors of engagement with peer support: analysis of data from a randomised controlled trial of one-to-one peer support for discharge from inpatient psychiatric care

Author

White, Sarah, primary, Bhattacharya, Rahul, additional, Bremner, Stephen, additional, Faulkner, Alison, additional, Foster, Rhiannon, additional, Gibson, Sarah, additional, Goldsmith, Lucy, additional, Harnett, Daniella, additional, Patel, Akshaykumar, additional, Priebe, Stefan, additional, Repper, Julie, additional, Rinaldi, Miles, additional, Salla, Anthony, additional, Simpson, Alan, additional, Ussher, Michael, additional, and Gillard, Steve, additional

Published
2023
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24. Peer support for discharge from inpatient mental health care – Authors' reply

Author

Gillard, Steve, primary, Barlow, Sally, additional, Bremner, Stephen, additional, Foster, Rhiannon, additional, Gibson, Sarah, additional, Goldsmith, Lucy, additional, Healey, Andrew, additional, Lucock, Mike, additional, Marks, Jacqueline, additional, Patel, Akshaykumar, additional, Patel, Shalini, additional, Priebe, Stefan, additional, Rinaldi, Miles, additional, Simpson, Alan, additional, Ussher, Michael, additional, and White, Sarah, additional

Published
2022
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25. Short-stay crisis units for mental health patients on crisis care pathways: systematic review and meta-analysis

Author

Anderson, Katie, primary, Goldsmith, Lucy P., additional, Lomani, Jo, additional, Ali, Zena, additional, Clarke, Geraldine, additional, Crowe, Chloe, additional, Jarman, Heather, additional, Johnson, Sonia, additional, McDaid, David, additional, Pariza, Paris, additional, Park, A-La, additional, Smith, Jared A., additional, Stovold, Elizabeth, additional, Turner, Kati, additional, and Gillard, Steve, additional

Published
2022
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33. Perceived Acceptability and Experiences of a Digital Psychoeducation and Peer Support Intervention (COPe-support): Interview Study With Carers Supporting Individuals With Psychosis

Author

Batchelor, Rachel, primary, Gulshan, Sarah, additional, Shritharan, Halpana, additional, Williams, Elen, additional, Henderson, Claire, additional, Gillard, Steve, additional, Woodham, Luke A, additional, Cornelius, Victoria, additional, Elkes, Jack, additional, and Sin, Jacqueline, additional

Published
2022
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38. Experiences of peer workers and mental health service users with a peer support intervention: applying and critiquing a behaviour change techniques taxonomy

Author

Marks, Jacqueline, Sriskandarajah, Niromi, May Aurelio, Michaela, Gillard, Steve, Rinaldi, Miles, Foster, Rhiannon, and Ussher, Michael

Subjects
HT, Psychiatry and Mental health, Peer support, Behavioural Change Technique, BF, RA, Qualitative comparative case study
Abstract

Objective\ud There is growing evidence for the benefits of peer support in mental health services. Less is known about the specific mechanisms whereby peer support brings about change. The aim of this study was to explore the experiences of adults using mental health services and peer workers to investigate whether the contents of an intentionally provided one-to-one peer support intervention can be adequately described using a standard taxonomy of behaviour change techniques (BCTs).\ud \ud Method\ud This qualitative comparative case study involved semi-structured interviews with 11 peer workers and 10 people they supported, in 2017–2018. They participated in a randomised controlled trial of a peer support intervention. Data were coded using both an analytical framework, derived from Michie and colleague’s taxonomy of BCTs, and inductive thematic analysis.\ud \ud Results\ud The findings revealed that the intervention included BCTs from all 16 BCT groupings in the taxonomy, with the emphasis on the groupings of ‘social support’, ‘comparison of behaviour’, ‘comparison of outcomes’, ‘regulation’ ‘shaping knowledge’, ‘identity’ and ‘covert learning’. Thematic analysis revealed a new group, ‘relational aspects’, consisting of five new BCTs: sharing of the peer worker’s experiential knowledge; promoting reciprocity, autonomy, and confidentiality; and validation of a safe and trusting relationship.\ud \ud Discussion\ud A standard taxonomy of BCTs was shown to be broadly applicable to describing the contents of an intentional one-to-one peer support intervention for adults using mental health services. The taxonomy may need to be extended to consider additional BCTs related to encouraging the therapeutic relationship.

Published
2021

39. Additional file 5 of Development of a peer support intervention to improve the experience and outcomes of discharge from inpatient mental health care: the role of experiential knowledge in a coproduced approach

Author

Marks, Jacqueline, Foster, Rhiannon, Gibson, Sarah Louise, Simpson, Alan, Rinaldi, Miles, Repper, Julie, Worner, Jessica, Patel, Shalini, Lucock, Mike, Ussher, Michael, White, Sarah, Goldsmith, Lucy, Barlow, Sally, and Gillard, Steve

Subjects
Data_FILES, ComputingMilieux_MISCELLANEOUS
Abstract

Additional file 5. Feedback from intervention pilot workshops.

Published
2021
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40. Additional file 3 of Development of a peer support intervention to improve the experience and outcomes of discharge from inpatient mental health care: the role of experiential knowledge in a coproduced approach

Author

Marks, Jacqueline, Foster, Rhiannon, Gibson, Sarah Louise, Simpson, Alan, Rinaldi, Miles, Repper, Julie, Worner, Jessica, Patel, Shalini, Lucock, Mike, Ussher, Michael, White, Sarah, Goldsmith, Lucy, Barlow, Sally, and Gillard, Steve

Abstract

Additional file 3. Flow diagram used for walkthrough exercise in second round of Local Advisory Groups.

Published
2021
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41. Additional file 4 of Development of a peer support intervention to improve the experience and outcomes of discharge from inpatient mental health care: the role of experiential knowledge in a coproduced approach

Author

Marks, Jacqueline, Foster, Rhiannon, Gibson, Sarah Louise, Simpson, Alan, Rinaldi, Miles, Repper, Julie, Worner, Jessica, Patel, Shalini, Lucock, Mike, Ussher, Michael, White, Sarah, Goldsmith, Lucy, Barlow, Sally, and Gillard, Steve

Abstract

Additional file 4. The ENRICH training matrix.

Published
2021
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42. Additional file 2 of Development of a peer support intervention to improve the experience and outcomes of discharge from inpatient mental health care: the role of experiential knowledge in a coproduced approach

Author

Marks, Jacqueline, Foster, Rhiannon, Gibson, Sarah Louise, Simpson, Alan, Rinaldi, Miles, Repper, Julie, Worner, Jessica, Patel, Shalini, Lucock, Mike, Ussher, Michael, White, Sarah, Goldsmith, Lucy, Barlow, Sally, and Gillard, Steve

Subjects
Data_FILES, ComputingMilieux_MISCELLANEOUS
Abstract

Additional file 2. Candidate components for the peer support intervention.

Published
2021
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43. Balancing closeness and distance through identity enactment: Psychological therapy assessments explored through the assessor-client dyad.

Author

Sweeney, Angela, Kelly, Katie, Kennedy, Angela, Clement, Sarah, Ion, Mary, Kothari, Gemma, and Gillard, Steve

Subjects
PSYCHOTHERAPY, PSYCHOLOGICAL tests, DYADS, THEMATIC analysis, HUMAN beings
Abstract

Whilst encounters in psychology are typically experienced relationally, qualitative dyadic research in psychology is relatively rare. This study used qualitative dyadic research to understand psychological therapy assessments, exploring how experiences are actively created through situated, relational encounters. Seven dyads participated in qualitative semi-structured interviews, predominantly from services for trauma survivors. Thematic dyadic analysis explored a third space, distinct from the experiential knowledge of individuals. We found that clients and assessors balance closeness and distance through enacting aspects of their identities impacting on connection, safety, trust and disclosures. Whilst assessors and clients come together as strangers, human beings, experts, collaborators and, at times, survivors, the key determining factor shaping the encounter is how successfully assessors communicate their humanity. We conclude that dyadic qualitative inquiry is a feasible and rich method for understanding the relational in psychological healthcare encounters. [ABSTRACT FROM AUTHOR]

Published
2022
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45. Peer support in early intervention in psychosis: a qualitative research study.

Author

Nguyen, Jen, Goldsmith, Lucy, Rains, Luke Sheridan, and Gillard, Steve

Subjects
AFFINITY groups, ATTITUDES toward mental illness, SOCIAL support, PSYCHOSES, RESEARCH methodology, WORK, EMPLOYEE recruitment, INTERVIEWING, SOCIAL stigma, QUALITATIVE research, HOPE, TREATMENT effectiveness, EXPERIENTIAL learning, DESCRIPTIVE statistics, JUDGMENT sampling, THEMATIC analysis, EARLY medical intervention
Abstract

There is evidence that peer support can be helpful for people suffering from psychosis, but there is a lack of research describing peer support in the context of Early Intervention in Psychosis (EIP). We aim to investigate the key elements of peer support in EIP and how peer support workers might best be recruited and supported in their work. We used purposive sampling to recruit seven participants for semi-structured interviews. Thematic analysis was used to analyse the data. Destigmatisation of psychotic experiences is a central concept that runs through all themes. Participants perceived peer support as a meaningful source of support that could provide benefits to peers (service users) and peer support workers. Themes included a "symbol of hope," "practical support," "mutuality and reciprocity," "bridge between service and peers," "ideal requirements of peer support workers," "delivering peer support," and "team-working and role clarification." Peer support makes a strong contribution to destigmatising psychosis. Findings potentially contribute to developing peer support workers' roles in EIP. Future research is recommended to investigate the perspectives of ethnic minorities on this topic and practical applications of these findings. [ABSTRACT FROM AUTHOR]

Published
2022
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47. The psychiatric decision unit as an emerging model in mental health crisis care: a national survey in England

Author

Goldsmith, Lucy P., primary, Anderson, Katie, additional, Clarke, Geraldine, additional, Crowe, Chloe, additional, Jarman, Heather, additional, Johnson, Sonia, additional, Lloyd‐Evans, Brynmor, additional, Lomani, Jo, additional, McDaid, David, additional, Park, A‐La, additional, Smith, Jared A., additional, Turner, Kati, additional, and Gillard, Steve, additional

Published
2021
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48. Perceived Acceptability and Experiences of a Digital Psychoeducation and Peer Support Intervention (COPe-support): Interview Study With Carers Supporting Individuals With Psychosis (Preprint)

Author

Batchelor, Rachel, primary, Gulshan, Sarah, additional, Shritharan, Halpana, additional, Williams, Elen, additional, Henderson, Claire, additional, Gillard, Steve, additional, Woodham, Luke A, additional, Cornelius, Victoria, additional, Elkes, Jack, additional, and Sin, Jacqueline, additional

Published
2021
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50. Early impacts of the COVID-19 pandemic on mental health care and on people with mental health conditions: framework synthesis of international experiences and responses

Author

Sheridan Rains, Luke, Johnson, Sonia, Barnett, Phoebe, Steare, Thomas, Needle, Justin J., Carr, Sarah, Lever Taylor, Billie, Bentivegna, Francesca, Edbrooke-Childs, Julian, Scott, Hannah Rachel, Rees, Jessica, Shah, Prisha, Lomani, Jo, Chipp, Beverley, Barber, Nick, Dedat, Zainab, Oram, Sian, Morant, Nicola, Simpson, Alan, Papamichail, Alexia, Moore, Anna, Jeffery, Annie, De Estrada, Blanca Sanz-Magallón Duque, Hallam, Brendan, Lloyd-Evans, Brynmor, Contreras, Carolina Yanez, Serna, Celia Esteban, Ntephe, Chukwuma, Lamirel, Daphne, Cooke, Eleanor, Pearce, Eiluned, Lemmel, Frederike, Koutsoubelis, Freya, Cragnolini, Guendalina, Harju-Seppänen, Jasmine, Wang, Jingyi, Botham, Joseph, Abdou, Karima, Krause, Karolin, Turner, Kati Jane, Poursanidou, Konstantina, Gruenwald, Lisa, Jagmetti, Louisa, Mazzocchi, Lucia, Tomaskova, Magdalena, Montagnese, Marcella, Mahé, Mélanie, Schlief, Merle, Günak, Mia Maria, Leverton, Monica, Lyons, Natasha, Vera, Norha, Gao, Qian, Griffiths, Raza, Lane, Rebecca, Busato, Riccardo, Ledden, Sarah, Mac-Ginty, Scarlett, Hardt, Selina, Orlando, Sofia, Gillard, Steve, Jeynes, Tamar, Ondrušková, Tamara, Stefanidou, Theodora, Foye, Una, Tzouvara, Vasiliki, and Cavero, Victoria

Subjects
Health (social science), Social Psychology, Epidemiology, media_common.quotation_subject, BF, Service user experiences, Peer support, Health(social science), 03 medical and health sciences, 0302 clinical medicine, RA0421, Framework synthesis mental health services, Pandemic, medicine, Humans, 030212 general & internal medicine, Social isolation, Pandemics, media_common, QR355, Original Paper, SARS-CoV-2, business.industry, Mental Disorders, Stakeholder, COVID-19, Loneliness, Public relations, Mental health, 030227 psychiatry, Coronavirus, Psychiatry and Mental health, Mental Health, RC0321, Professional association, Psychological resilience, medicine.symptom, Psychology, business
Abstract

Purpose The COVID-19 pandemic has many potential impacts on people with mental health conditions and on mental health care, including direct consequences of infection, effects of infection control measures and subsequent societal changes. We aimed to map early impacts of the pandemic on people with pre-existing mental health conditions and services they use, and to identify individual and service-level strategies adopted to manage these. Methods We searched for relevant material in the public domain published before 30 April 2020, including papers in scientific and professional journals, published first person accounts, media articles, and publications by governments, charities and professional associations. Search languages were English, French, German, Italian, Spanish, and Mandarin Chinese. Relevant content was retrieved and summarised via a rapid qualitative framework synthesis approach. Results We found 872 eligible sources from 28 countries. Most documented observations and experiences rather than reporting research data. We found many reports of deteriorations in symptoms, and of impacts of loneliness and social isolation and of lack of access to services and resources, but sometimes also of resilience, effective self-management and peer support. Immediate service challenges related to controlling infection, especially in inpatient and residential settings, and establishing remote working, especially in the community. We summarise reports of swiftly implemented adaptations and innovations, but also of pressing ethical challenges and concerns for the future. Conclusion Our analysis captures the range of stakeholder perspectives and experiences publicly reported in the early stages of the COVID-19 pandemic in several countries. We identify potential foci for service planning and research.

Published
2020
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