46 results on '"Guassora AD"'
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2. Developing and maintaining patients' trust during general practice consultations: the case of smoking cessation advice.
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Guassora AD and Gannik D
- Abstract
OBJECTIVE: The aim of this paper is to describe how the process of developing and maintaining trust is related to how and if smoking cessation advice is given in general practice consultations. METHODS: The study consisted of interviews with six Danish GPs and with 11 of their patients, on the basis of observations of their consultations. RESULTS: According to the findings of this study, both the GPs and the patients expected GPs to demonstrate in interaction with the patients their intent to evaluate and possibly resolve the patient's health problem. The GPs were also expected to show that they recognized the patient's health problem. Both GPs and patients felt that this would help to develop patients' trust in their GPs. Smoking cessation advice during consultations could negate these demonstrations of GPs intents. Smoking cessation advice, however, could demonstrate interest and a desire to help and so develop trust. CONCLUSION: Smoking cessation advice has the potential both to put trust under strain and to strengthen trust. The outcome depends on whether the advice conforms to what both patients and GPs expect from the interaction in general practice consultations. PRACTICE IMPLICATIONS: To develop and maintain patients' trust GPs should consider the specific expectations from the interaction with patients during consultations when giving smoking cessation advice. [ABSTRACT FROM AUTHOR]
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- 2010
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3. Keeping morality out and the GP in. Consultations in Danish general practice as a context for smoking cessation advice.
- Author
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Guassora AD and Tulinius AC
- Abstract
OBJECTIVE: To describe consultations in Danish general practice as a context for a mass strategy of smoking cessation advice. METHODS: The focus of the study was on consultations for health problems that were not related to smoking. Interviews with eleven patients and their six GPs were grounded in observation of their own consultations. RESULTS: Patients and GPs agreed that the GP should adopt an attitude of moral acceptance towards patients. Ideals of moral acceptance of patients in general practice consultations were challenged by the prevailing negative moral values associated with smoking. A general aim of mutuality in the conversation in consultations could not always be achieved in smoking cessation advice. Achieving mutuality was especially a problem when smoking cessation advice was repeated at short intervals. CONCLUSION: Two elements of Danish general practice consultations were challenged by smoking cessation advice to patients without smoking-related illness: the ideal of moral acceptance of patients in general practice consultations held by GPs and patients and the wish for mutuality in the conversation during consultations. PRACTICE IMPLICATIONS: A conversation about smoking based on motivational interviewing would fit in the context of Danish general practice. Relieving the conversation of blocks due to moral implications, however, is still a challenge. [ABSTRACT FROM AUTHOR]
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- 2008
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4. Relationally competent attitudes and actions: a systematic review of general practice literature.
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Hansen C, Guassora AD, Arreskov AB, Davidsen AS, and Overbeck G
- Abstract
Objective: To explore core elements from Teachers' Relational Competence in general practice literature regarding building relationships in consultations, specifying actions doctors take to create and maintain relationship quality with patients. This systematic literature review aims to map and propose a similar framework for the doctor-patient relationship., Background: The doctor-patient relationship, a well-researched yet complex field, often lacks clear descriptions. In recent definitions of patient-centred medicine, the responsibility of this relationship falls on the doctor, though how both relationship and responsibility is enacted needs clarification. Pedagogical literature on the student-teacher relationship provides a framework for relational competence, incorporating the needs and interactions between teacher and student and their alignment with institutional goals., Methods: A systematic review of two databases yielded 1256 hits. After screening, 15 studies were included and assessed. A qualitative synthesis was conducted through iterative and thematic deductive analysis., Results: Four relationally competent attitudes identified were: Attention to emotion, Devotion, Mentalization, and Time-oriented presence. Four relationally competent actions identitfied were: Being open, Attunement, Offering Support, and Using humor. Additionally, Trust and Continued connectedness were found as components of both attitudes and actions., Conclusion: An explanatory framework for professional relational competence for GPs includes concrete actions and specific attitudes before and during consultations. These consist of four key attitudes and four categories of actions with several subgroups of actions. Two additional components to the framework was found.
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- 2024
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5. Physiotherapists' Treatment Strategies and Delineation of Areas of Responsibility for People With Musculoskeletal Conditions and Comorbidities in Private Physiotherapy Practice: A Qualitative Study.
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Lyhnebeck AB, Risør MB, Guassora AD, Andersen JS, and Skou ST
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- Humans, Male, Female, Comorbidity, Adult, Physical Therapy Modalities, Middle Aged, Musculoskeletal Diseases therapy, Musculoskeletal Diseases rehabilitation, Physical Therapists, Qualitative Research, Focus Groups
- Abstract
Background: Patients with multiple chronic conditions, for example, musculoskeletal conditions and comorbidities, often receive inadequate and sometimes even contradictory care. Physiotherapists are well qualified to manage patients with musculoskeletal conditions and comorbidities due to their education and experience with rehabilitation; however, it is unknown which challenges they face when treating these patients., Aim: To identify challenges, treatment strategies, and delineations of areas of responsibility among physiotherapists working in private physiotherapy practice when treating people with musculoskeletal conditions and comorbidities., Methods: Qualitative study using focus group discussions and participant observations of 13 physiotherapists working in Danish private physiotherapy clinics. Grounded theory was applied to guide the analysis., Results: Two major themes emerged from the focus groups and the observations (1) The necessity of adapting management to the patients and their treatment trajectory; (2) The dilemma of overall responsibility for coordinating care. The physiotherapists described different elements of adapting their management, including being challenged on time, taking extra care of the patient, and having to adjust to a fluctuating course of treatment. The dilemma in coordinating care concerned whether the responsibility should lie with the physiotherapist, other healthcare professionals, or the patients, and whether to treat only the condition on the referral or to treat all the conditions the patient had., Conclusion: Physiotherapists use adapted strategies for diagnosing and treating patients with musculoskeletal conditions and comorbidities and are uncertain about the overall responsibility for coordinating care and whether they should focus on the index condition alone or also the other comorbidities the patient has., (© 2024 The Author(s). Musculoskeletal Care published by John Wiley & Sons Ltd.)
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- 2024
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6. Clinical practice enhanced by interdisciplinary theoretical perspectives.
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Malterud K, Reventlow S, and Guassora AD
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- Humans, Female, Self Efficacy, Evidence-Based Practice, General Practice, Parkinson Disease psychology, Parkinson Disease therapy
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Background: Experience-based knowing in general practice includes advanced interpretation of subjective, complex and particular phenomena in a social context. Enabling different metapositions for reflexivity may provide the accountability needed for such knowing to be recognized as evidence-based practice., Objective: To demonstrate and discuss the potential of substantive theories to enhance interpretation of complex challenges in clinical knowing in general practice., Methods: We present a fictional case to demonstrate how interdisciplinary substantive theories, with a relevant and specific match to concrete questions, can situate the clinical interaction at an accountable platform. A female patient with Parkinson's disease consults her GP complaining that the disease is restraining her life and threatening her future. The GP has some new ideas from Bandura's theory of self-efficacy and introduces the patient to strategies for further action., Findings: The case presents an example of how a relevant substantive theory may offer the GP: 1) a sharper focus for achievement: recognising the issues of fear and identity in chronic, progressive illness, 2) a subsequent position for individualized understanding of adequate strategies: encouraging physical and social activity in a well-known context, and 3) an invitation to consider further possibilities: finding ways to alleviate the burden of fear and progressive decline; engaging in joyful living., Implications: General practice knowledge embraces a diversity of sources with different evidence power. The transparency mediated to clinical practice when supported by relevant substantive theories may contribute to recognition of experience-based knowing as evidence-based practice.
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- 2024
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7. Interpersonal contact and altered sensory conditions in video consultation - a qualitative interview study in Danish general practice.
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Kofod FG, Assing Hvidt E, Arreskov AB, and Guassora AD
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- Humans, Denmark, Female, Male, Middle Aged, Adult, Interviews as Topic, Attitude of Health Personnel, Videoconferencing, Referral and Consultation, Video Recording, Qualitative Research, General Practitioners, Physician-Patient Relations, General Practice, Communication
- Abstract
Objective: To explore possible challenges to General Practitioners' (GPs') interpersonal contact with patients in video consultations (VCs), and learn how they change their communication strategies to carry out medical work in a setting with altered sensory conditions., Design, Setting, Subjects: The study included 6 GPs from the Copenhagen area, with different levels of experience of VC. The data consist of 6 interviews with GPs, held in 2021-2022. The semi-structured interviews included playback of a recorded VC between each GP and a patient, inspired by the Video-Stimulated Interview technique. Interviews were transcribed and analyzed using Interpretative Phenomenological Analysis (IPA)., Results: GPs experienced alterations in the sensation of their patients in VCs, and worried about missing something important, including assessing the patient. Generally, GPs felt that interpersonal contact was good enough for the purpose. GPs compensated for altered sensory conditions on video by asking more questions, repeating their advice, and meta-communicating. They used their senses of sight and hearing relatively more in VCs. Compensation also took the form of triage, so that consultations on sensitive topics or with new patients were not selected to take place on video., Conclusion and Implications: By compensating for altered sensory conditions in VCs, GPs can carry out their medical work sufficiently well and sustain the best possible interpersonal contact. Our findings are useful for establishing ways to maintain good interpersonal contact between GPs and patients in VCs.
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- 2024
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8. Adjudications and tinkering with care for socially vulnerable patients with type 2 diabetes in general practice.
- Author
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Guassora AD, Tvistholm N, Kofod FG, A Rogvi S, Wind G, and Christensen U
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- Humans, Family Practice, Health Personnel, Diabetes Mellitus, Type 2 therapy, General Practice
- Abstract
Objective: To analyse the mechanisms at play in the adjudications made by professionals and socially vulnerable patients with type 2 diabetes about their eligibility for care., Design, Setting and Subjects: The study included 14 patients and 10 health professionals in seven general practice surgeries in deprived areas in Greater Copenhagen. The study data consist of 17 semi-structured interviews with patients and 22 with health professionals immediately after observation of 23 consultations. Our analytical approach was inspired by Systematic Text Condensation and the concept of 'candidacy' for access to health care., Results: Adjudications of patients not being candidates for services were common, but we also found that both patients and health professionals worked to align the services to the needs of the patients. This could include using services differently than was intended by the providers or by changing routines to make it easier for patients to use the services. We discuss these processes as 'tinkering'. This usually implies that the best individual solution for the patient is aimed for, and in this study, the best solution sometimes meant not focusing on diabetes., Conclusion: The study adds to existing knowledge about access to services for socially vulnerable patients by demonstrating that both patients and professionals in general practice engage in tinkering processes to make services work.
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- 2024
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9. Conceptualizing negotiation in the clinical encounter - A scoping review using principles from critical interpretive synthesis.
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Nilou FE, Christoffersen NB, Lian OS, Guassora AD, and Broholm-Jørgensen M
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- Humans, Health Personnel, Negotiating, Nursing Care
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Objective: Negotiation as an analytical concept in research about clinical encounters is vague. We aim to provide a conceptual synthesis of key characteristics of the process of negotiation in clinical encounters based on a scoping review., Methods: We conducted a scoping review of relevant literature in Embase, Psych Info, Global Health and SCOPUS. We included 25 studies from 1737 citations reviewed., Results: We found that the process of negotiation is socially situated depending on the individual patient and professional, a dynamic element of the interaction that may occur both tacitly and explicitly at all stages of the encounter and is not necessarily tied to a specific health problem. Hence, negotiation is complex and influenced by both social, biomedical, and temporal contexts., Conclusions: We found that negotiation between patient and health professional occurs at all stages of the clinical encounter. Negotiation is influenced by social, temporal, and biomedical contexts that encompass the social meeting between patient and health professional. We suggest that health professionals strive to be attentive to patients' tacit negotiation practices. This will strengthen the recognition of the patients' actual wishes for their course of treatment which can thus guide the health professionals' recommendations and treatment., Competing Interests: Declaration of Competing Interest The authors declare the following financial interests/personal relationships which may be considered as potential competing interests: Marie Broholm-Jørgensen reports financial support was provided by The Health Foundation (Helsefonden)., (Copyright © 2024 The Authors. Published by Elsevier B.V. All rights reserved.)
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- 2024
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10. "It Is a Full-time Job to Be Ill": Patient Work Involved in Attending Formal Diabetes Care Among Socially Vulnerable Danish Type 2 Diabetes Patients.
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Rogvi SÁ, Guassora AD, Tvistholm N, Wind G, and Christensen U
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- Denmark epidemiology, Employment, Health Services, Humans, Self Care, Diabetes Mellitus, Type 2 epidemiology
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Previous research has shown social inequality in type 2 diabetes prevalence and that socially vulnerable type 2 diabetes patients benefit less than average from health services. Based on ethnographic fieldwork carried out between February 2017 and March 2018 in a Danish specialized outpatient clinic, this article focuses on patient work among socially vulnerable type 2 diabetes patients. Through attending to the border zone between formal health care and self-care, we show that patients do a lot of work requiring skills, resources, and initiative, to access and benefit from formal care. This work is complex and implicit in the organization of care. Patients' social situations, especially their employment situation, complicate getting patient work done. Attending to patient work and implicit tasks in care organization may help us to see how social inequality in type 2 diabetes outcomes develops, and may be combated.
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- 2021
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11. Guidance for Implementing Video Consultations in Danish General Practice: Rapid Cycle Coproduction Study.
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Sandbæk A, Christensen LD, Larsen LL, Primholdt Christensen N, Kofod FG, Guassora AD, Merrild CH, and Assing Hvidt E
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Background: The COVID-19 pandemic has changed various spheres of health care. General practitioners (GPs) have widely replaced face-to-face consultations with telephone or video consultations (VCs) to reduce the risk of COVID-19 transmission. Using VCs for health service delivery is an entirely new way of practicing for many GPs. However, this transition process has largely been conducted with no formal guidelines, which may have caused implementation barriers. This study presents a rapid cycle coproduction approach for developing a guide to assist VC implementation in general practice., Objective: The aim of this paper is to describe the developmental phases of the VC guide to assist general practices in implementing VCs and summarize the evaluation made by general practice users., Methods: The development of a guide for VC in general practice was structured as a stepped process based on the coproduction and prototyping processes. We used an iterative framework based on rapid qualitative analyses and interdisciplinary collaborations. Thus, the guide was developed in small, repeated cycles of development, implementation, evaluation, and adaptation, with a continuous exchange between research and practice. The data collection process was structured in 3 main phases. First, we conducted a literature review, recorded observations, and held informal and semistructured interviews. Second, we facilitated coproduction with stakeholders through 4 workshops with GPs, a group interview with patient representatives, and individual revisions by GPs. Third, nationwide testing was conducted in 5 general practice clinics and was followed by an evaluation of the guide through interviews with GPs., Results: A rapid cycle coproduction approach was used to explore the needs of general practice in connection with the implementation of VC and to develop useful, relevant, and easily understandable guiding materials. Our findings suggest that a guide for VCs should include advice and recommendations regarding the organization of VCs, the technical setup, the appropriate target groups, patients' use of VCs, the performance of VCs, and the arrangements for booking a VC., Conclusions: The combination of coproduction, prototyping, small iterations, and rapid data analysis is a suitable approach when contextually rich, hands-on guide materials are urgently needed. Moreover, this method could provide an efficient way of developing relevant guide materials for general practice to aid the implementation of new technology beyond the pandemic period., (©Amanda Sandbæk, Line Due Christensen, Lotte Lykke Larsen, Nina Primholdt Christensen, Frida Greek Kofod, Ann Dorrit Guassora, Camilla Hoffmann Merrild, Elisabeth Assing Hvidt. Originally published in JMIR Formative Research (https://formative.jmir.org), 24.11.2021.)
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- 2021
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12. Adjusting health care: practicing care for socially vulnerable type 2 diabetes patients.
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Rogvi SÁ, Guassora AD, Wind G, Tvistholm N, Jansen SM, Hansen IB, Perrild HJD, and Christensen U
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- Delivery of Health Care, Female, Health Facilities, Health Services, Humans, Male, Patient-Centered Care, Diabetes Mellitus, Type 2 therapy
- Abstract
Background: Type 2 diabetes cluster in lower social groups and people with type 2 diabetes from lower social groups experience more complications, benefit less from health services and live shorter lives than people with type 2 diabetes from higher social groups. Different logics govern diabetes care and potentially influence the possibility of socially vulnerable type 2 diabetes patients to access and benefit from health services. In order to understand which practice and underlying logic enable socially vulnerable type 2 diabetes patients to access and benefit from diabetes care we aim to describe what professionals at a specialized diabetes clinic do to adjust services to patient's needs and make the tasks involved in diabetes care doable for socially vulnerable patients and how this work is embedded in an organizational and moral context., Methods: Ethnographic fieldwork combining participant observation and interviews was carried out between February 2017 and March 2018 in a specialized diabetes clinic located in a socially deprived area in the capital region of Denmark. Sixteen patients (9 male, 7 female, aged 35-73 years) and 12 professionals (7 doctors, 4 nurses, 1 secretary) participated in the study. We used Annemarie Mol's concept of "the logic of care" to guide our analysis., Results: Our analysis shows that the logic of care and the care practices in this clinic are characterized by a needs-based approach to treatment involving adjustment of services (permeability, timing, and content) and seeing the patient as a person with many needs. Throughout our description of selected care practices, we both characterize how health professionals practice this particular logic of care and the organizational and normative conditions that this logic is entangled with., Conclusions: Practicing diabetes care based on patients' needs involves individualization, something often described as an element of patient centred care. Our study shows that this ideal of individualization and adjustment of treatment is possible in practice. Organizational flexibility and an organizational culture that values patient needs enable needs-based care. In order for socially vulnerable type 2 diabetes patients to benefit from health services it is necessary to create conditions under which professionals can attend to these patients' multiple and complex needs. Adjusting care to these needs demand a variety of professional efforts some of which are hardly predictable or standardisable., (© 2021. The Author(s).)
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- 2021
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13. The SOFIA pilot trial: a cluster-randomized trial of coordinated, co-produced care to reduce mortality and improve quality of life in people with severe mental illness in the general practice setting.
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Rozing MP, Jønsson A, Køster-Rasmussen R, Due TD, Brodersen J, Bissenbakker KH, Siersma V, Mercer SW, Guassora AD, Kjellberg J, Kjellberg PK, Nielsen MH, Christensen I, Bardram JE, Martiny F, Møller A, and Reventlow S
- Abstract
Background: People with severe mental illness (SMI) have an increased risk of premature mortality, predominantly due to somatic health conditions. Evidence indicates that primary and tertiary prevention and improved treatment of somatic conditions in patients with SMI could reduce this excess mortality. This paper reports a protocol designed to evaluate the feasibility of a coordinated co-produced care program (SOFIA model, a Danish acronym for Severe Mental Illness and Physical Health in General Practice) in the general practice setting to reduce mortality and improve quality of life in patients with severe mental illness., Methods: The SOFIA pilot trial is designed as a cluster randomized controlled trial targeting general practices in two regions in Denmark. We aim to include 12 practices, each of which is instructed to recruit up to 15 community-dwelling patients aged 18 and older with SMI. Practices will be randomized by a computer in a ratio of 2:1 to deliver a coordinated care program or usual care during a 6-month study period. A randomized algorithm is used to perform randomization. The coordinated care program includes educational training of general practitioners and their clinical staff educational training of general practitioners and their clinical staff, which covers clinical and diagnostic management and focus on patient-centered care of this patient group, after which general practitioners will provide a prolonged consultation focusing on individual needs and preferences of the patient with SMI and a follow-up plan if indicated. The outcomes will be parameters of the feasibility of the intervention and trial methods and will be assessed quantitatively and qualitatively. Assessments of the outcome parameters will be administered at baseline, throughout, and at end of the study period., Discussion: If necessary the intervention will be revised based on results from this study. If delivery of the intervention, either in its current form or after revision, is considered feasible, a future, definitive trial to determine the effectiveness of the intervention in reducing mortality and improving quality of life in patients with SMI can take place. Successful implementation of the intervention would imply preliminary promise for addressing health inequities in patients with SMI., Trial Registration: The trial was registered in Clinical Trials as of November 5, 2020, with registration number NCT04618250 . Protocol version: January 22, 2021; original version., (© 2021. The Author(s).)
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- 2021
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14. Agenda navigation in consultations covering multiple topics. A qualitative case study from general practice.
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Guassora AD, Johansen ML, and Malterud K
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- Communication, Family Practice, Female, Humans, Male, Qualitative Research, Referral and Consultation, General Practice, Physician-Patient Relations
- Abstract
Objective: To explore how agenda navigation may be accomplished underway in consultations covering multiple topics, we identified and analyzed one GP's communicative strategies., Design, Setting, and Subjects: A qualitative observational case study with linguistic microanalysis of an exemplary consultation between a female patient with diabetes and her male GP. We used speech act theory to identify communicative actions that indicated agenda navigation by the GP in transitions between episodes concerning ten topics., Results: Microanalysis revealed different aspects of agenda navigation by the GP using speech acts, especially ways of opening or closing an episode. The opening of episodes was characterized by speech acts accepting the patient's request to discuss a topic, mostly at the beginning of the consultation. Speech acts to inform or to request information from the patient dominated later in the consultation. The GP closed all episodes using speech acts to instruct or appraise the patient, or to make agreements and plans., Conclusion and Practice Implications: Skilful agenda navigation is an important tool for consultations covering multiple issues and could be further developed for medical education. The opening and closing of episodes were vital communicative strategies supporting patient-centered communication in a complex consultation while maintaining the focus of the consultation agenda.KEY POINTSWhile traditional consultation models cover one health problem, GP consultations often include many patient issues in each session.Linguistic microanalysis of speech acts helped to identify communication strategies in a GP consultation with multiple topics.The GP conducted agenda navigation by distinctly opening and closing episodes concerning specific topics.Episodes were opened by accepting, informing, and requesting and closed by instruction, appraisal, making agreements, or plans.
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- 2021
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15. Symptom burden in multimorbidity: a population-based combined questionnaire and registry study from Denmark.
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Willadsen TG, Siersma V, Nicolaisdottir DR, Jarbol D, Guassora AD, Reventlow S, and Køster-Rasmussen R
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- Denmark epidemiology, Humans, Longitudinal Studies, Registries, Surveys and Questionnaires, Multimorbidity
- Abstract
Objective: Patients with multimorbidity may carry a large symptom burden. Symptoms are often what drive patients to seek healthcare and they also assist doctors with diagnosis. We examined whether symptom burden is additive in people with multimorbidity compared with people with a single morbidity., Design: This is a longitudinal cohort study drawing on questionnaire and Danish national registry data. Multimorbidity was defined as having diagnoses from at least two out of ten morbidity groups. Associations between morbidity groups and symptom burden were estimated with multivariable models., Participants: In 2012, 47 452 participants from the Danish Symptom Cohort answered a questionnaire about symptoms (36 symptoms in total), including whether symptoms were affecting their daily activities ( impairment score ) and their worries about present symptoms ( worry score ) (the highest score among the 36 symptoms on a 0-4 scale)., Main Outcome Measure: The primary outcome was symptom burden., Results: Participants without morbidity reported 4.77 symptoms (out of 36 possible). Participants with one, two or three morbidities reported more symptoms than patients without morbidity (0.95 (CI 0.86 to 1.03), 1.87 (CI 1.73 to 2.01) and 2.89 (CI 2.66 to 3.12), respectively). Furthermore, they reported a higher impairment score (0.36 (0.32 to 0.39), 0.65 (0.60 to 0.70) and 1.06 (0.98 to 1.14)) and a higher worry score (0.34 (0.31 to 0.37), 0.62 (0.57 to 0.66) and 1.02 (0.94 to 1.10)) than participants without morbidity. In 45 possible combinations of multimorbidity (participants with two morbidities), interaction effects were additive in 37, 41 and 36 combinations for the number of symptoms, impairment score and worry score, respectively., Conclusion: Participants without morbidity reported a substantial number of symptoms. Having a single morbidity or multimorbidity resulted in approximately one extra symptom for each extra morbidity. In most combinations of multimorbidity, symptom burden was additive., Competing Interests: Competing interests: None declared., (© Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)
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- 2021
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16. Resources in vulnerable young adults: self-assessments during preventive consultation with their general practitioner in Denmark.
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Freund KS, Guassora AD, Hegelund T, Hvas L, and Lous J
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- Adult, Denmark, Humans, Motivation, Referral and Consultation, Self-Assessment, Young Adult, General Practitioners
- Abstract
Inequality in health is increasing. People with many problems often lack energy to improve well-being and reduce their problems. This study analyses how psycho-socially challenged younger (20- to 44-year-old) patients described their own resources to reach lifestyle goals or alter life circumstances. Within the context of a randomized controlled trial, Danish participants had two structured preventive person-centred consultations with their general practitioner. Consultations focused on well-being, salutogenesis, resources, barriers and support of autonomy. Using the qualitative method: Systematic Text Condensation, we made thematic cross-analysis of patients' goal-specific resource statements described at the first consultation. Of the 209 patients, 191 (91%) chose one or two goals for a better life next year; nearly all (179) could recall and describe which resources they would use to reach their goal. We categorized resource statements into (i) personal constitution as 'willpower' and 'tenacity'; (ii) network, e.g. family; (iii) personal experience with identical or similar problems. Some patients needed to free up resources by handling psychological problems before being able to focus on lifestyle goals. The study demonstrates that patients with particular psycho-social problems could describe essential resources in a structured, salutogenic, preventive consultation with their general practitioner. Reflecting intrinsic and extrinsic motivation, these resources reflected dimensions of essential health theories like sense of coherence, self-efficacy and self-determination theory. Increased awareness of these resources seems essential for vulnerable patients by improving psychological well-being and optimism, thereby facilitating health-related changes. This may be an important step to reducing inequality in health., (© The Author(s) 2019. Published by Oxford University Press.)
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- 2020
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17. What the doctor doesn't know: Discarded patient knowledge of older adults with multimorbidity.
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Joensson ABR, Guassora AD, Freil M, and Reventlow S
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- Aged, Aged, 80 and over, Denmark, Disclosure, Female, Humans, Male, Qualitative Research, Quality of Life psychology, Health Knowledge, Attitudes, Practice, Multimorbidity, Patient Compliance, Physician-Patient Relations
- Abstract
Objectives: Adherence to treatment has proven to require the involvement of patients in treatment and care planning. This process involves incorporating patient knowledge, or knowledge about the patients' everyday life, into the clinical encounter. This article explores the disclosure practices of such knowledge from older adults with multimorbidity., Methods: This was an 18-month qualitative study among 14 older adults with multimorbidity living in Denmark. A thematic analysis was applied, focusing on perceptions of patient knowledge and disclosure practices among the participating patients., Results: Older adults with multimorbidity have various reasons for not disclosing personal knowledge. The results present three different domains of what we termed discarded patient knowledge: (1) knowledge that had no direct biomedical relevance from participants' perspective; (2) knowledge considered too private; and (3) knowledge assumed to position one as inferior., Discussion: The participants made judgments on what they believed was welcome in the clinical encounter, framing their knowledge within the purview of biomedicine. Participants' disclosure practices showed that personal knowledge is sometimes not recognized as important for health and care by participants themselves. Knowledge that could have influenced practitioners' understanding of the problem and provided different solutions, is argued to be discarded patient knowledge.
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- 2020
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18. [Sårbare patienter i almen praksis under COVID-19].
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Reventlow S, Jønsson A, Kristensen MT, Guassora AD, Brodersen J, and Møller A
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- Betacoronavirus, COVID-19, Humans, SARS-CoV-2, Coronavirus Infections, General Practice, Pandemics, Pneumonia, Viral, Vulnerable Populations
- Published
- 2020
19. How Older Men With Multimorbidity Relate to Successful Aging.
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Jønsson AR, Reventlow S, and Guassora AD
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- Aged, Aged, 80 and over, Attitude to Health, Denmark, Humans, Interviews as Topic, Male, Masculinity, Healthy Aging, Multimorbidity
- Abstract
Objectives: Research on successful aging gives limited attention to the role of suffering from multiple chronic conditions (multimorbidity) in combination with notions of masculinity. We address this by bringing into focus how older men with multimorbidity within the Nordic Model welfare system relate to successful aging. The objective is to bring new insights into key elements of how masculinity, multimorbidity and cultural context create alternative individual versions of successful aging., Method: The article draws on a long-term fieldwork (18 months) among older men (n=7), who were part of a larger study that also included older women. The fieldwork consisted of 28 interviews with participating men. These data were supplemented by 124 hr of informal chats and observations as well as 32 hr of clinical encounters with health services. Data analysis followed a thematic approach., Results: Analysis revealed that older men with multimorbidity understood core components of successful aging, yet did not closely follow them, and instead came up with alternative, gendered interpretations. This process involved three themes centered around independency of: (a) unaided successful aging, (b) vicarious successful aging, and (c) masculine successful aging., Discussion: Our study contributes to research on perceptions of successful aging with insights to the role of cultural context, gender and multimorbidity. Living with multimorbidity challenges the ability of the men to positively frame themselves as successfully aging older adults; however, they navigate this dilemma by constructing their own experiences in their own terms of independence., (© The Author(s) 2019. Published by Oxford University Press on behalf of The Gerontological Society of America. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.)
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- 2020
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20. Diagnostic knowing in general practice: interpretative action and reflexivity.
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Malterud K, Reventlow S, and Guassora AD
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- Clinical Competence, Diagnosis, Humans, Judgment, Clinical Decision-Making methods, General Practice, Knowledge
- Abstract
Background: Getting the right diagnosis is supposed to provide an explanation of a patient's health problem and inform health care decisions. As a core element of clinical reasoning, diagnosis deserves systematic and transparent analysis. Conceptual tools can make doctors become aware of and explore diagnostic knowing. Methods: We demonstrate diagnostic knowing analysed as interpretative and contextualised activity. Our analysis is based on Lonergan's theory of knowing, constituting the cognitive structures as experiencing, understanding, and judging, in a general practice case. Findings: Analysis makes the complexity of diagnostic knowing in this context more transparent, in this case concluding with four diagnostic labels: a corn, constipation, headache and atrial fibrillation. We demonstrate how a medically significant diagnosis does not necessarily evolve deductively from complaints. The opening lines from the patient give ideas of where to look for possible explanations - questions for understanding - rather than diagnostic hypotheses. Such questions emerge from the GP's experiences from meeting the patient, including imaginations and interpretations. When ideas and questions regarding diagnoses have been developed, they may be judged and subjected to reflection. Questioning may also emerge as transitory concerns, not extensively ruled out. Lonergan's theory demonstrated a strong fit with these aspects of diagnostic knowing in general practice. Implications: Analysis demonstrated systematic, transparent approaches to diagnostic knowing, relevant for clinical teaching. We argue that an interpretative understanding of diagnosis can change clinical practice, complementing hypothetico-deductive strategies by recognising additional substantial diagnostic modes and giving access to scholarly reflection.Key PointsDiagnosis is a core element of clinical reasoning, deserving systematic and transparent analysis beyond hypothetico-deductive reasoning or pattern recognitionDiagnostic knowing in general practice is a special instance of all human knowing with subjectivity, interpretation and reflexivity as essential elementsLonergan's theory for knowing based on experiencing, understanding, and judging allowed us to map, decode and recognise advanced acts of clinical reasoning We share our experiences of how these concepts gave us a tool for systematic analysis of the complexities taking place in the GP's office on an ordinary day.
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- 2019
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21. 'I've put diabetes completely on the shelf till the mental stuff is in place'. How patients with doctor-assessed impaired self-care perceive disease, self-care, and support from general practitioners. A qualitative study.
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Kristensen MAT, Guassora AD, Arreskov AB, Waldorff FB, and Hølge-Hazelton B
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- Adult, Aged, Aged, 80 and over, Attention, Chronic Disease psychology, Continuity of Patient Care, Diabetes Mellitus, Type 2 complications, Diabetes Mellitus, Type 2 psychology, Emotions, Female, General Practice, Humans, Male, Mental Disorders complications, Mental Disorders psychology, Middle Aged, Multimorbidity, Patient-Centered Care, Professional Role, Qualitative Research, Quality of Life, Attitude, Chronic Disease therapy, Diabetes Mellitus, Type 2 therapy, General Practitioners, Mental Disorders therapy, Physician-Patient Relations, Self Care psychology, Self Care standards
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Objective: This paper investigated patients' experiences of disease and self-care as well as perceptions of the general practitioner's role in supporting patients with impaired self-care ability., Design: Qualitative interviews with 13 patients with type 2 diabetes, concurrent chronic diseases, and impaired self-care ability assessed by a general practitioner. We analyzed our data using systematic text condensation. The shifting perspectives model of chronic illness formed the theoretical background for the study., Results: Although most patients experienced challenges in adhering to recommended self-care activities, many had developed additional, personal self-care routines that increased wellbeing. Some patients were conscious of self-care trade-offs, including patients with concurrent mental disorders who were much more attentive to their mental disorder than their somatic diseases. Patients' perspectives on diseases could shift over time and were dominated by emotional considerations such as insisting on leading a normal life or struggling with limitations caused by disease. Most patients found support in the ongoing relationship with the same general practitioner, who was valued as a companion or appreciated as a trustworthy health informant., Conclusion: Patient experiences of self-care may collide with what general practitioners find appropriate in a medical regimen. Health professionals should be aware of patients' prominent and shifting considerations about the emotional aspects of disease. Patients valued the general practitioner's role in self-care support, primarily through the long-term doctor-patient relationship. Therefore, relational continuity should be prioritized in chronic care, especially for patients with impaired self-care ability who often have a highly complex disease burden and situational context. Key points Little is known about the perspectives of disease and self-care in patients with a doctor-assessed impaired ability of self-care. • Although patients knew the prescribed regimen they often prioritized self-care routines that increased well-being at the cost of medical recommendations. • Shifting emotional aspects were prominent in patients' considerations of disease and sustained GPs' use of a patient-centred clinical method when discussing self-care. • Relational continuity with general practitioners was a highly valued support and should be prioritized for patients with impaired self-care.
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- 2018
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22. The effect of structured personal care on diabetes symptoms and self-rated health over 14 years after diabetes diagnosis.
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Willadsen TG, Siersma V, Nielsen ABS, Køster-Rasmussen R, Guassora AD, Jarbøl DE, Eusebi P, Malterud K, Reventlow S, and de Fine Olivarius N
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- Aged, Biomarkers blood, Blood Glucose metabolism, Denmark epidemiology, Diabetes Mellitus, Type 2 blood, Diabetes Mellitus, Type 2 epidemiology, Diabetes Mellitus, Type 2 psychology, Female, Health Knowledge, Attitudes, Practice, Health Status Indicators, Humans, Male, Middle Aged, Multimorbidity, Patient Participation, Patient Reported Outcome Measures, Prognosis, Randomized Controlled Trials as Topic, Time Factors, Diabetes Mellitus, Type 2 therapy, Health Status, Primary Health Care methods, Self Care methods, Self Concept, Self Report
- Abstract
Aims: To explore the effect of structured personal care on diabetes symptoms and self-rated health over 14 years after diabetes diagnosis while patients are gradually diagnosed with other chronic conditions (multimorbidity)., Methods: Post hoc analysis of the Danish randomized controlled trial Diabetes Care in General Practice including 1381 patients newly diagnosed with type 2 diabetes. The effect of structured personal care compared with routine care on diabetes symptoms and self-rated health was analysed 6 and 14 years after diagnosis with a generalized multilevel Rasch model., Results: Structured personal care reduced the overall likelihood of reporting diabetes symptoms at the end of the intervention (OR 0.79; 95% CI: 0.64-0.97), but this effect was not explained by glycaemic control or multimorbidity. There was no effect of the intervention on diabetes symptoms after 14 years or on self-rated health after 6 years or 14 years., Conclusions: Structured personal care had a beneficial effect on diabetes symptoms 6 years after diagnosis, but not on self-rated health at either follow up point. To optimally manage patients over time it is important to supplement clinical information by information provided by the patients., (Copyright © 2018 Primary Care Diabetes Europe. Published by Elsevier Ltd. All rights reserved.)
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- 2018
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23. 'More constricting than inspiring' - GPs find chronic care programmes of limited clinical utility. A qualitative study.
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Kristensen MAT, Due TD, Hølge-Hazelton B, Guassora AD, and Waldorff FB
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Background: As in other countries, Danish health authorities have introduced disease management programmes (DMPs) to improve care quality. These contain clinical practice guidelines (CPGs) and guidelines for patient stratification based on doctors' assessments of disease severity and self-care. However, these programmes are challenged when patients have complex chronic conditions., Aim: To explore how GPs experience the clinical applicability of disease management programmes for patients with multiple chronic conditions and lowered self-care ability., Design & Setting: A qualitative study from general practice, conducted in rural areas of Denmark with economically disadvantaged populations., Method: Data were collected through case-based, semi-structured interviews with 12 GPs. The principles of systematic text condensation were used in the analysis., Results: GPs found DMPs inadequate, particularly for patients with multiple conditions and lowered self-care ability. Their experience was that adhering to multiple programmes' CPGs resulted in too much medication, conflicting treatments, an overload of appointments, and fragmented health care. They disregarded stratifying according to guidelines because they deemed stratification criteria to reflect neither patients' need for self-care support, nor flexible referral options to hospitals and municipalities. Therefore, GPs were often solely responsible for treatment of patients with very complex chronic conditions., Conclusion: GPs found DMPs to be of limited clinical applicability due to challenges related to CPGs, patient stratification, and lack of adequate health services to support patients with complex healthcare needs. To increase the benefits of these programmes, they should be more flexible, and adjusted to the needs of patients with multiple chronic conditions and lowered self-care ability., Competing Interests: The authors declare that no competing interests exist.
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- 2018
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24. How general practitioners perceive and assess self-care in patients with multiple chronic conditions: a qualitative study.
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Kristensen MAT, Hølge-Hazelton B, Waldorff FB, and Guassora AD
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- Adult, Aged, Aged, 80 and over, Cognition, Denmark, Female, Humans, Interviews as Topic, Male, Middle Aged, Perception, Physician-Patient Relations, Poverty, Qualitative Research, Rural Population, General Practice methods, Multiple Chronic Conditions therapy, Self Care
- Abstract
Background: It is not known how general practitioners (GPs) perceive the concept of self-care and how they assess self-care ability in patients with multiple chronic conditions. As a part of the strategy to improve the care of people living with chronic conditions, disease management programs in Denmark require GPs and other health care workers to assess and support patients' self-care ability. The aim of the present study was to explore GPs' perceptions and assessment of self-care ability in patients with multiple chronic conditions who have difficulty following a given treatment., Methods: A qualitative study conducted through in-depth, semi-structured interviews with a purposive sample of 12 GPs in rural areas of Denmark with economically disadvantaged populations. The interviews involved 36 complex patient cases selected by the GPs themselves. Our analysis followed the principles of systematic text condensation., Results: Most GPs in our study had a health-related perception of self-care, but some had a broader perception encompassing the situational context of the patient's life. The GPs' assessments of patients' self-care ability were based on information from the ongoing and often long-term relationships with the patients. GPs identified four major factors that influenced patients' self-care ability, which accumulated and fluctuated over time: multimorbidity, cognitive resources, material resources, and the patients' social contexts., Conclusions: The GPs in this study had dual perceptions of self-care, related to both the chronic health conditions and to the broader situational contexts of their patients' lives. GPs' assessments of self-care ability depended largely on their experiences from the doctor-patient relationship, and they emphasized that the factors affecting self-care ability were highly dynamic over the patient's lifetime. However, these findings might be resisted by the Danish disease management programs, which tend to have a static and more narrow, health-related view of patient self-care. The Danish programs require GPs to assess self-care ability upfront at the beginning of treatment and do not consider whether a relationship with the patient is established. If GPs' perceptions and assessments of self-care ability are not included in chronic disease management models, there is a risk that they vill be insufficiently implemented in general practice.
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- 2017
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25. Antibiotic treatment failure when consulting patients with respiratory tract infections in general practice. A qualitative study to explore Danish general practitioners' perspectives.
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Bordado Sköld M, Aabenhus R, Guassora AD, and Mäkelä M
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- Acute Disease, Communication, Denmark, Female, Humans, Interviews as Topic, Male, Patient Education as Topic, Qualitative Research, Treatment Failure, Trust, Anti-Bacterial Agents therapeutic use, Attitude of Health Personnel, General Practice, Physician-Patient Relations, Respiratory Tract Infections drug therapy
- Abstract
Background: Prescribing antibiotics for acute respiratory tract infections (RTIs) is common in primary healthcare although most of these infections are of viral origin and antibiotics may not be helpful. Some of these prescriptions will not be associated with a quick recovery, and might be regarded as cases of antibiotic treatment failure (ATF)., Objectives: We studied antibiotic treatment failure in patients with acute RTIs from a general practitioner (GP) perspective, aiming to explore (i) GPs' views of ATF in primary care; (ii) how ATF influences the doctor-patient relationship; and (iii) GPs' understanding of patients' views of ATF., Methods: Qualitative study based on semi-structured, recorded interviews of 18 GPs between August and October 2012. The interviews started with discussion of a unique case of acute RTI involving ATF, followed by a more general reflection of the topic. Interviews were analysed using qualitative content analysis., Results: In patients with acute RTIs, GPs proposed and agreed to a medical definition of antibiotic treatment failure but believed patients' views to differ significantly from this medical definition. GPs thought ATF affected their daily work only marginally. GPs used many communicative tools to maintain trust with patients in cases of ATF, but they did not consider such incidents to affect the doctor-patient relationship adversely., Conclusion: These findings suggest a possible communication gap between doctors and patients, partly due to a narrow medical definition of ATF. Studies describing patients' views are still missing. General practitioners' experiences and views on antibiotic treatment failure in acute respiratory infections or its effects on the doctor-patient relationship have not been studied previously.
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- 2017
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26. Embracing uncertainty to advance diagnosis in general practice.
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Malterud K, Guassora AD, Reventlow S, and Jutel A
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- Delivery of Health Care, Humans, Uncertainty, Clinical Decision-Making, General Practice standards, Professional Competence standards
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- 2017
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27. Balancing trust and power: a qualitative study of GPs perceptions and strategies for retaining patients in preventive health checks.
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Broholm-Jørgensen M, Guassora AD, Reventlow S, Dalton SO, and Tjørnhøj-Thomsen T
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- Adult, Educational Status, Family Practice, Female, Focus Groups, Humans, Male, Middle Aged, Personhood, Qualitative Research, Attitude of Health Personnel, General Practitioners, Patient Dropouts, Physician-Patient Relations, Power, Psychological, Preventive Health Services, Trust
- Abstract
Objective: Little is known about how strategies of retaining patients are acted out by general practitioners (GPs) in the clinical encounter. With this study, we apply Grimens' (2009) analytical connection between trust and power to explore how trust and power appear in preventive health checks from the GPs' perspectives, and in what way trust and power affect and/or challenge strategies towards retaining patients without formal education., Design: Data in this study were obtained through semi-structured interviews with GPs participating in an intervention project, as well as observations of clinical encounters., Results: From the empirical data, we identified three dimensions of respect: respect for the patient's autonomy, respect for professional authority and respect as a mutual exchange. A balance of respect influenced trust in the relationship between GP and patients and the transfer of power in the encounter. The GPs articulated that a balance was needed in preventive health checks in order to establish trust and thus retain the patient in the clinic. One way this balance of respect was carried out was with the use of humour., Conclusions: To retain patients without formal education in the clinical encounter, the GPs balanced trust and power executed through three dimensions of respect. In this study, retaining patients was equivalent to maintaining a trusting relationship. A strategic use of the three dimensions of respect was applied to balance trust and power and thus build or maintain a trusting relationship with patients. KEY POINTS Little is known about how strategies for retaining patients are acted out by GPs in preventive health checks. • Retaining patients requires a balance of trust and power, which is executed through three dimensions of respect by the GPs. • Challenges of recruiting and retaining patients in public health initiatives might be associated with the balance of respect.
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- 2017
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28. Understanding the body-mind in primary care.
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Davidsen AS, Guassora AD, and Reventlow S
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- Empathy, Holistic Health, Humans, Models, Biological, Patient-Centered Care, Psychophysiologic Disorders diagnosis, Psychophysiologic Disorders psychology, Theory of Mind, Primary Health Care, Psychophysiology
- Abstract
Patients' experience of symptoms does not follow the body-mind divide that characterizes the classification of disease in the health care system. Therefore, understanding patients in their entirety rather than in parts demands a different theoretical approach. Attempts have been made to formulate such approaches but many of these, such as the biopsychosocial model, are still basically dualistic or methodologically reductionist. In primary care, patients often present with diffuse symptoms, making primary care the ideal environment for understanding patients' undifferentiated symptoms and disease patterns which could readily fit both bodily and mental categories. In this article we discuss theoretical models that have attempted to overcome this challenge: The psychosomatic approach could be called holistic in the sense of taking an anti-dualistic stance. Primary care theorists have formulated integrative views but these have not gained a foothold in primary care medicine. McWhinney introduced a new metaphor, 'the body-mind', and Rudebeck advocated cultivating 'bodily empathy'. These views have much in common with both phenomenological thinking and mentalization, a psychological concept for understanding others. In the process of understanding patients there is a need for the physician to enter an intersubjectivity that aims at understanding the patient's experiences and sensations without initially jumping to diagnostic conclusions or into a division into mental and physical phenomena. Mentalization theory could form the basis of an approach to a more comprehensive understanding of patients. The success of such an approach is, however, dependent upon structural and organizational conditions that do not counteract it.
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- 2016
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29. Sample Size in Qualitative Interview Studies: Guided by Information Power.
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Malterud K, Siersma VD, and Guassora AD
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Sample sizes must be ascertained in qualitative studies like in quantitative studies but not by the same means. The prevailing concept for sample size in qualitative studies is "saturation." Saturation is closely tied to a specific methodology, and the term is inconsistently applied. We propose the concept "information power" to guide adequate sample size for qualitative studies. Information power indicates that the more information the sample holds, relevant for the actual study, the lower amount of participants is needed. We suggest that the size of a sample with sufficient information power depends on (a) the aim of the study, (b) sample specificity, (c) use of established theory, (d) quality of dialogue, and (e) analysis strategy. We present a model where these elements of information and their relevant dimensions are related to information power. Application of this model in the planning and during data collection of a qualitative study is discussed.
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- 2016
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30. The role of diseases, risk factors and symptoms in the definition of multimorbidity - a systematic review.
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Willadsen TG, Bebe A, Køster-Rasmussen R, Jarbøl DE, Guassora AD, Waldorff FB, Reventlow S, and Olivarius Nde F
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- Diagnosis, Humans, Risk Factors, Chronic Disease epidemiology, Comorbidity, Terminology as Topic
- Abstract
Unlabelled: Objective is to explore how multimorbidity is defined in the scientific literature, with a focus on the roles of diseases, risk factors, and symptoms in the definitions., Design: Systematic review., Methods: MEDLINE (PubMed), Embase, and The Cochrane Library were searched for relevant publications up until October 2013. One author extracted the information. Ambiguities were resolved, and consensus reached with one co-author. Outcome measures were: cut-off point for the number of conditions included in the definitions of multimorbidity; setting; data sources; number, kind, duration, and severity of diagnoses, risk factors, and symptoms. We reviewed 163 articles. In 61 articles (37%), the cut-off point for multimorbidity was two or more conditions (diseases, risk factors, or symptoms). The most frequently used setting was the general population (68 articles, 42%), and primary care (41 articles, 25%). Sources of data were primarily self-reports (56 articles, 42%). Out of the 163 articles selected, 115 had individually constructed multimorbidity definitions, and in these articles diseases occurred in all definitions, with diabetes as the most frequent. Risk factors occurred in 98 (85%) and symptoms in 71 (62%) of the definitions. The severity of conditions was used in 26 (23%) of the definitions, but in different ways. The definition of multimorbidity is heterogeneous and risk factors are more often included than symptoms. The severity of conditions is seldom included. Since the number of people living with multimorbidity is increasing there is a need to develop a concept of multimorbidity that is more useful in daily clinical work. Key points The increasing number of multimorbidity patients challenges the healthcare system. The concept of multimorbidity needs further discussion in order to be implemented in daily clinical practice. Many definitions of multimorbidity exist and most often a cut-off point of two or more is applied to a range of 4-147 different conditions. Diseases are included in all definitions of multimorbidity. Risk factors are often included in existing definitions, whereas symptoms and the severity of the conditions are less frequently included.
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- 2016
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31. Understanding medical symptoms: a conceptual review and analysis.
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Malterud K, Guassora AD, Graungaard AH, and Reventlow S
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- Concept Formation, Humans, Perception, Awareness, Comprehension, Cultural Characteristics, Disease, Human Body, Interpersonal Relations, Language, Social Perception
- Abstract
The aim of this article is to present a conceptual review and analysis of symptom understanding. Subjective bodily sensations occur abundantly in the normal population and dialogues about symptoms take place in a broad range of contexts, not only in the doctor's office. Our review of symptom understanding proceeds from an initial subliminal awareness by way of attribution of meaning and subsequent management, with and without professional involvement. We introduce theoretical perspectives from phenomenology, semiotics, social interactionism, and discourse analysis. Drew Leder's phenomenological perspectives deal with how symptom perception occurs when any kind of altered balance brings forward a bodily attention. Corporeality is brought to explicit awareness and perceived as sensations. Jesper Hoffmeyer's biosemiotic perspectives provide access to how signs are interpreted to attribute meaning to the bodily messages. Symptom management is then determined by the meaning of a symptom. Dorte E. Gannik's concept "situational disease" explains how situations can be reviewed not just in terms of their potential to produce signs or symptoms, but also in terms of their capacity to contain symptoms. Disease is a social and relational phenomenon of containment, and regulating the situation where the symptoms originate implies adjusting containment. Discourse analysis, as presented by Jonathan Potter and Margaret Wetherell, provides a tool to notice the subtle ways in which language orders perceptions and how language constructs social interaction. Symptoms are situated in culture and context, and trends in modern everyday life modify symptom understanding continuously. Our analysis suggests that a symptom can only be understood by attention to the social context in which the symptom emerges and the dialogue through which it is negotiated.
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- 2015
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32. Preconceptions influence women's perceptions of information on breast cancer screening: a qualitative study.
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Henriksen MJ, Guassora AD, and Brodersen J
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- Decision Making, Early Detection of Cancer methods, Female, Health Knowledge, Attitudes, Practice, Humans, Interviews as Topic, Mass Screening methods, Middle Aged, Perception, Qualitative Research, Breast Neoplasms diagnosis, Early Detection of Cancer psychology, Mammography psychology, Mass Screening psychology
- Abstract
Background: Screening for breast cancer has been subject to intense debate in recent decades regarding benefits and risks. Participation in breast cancer screening should be based on informed choice, and most countries approach this by sending information leaflets with invitations to attend screening. However, very little attention has been paid to the decision-making process and how the information leaflets are used and understood by women. The aim of this study is twofold. First, we use a theoretical framework to explore how the framing of information influences the intention to participate in breast cancer screening. Second, we discuss how information and attitudes held prior to receiving the invitation influence the perception of the balance between the benefits and risks harms of screening., Methods: We used a qualitative design and interviewed six women who were soon to receive their first invitation to participate in the breast screening programme in Denmark. The selected women received a copy of the official information leaflet 1 week before we interviewed them. The six women were interviewed individually using an interview guide based on the theory of planned behaviour. We used meaning condensation for our initial analysis, and further analysis was guided by the theory of cognitive dissonance., Results: For our participants, the decision-making process was dominated by the attitudes of the women's circle of acquaintances and, to a lesser extent, by the information that accompanied the screening invitation. Information that conflicted with attitudes the women already held was actively disregarded. The risk of overdiagnosis as a potentially harmful effect of participation in mammography screening was unknown to the women in our study. An isolated framing effect was not found., Conclusion: Women have expectations about breast cancer screening that are formed before they receive information from the screening programme. These expectations compromise the perception of balance between screening benefits and potential harmful effects. They also influence the perception of the information in the breast screening leaflet. The phenomenon of overdiagnosis is unknown to the women.
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- 2015
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33. Problems and challenges in relation to the treatment of patients with multimorbidity: General practitioners' views and attitudes.
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Søndergaard E, Willadsen TG, Guassora AD, Vestergaard M, Tomasdottir MO, Borgquist L, Holmberg-Marttila D, Olivarius Nde F, and Reventlow S
- Subjects
- Finland, Focus Groups, Humans, Interprofessional Relations, Physician-Patient Relations, Practice Guidelines as Topic, Professional Role, Qualitative Research, Surveys and Questionnaires, Attitude of Health Personnel, Comorbidity, Delivery of Health Care standards, General Practice, General Practitioners
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Objective: To explore views and attitudes among general practitioners (GPs) and researchers in the field of general practice towards problems and challenges related to treatment of patients with multimorbidity., Setting: A workshop entitled Patients with multimorbidity in general practice held during the Nordic Congress of General Practice in Tampere, Finland, 2013., Subjects: A total of 180 GPs and researchers., Design: Data for this summary report originate from audio-recorded, transcribed verbatim plenary discussions as well as 76 short questionnaires answered by attendees during the workshop. The data were analysed using framework analysis., Results: (i) Complex care pathways and clinical guidelines developed for single diseases were identified as very challenging when handling patients with multimorbidity; (ii) insufficient cooperation between the professionals involved in the care of multimorbid patients underlined the GPs' impression of a fragmented health care system; (iii) GPs found it challenging to establish a good dialogue and prioritize problems with patients within the timeframe of a normal consultation; (iv) the future role of the GP was discussed in relation to diminishing health inequality, and current payment systems were criticized for not matching the treatment patterns of patients with multimorbidity., Conclusion: The participants supported the development of a future research strategy to improve the treatment of patients with multimorbidity. Four main areas were identified, which need to be investigated further to improve care for this steadily growing patient group.
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- 2015
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34. Preparing general practitioners to receive cancer patients following treatment in secondary care: a qualitative study.
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Guassora AD, Jarlbaek L, and Thorsen T
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- Aged, Family Practice, Female, Focus Groups, Humans, Male, Middle Aged, Patient Discharge, Primary Health Care, Qualitative Research, General Practitioners psychology, Neoplasms, Patient Transfer, Secondary Care
- Abstract
Background: Many patients consider the interface between secondary and primary care difficult, and in particular, the transition of care between these different parts of the healthcare system presents problems. This interface has long been recognized as a critical point for quality of care. The purpose of our study is to formulate solutions to problems identified by cancer patients and healthcare professionals during the transition from hospital back to general practice on completion of primary treatment for cancer., Methods: A qualitative study based on focus groups at a seminar for professionals in both primary and secondary healthcare. Participants discussed solutions to problems which had previously been identified in patient interviews and in focus groups with general practitioners (GPs), hospital doctors, and nursing staff. The data were analyzed using framework analysis., Results: Solutions, endorsed by all groups at the seminar to improve transition back to general practice after primary treatment for cancer, were: 1) To add nurses' discharge letters addressing psychosocial matters to medical discharge letters; 2) To send medical discharge letters earlier from some hospital departments to GPs; 3) To provide plans and future affiliations for patients when they leave a department, and 4) To arrange a return visit to general practice dedicated to discussion of the patients' cancer disease and the treatment experience., Conclusions: The transition of care of cancer patients appears too complex to be coordinated by administrative standards alone. We recommend that healthcare professionals are more engaged and present in the coordination of care across organizational boundaries.
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- 2015
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35. Deciding if lifestyle is a problem: GP risk assessments or patient evaluations? A conversation analytic study of preventive consultations in general practice.
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Guassora AD, Nielsen SB, and Reventlow S
- Subjects
- Adult, Aged, Aged, 80 and over, Attitude of Health Personnel, Family Practice, Female, General Practitioners, Habits, Health Promotion, Humans, Male, Middle Aged, Referral and Consultation, Risk Assessment, Self-Assessment, Video Recording, Communication, General Practice, Health Behavior, Life Style, Physician-Patient Relations, Practice Patterns, Physicians', Preventive Medicine
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Objective: The aim of this study is to analyse the interaction between patients and GPs in preventive consultations with an emphasis on how patients answer GPs' questions about lifestyle, and the conditions these answers impose on the process of establishing agreement about lifestyle as a problem or not., Design: Six general practitioners (GPs) video-recorded 15 annual preventive consultations. From these, 32 excerpts of discussions about lifestyle were analysed using conversation analysis (CA)., Results: GPs used an interview format to assess risk in patients' lifestyles. In some cases patients adhered to this format and answered the GPs' questions, but in many cases patients gave what we have termed "anticipatory answers". These answers indicate that the patients anticipate a response from their GPs that would highlight problems with their lifestyle. Typically, in an anticipatory answer, patients bypass the interview format to give their own evaluation of their lifestyle and GPs accept this evaluation. In cases of "no-problem" answers from patients, GPs usually encouraged patients by adding support for current habits., Conclusion: Patients anticipated that GPs might assess their lifestyles as problematic and they incorporated this possibility into their responses. They thereby controlled the definition of their lifestyle as a problem or not. GPs generally did not use the information provided in these answers as a resource for further discussion, but rather relied on standard interview procedures. Staying within the patients' frame of reference and using the patients' anticipatory answers might provide GPs with a better point of departure for discussion regarding lifestyle.
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- 2015
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36. Motivation, effort and life circumstances as predictors of foot ulcers and amputations in people with Type 2 diabetes mellitus.
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Bruun C, Guassora AD, Nielsen AB, Siersma V, Holstein PE, and de Fine Olivarius N
- Subjects
- Combined Modality Therapy, Cross-Sectional Studies, Denmark epidemiology, Diabetes Mellitus, Type 2 complications, Diabetes Mellitus, Type 2 diagnosis, Diabetic Foot epidemiology, Diabetic Foot prevention & control, Female, Follow-Up Studies, Humans, Incidence, Life Change Events, Male, Middle Aged, Prevalence, Proportional Hazards Models, Prospective Studies, Registries, Risk Factors, Sex Factors, Amputation, Surgical, Diabetes Mellitus, Type 2 therapy, Diabetic Foot surgery, Motivation, Patient Compliance, Self Care
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Aim: To investigate the predictive value of both patients' motivation and effort in their management of Type 2 diabetes and their life circumstances for the development of foot ulcers and amputations., Methods: This study was based on the Diabetes Care in General Practice study and Danish population and health registers. The associations between patient motivation, effort and life circumstances and foot ulcer prevalence 6 years after diabetes diagnosis and the incidence of amputation in the following 13 years were analysed using odds ratios from logistic regression and hazard ratios from Cox regression models, respectively., Results: Foot ulcer prevalence 6 years after diabetes diagnosis was 2.93% (95% CI 1.86-4.00) among 956 patients. General practitioners' indication of 'poor' vs 'very good' patient motivation for diabetes management was associated with higher foot ulcer prevalence (odds ratio 6.11, 95% CI 1.22-30.61). The same trend was seen for 'poor' vs 'good' influence of the patient's own effort in diabetes treatment (odds ratio 7.06, 95% CI 2.65-18.84). Of 1058 patients examined at 6-year follow-up, 45 experienced amputation during the following 13 years. 'Poor' vs 'good' influence of the patients' own effort was associated with amputation (hazard ratio 7.12, 95% CI 3.40-14.92). When general practitioners assessed the influence of patients' life circumstances as 'poor' vs 'good', the amputation incidence increased (hazard ratio 2.97, 95% CI 1.22-7.24). 'Poor' vs 'very good' patient motivation was also associated with a higher amputation incidence (hazard ratio 7.57, 95% CI 2.43-23.57), although not in fully adjusted models., Conclusions: General practitioners' existing knowledge of patients' life circumstances, motivation and effort in diabetes management should be included in treatment strategies to prevent foot complications., (© 2014 The Authors. Diabetic Medicine © 2014 Diabetes UK.)
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- 2014
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37. Shame, honor and responsibility in clinical dialog about lifestyle issues: a qualitative study about patients' presentations of self.
- Author
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Guassora AD, Reventlow S, and Malterud K
- Subjects
- Aged, Female, General Practice, Humans, Interviews as Topic, Male, Middle Aged, Qualitative Research, Referral and Consultation, Self Care methods, Social Behavior, Videotape Recording, Communication, Life Style, Physician-Patient Relations, Self Care psychology, Shame
- Abstract
Objective: To explore how patients enact presentations of self in consultations dealing with lifestyle in general practice., Methods: We conducted a qualitative observational study with thematic, cross-case analysis of video-recorded consultations inspired by discourse analysis., Results: Patients presented themselves with an orientation toward responsibility in dialog about lifestyle. They described how they were taking care of themselves and doing their best. In this respect, they demonstrated their achievements as matters of honor. If one lifestyle issue was considered problematic, in some cases patients shifted attention to another, of which they were more proud. In areas where they were not doing well, some patients revealed shame for not acting responsibly. In such cases, patients spoke of themselves in terms of self-deprecation or admitted not living up to expected standards., Conclusion: Negotiations of shame and honor, revolving around personal responsibility, are embedded in clinical discourse about lifestyle. Patients take a proactive role in presenting and defending the self against shame., Practice Implications: GPs should pay more attention to the tacit role of shame in consultations. Failure to do so could lead to distance and hostility while a strategy to acknowledge the impact of shame could help develop and strengthen the doctor-patient relationship., (Copyright © 2014 Elsevier Ireland Ltd. All rights reserved.)
- Published
- 2014
- Full Text
- View/download PDF
38. Amputations and foot ulcers in patients newly diagnosed with type 2 diabetes mellitus and observed for 19 years. The role of age, gender and co-morbidity.
- Author
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Bruun C, Siersma V, Guassora AD, Holstein P, and de Fine Olivarius N
- Subjects
- Adult, Age Factors, Aged, Cohort Studies, Combined Modality Therapy, Comorbidity, Denmark epidemiology, Diabetes Mellitus, Type 2 therapy, Diabetic Foot physiopathology, Diabetic Foot prevention & control, Diabetic Nephropathies epidemiology, Diabetic Nephropathies physiopathology, Diabetic Nephropathies prevention & control, Diabetic Neuropathies epidemiology, Diabetic Neuropathies physiopathology, Diabetic Neuropathies prevention & control, Diabetic Retinopathy epidemiology, Diabetic Retinopathy physiopathology, Diabetic Retinopathy prevention & control, Female, Follow-Up Studies, Humans, Male, Middle Aged, Peripheral Arterial Disease complications, Peripheral Arterial Disease epidemiology, Peripheral Arterial Disease physiopathology, Peripheral Arterial Disease prevention & control, Prevalence, Sex Factors, Trauma Severity Indices, Amputation, Surgical, Diabetes Mellitus, Type 2 complications, Diabetic Foot epidemiology, Diabetic Foot surgery
- Abstract
Aims: To determine the prevalence of foot ulcers and the incidence of amputations in patients with Type 2 diabetes observed for 19 years after diagnosis. We investigated the role of gender, age and co-morbidities., Methods: From the Diabetes Care in General Practice study, 1381 patients were included and examined at diabetes diagnosis, at 6 years and at 14 years after diagnosis. Register-based follow-up was for 19 years. Foot ulcers and amputations were related to gender, age and co-morbidities by odds and hazard ratios from logistic and Cox regression models, respectively., Results: The incidence of any amputation and major amputation was 400 (95% CI 307-512) and 279 (95% CI 203-375) per 100,000 patient-years, respectively. At the three observation points, the foot ulcer prevalences were 2.76% (95% CI 1.89-3.63), 2.93% (95% CI 1.86-4.00) and 4.96% (95% CI 3.10-6.82). Multivariate analyses showed associations between foot ulcers and peripheral neuropathy, peripheral arterial disease, male gender, retinopathy and myocardial infarction. After multivariate adjustment, significant predictors (hazard ratio; 95% CI) of any amputation were peripheral neuropathy (hazard ratio 2.09; 95% CI 1.19-3.69), peripheral arterial disease (hazard ratio 3.43; 95% CI 1.65-7.12), microalbuminuria (hazard ratio 2.11; 95% CI 1.21-3.67), retinopathy (hazard ratio 6.42; 95% CI 2.59-15.90), impaired vision (hazard ratio 6.92; 95% CI 2.35-20.38) and male gender (hazard ratio 2.40; 95% CI 1.31-4.41). For women, the risk of amputation increased with age, but for men the risk was higher when diagnosed with diabetes at a younger age., Conclusions: Despite improved treatment regimens, the incidence of amputations is still high in this population-based patient sample. Men diagnosed with diabetes before age 65 years and patients with diabetes-related co-morbidities are at particularly high risk of foot ulcers and amputations., (© 2013 The Authors. Diabetic Medicine © 2013 Diabetes UK.)
- Published
- 2013
- Full Text
- View/download PDF
39. [Multimorbidity in a health care system which is adapted to individual diseases].
- Author
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Reventlow S, Kragstrup J, Guassora AD, Bjerrum L, and Olivarius Nde F
- Subjects
- Chronic Disease therapy, Humans, Comorbidity, Delivery of Health Care organization & administration
- Published
- 2013
40. [Interaction between disease concepts and the organisation of health care].
- Author
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Gannik DE and Guassora AD
- Subjects
- Clinical Competence, Concept Formation, Family Practice organization & administration, Family Practice standards, General Practice standards, Health Services Accessibility, Humans, Models, Theoretical, Primary Health Care standards, Diagnosis, Disease classification, General Practice organization & administration, Hospital Administration standards, Primary Health Care organization & administration
- Abstract
The biomedical model of disease which is codified in the medical diagnosis is closely tied to and dependent on the organizational system typically seen in hospitals, with centralization, specialization and standardized work procedures being the primary traits. In contrast, primary health care and general practice allow ways of dealing with disease which are inherently bio-psycho-social in nature. They do this, among others, by way of their organizational foundation, which favours small, local practices, doctors with generalist competencies, patients' free choice of doctor and a list system.
- Published
- 2011
41. Danish general practitioners only play a minor role in the coordination of cancer treatment.
- Author
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Dalsted RJ, Guassora AD, and Thorsen T
- Subjects
- Continuity of Patient Care statistics & numerical data, Denmark, Focus Groups, General Practitioners statistics & numerical data, Humans, Patient Care Team organization & administration, Quality of Health Care standards, Quality of Health Care statistics & numerical data, Surveys and Questionnaires, Continuity of Patient Care organization & administration, General Practitioners organization & administration, Neoplasms, Physician's Role
- Abstract
Introduction: Despite initiatives to integrate treatment and care across organisations, patient trajectories in Danish health-care are not well coordinated. Coordination among many health-care professionals is essential, and it is frequently suggested that a single person should perform the task of coordination. The aim of the article is to discuss whether general practitioners (GPs) may play a coordinating role for individual patients in Danish cancer treatment., Material and Methods: This study is based on individual interviews and focus groups analyzed by meaning condensation., Results: The GP's potential to coordinate patient trajectories was limited by lack of involvement of the GPs by other health-care professionals and lack of needed information. Furthermore, many patients do not regard their GP as a coordinator. Patients who contacted their GP during treatment typically had a close relationship with their GP prior to their cancer diagnosis. In cases with a more distant relationship, patients did not see a need for the GP's involvement. The majority of patients' trajectories were decided within hospitals. The level of information provided to GPs varied much between hospitals and wards. In the majority of cases, GPs had no access to information or were not informed about hospital decisions affecting the patients' trajectories, and they were therefore unable to perform a coordinating role., Conclusion: GPs only played a minor or no role at all as coordinators of individual cancer patient trajectories. The findings of the present study question the idea that coordination throughout the entire health-care system may be assigned to a single individual as the involved parties belong to different organizations with different goals, managements and economic resources.
- Published
- 2011
42. Smoking cessation advice in consultations with health problems not related to smoking? Relevance criteria in Danish general practice consultations.
- Author
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Guassora AD and Baarts C
- Subjects
- Adult, Aged, Communication, Denmark, Female, Humans, Male, Middle Aged, Physician-Patient Relations, Risk Factors, Smoking adverse effects, Smoking Prevention, Surveys and Questionnaires, Family Practice, Health Promotion, Smoking Cessation
- Abstract
Objective: To identify frames of interaction that allow smoking cessation advice in general practice consultations., Design: Qualitative study based on individual in-depth interviews with GPs and their patients. Each of the GPs' consultations were observed during a three-day period. Interviews primarily addressed the consultations that had been observed. The concept of "frames" described by Goffman was deployed as an analytic tool., Setting: Danish general practice., Subjects: Six GPs and 11 of their patients., Results: Both GPs and patients evaluated potential issues to be included during consultations by relevance criteria. Relevance criteria served the purpose of limiting the number of issues in individual consultations. Issues could be included if they connected to something already communicated in a consultation. Smoking cessation advice was subject to these relevance criteria and was primarily discussed if it posed a particular risk to a particular patient. Smoking cessation advice also occurred in conversations addressing the patient's well-being. If occurring without any other readable frame, smoking cessation advice was apt to be perceived by patients as part of a public campaign., Conclusions: Relevance criteria in the shape of communication of particular risks to particular patients and small-talk about well-being reflect the concept of "frames" by Goffman. Criteria of relevance limit the number of issues in individual consultations. Relevance criteria may explain why smoking cessation advice has not yet been implemented in many more consultations.
- Published
- 2010
- Full Text
- View/download PDF
43. [Responsibility for prevention in general practice: can you do what you want?].
- Author
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Guassora AD
- Subjects
- Denmark, Humans, Smoking Cessation, Family Practice, Preventive Health Services
- Published
- 2007
44. [Should physicians advise on smoking cessation? What do patients and the general population think?].
- Author
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Mortensen TL, Guassora AD, and Iversen L
- Subjects
- Adult, Counseling, Denmark, Female, Humans, Male, Middle Aged, Socioeconomic Factors, Surveys and Questionnaires, Attitude to Health, Outpatients psychology, Physician's Role, Public Opinion, Smoking Cessation methods, Smoking Cessation psychology
- Published
- 2004
45. [Ischemic stroke occurs among younger smokers].
- Author
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Christensen HK, Guassora AD, and Boysen G
- Subjects
- Aged, Brain Ischemia etiology, Cerebral Infarction etiology, Female, Humans, Male, Middle Aged, Prognosis, Prospective Studies, Risk Factors, Socioeconomic Factors, Stroke diagnosis, Smoking adverse effects, Stroke etiology
- Abstract
Introduction: Tobacco smoking is a well-known risk factor for stroke. The aim of this study was to assess whether smokers suffering ischaemic or haemorrhagic stroke differ from non-smokers in age, gender, socio-economic status, risk factors, pre-stroke level of function, and stroke severity., Materials and Methods: This work is based on 1,208 consecutive patients admitted to an acute stroke unit in a well-defined region of Copenhagen., Results: Haemorrhagic stroke was not correlated to smoking habits. In the patients with cerebral infarctions, we found no difference between smokers and non-smokers in stroke severity on admission or outcome at three months. The smokers were younger than the non-smokers. The mean age difference between smokers and non-smokers with ischemic cerebrovascular disease was nine years (95% CI 6.9-10.4), with the highest frequencies of smokers in male patients aged below 67 years and female patients aged below 74 years. The proportion of smokers in our stroke patients was larger than that in the general population. Lower socio-economic status was also related to a younger age at the onset of stroke., Discussion: This study demonstrates that stroke patients who smoke are on average nine years younger than non-smoking patients and thus emphasises the health hazards of smoking.
- Published
- 2001
46. Quality of life study in a regional group of patients with Crohn disease. A structured interview study.
- Author
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Guassora AD, Kruuse C, Thomsen OO, and Binder V
- Subjects
- Adolescent, Adult, Aged, Crohn Disease physiopathology, Female, Health Status, Humans, Interpersonal Relations, Interview, Psychological, Male, Middle Aged, Surveys and Questionnaires, Crohn Disease psychology, Quality of Life
- Abstract
Background: The course and prognosis of Crohn disease has previously been described in a regional group of patients in Copenhagen County. The aim of the present study was to reveal the quality of life. as judged by the patients, and compared to age- and sex-matched healthy controls., Methods: Out of 100 consecutive out-patients with Crohn disease, 94 patients accepted to participate together with 94 age- and sex-matched healthy controls. A modified McMaster Inflammatory Bowel Disease Questionnaire (IBDQ23) was used, excluding bowel-related questions. Medical students conducted interviews without knowing who were Crohn disease patients and who were controls. The bowel-related questions and Crohn's Disease Activity Index (CDAI) were assessed by gastroenterologists at inclusion in the study. Responses were indicated on a seven-point scale (7 best/1 worst). Mean numeric score was calculated as well as a delta score, i.e. the difference in score between a patient and the matched control., Results: In 21 of 23 questions the median delta score was zero, indicating no difference between patient and control. The median total delta score was 0.4 in favour of healthy controls (P < 0.001), and significantly higher in patients in relapse, 0.9, than in patients in remission, 0.3 (P < 0.01). The median total numeric score was 5.7 for patients and 6.1 for controls., Conclusions: Although patients with Crohn disease scored significantly lower on the quality of life scale than matched healthy controls, the differences were smaller than could be expected, taking the chronic disease into consideration. Disease activity correlated with the quality of life score.
- Published
- 2000
- Full Text
- View/download PDF
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